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Welcome to the Our MBC Life Summer Season 2023. In this episode Victoria Goldberg  is joined by clinical psychologist and author Sarah Mandel to discuss her beautiful, honest, and thoughtful memoir  Little Earthquakes and her insights into life and death, trauma and healing. parenting and hope.  

When Sarah  was pregnant with her second child, her daughter Sienna, she began preparing for her maternity leave, juggling the demands of her soon-to-be-new baby and her little daughter Sophie with the needs of her patients. Noticing a lump in her breast, she assumed it was most likely a clogged milk duct. But a biopsy revealed that it was breast cancer. When she went into labor, she learned that her cancer had already spread to her bones —horrible news that forced her to confront terminal illness as she was bringing new life into the world.

Take a listen. We promise you, you will love meeting Sarah.

More info about the show and past episodes is available on our website: www.ourmbclife.org

Got something to share? Feedback? 

Email: [email protected]

Follow us on Facebook, Instagram, and twitter @ourmbclife

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

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 Welcome to the  episode 4 of our Meditation Mondays series, created with MBC patients in mind. Being with the truth of whatever is here in this moment with compassion and without judgement and knowing that we're not any one thing because we are constantly changing, is at the heart of this practice.   Join us!

As we say at the start of every meditation session, sit back and prepare to become calm and relaxed for the next 19 minutes 

Inspired by a very enthusiastic response to monthly meditation sessions from one of SHARE’s MBC support groups, this episode is our third in the series of meditation sessions recorded over the last year. These sessions are on average  20-25 minutes long. Our meditation leader is Barbara Chutroo,  an MBC patient herself and a member of the group.

Barbara is a longtime meditator and experienced meditation teacher. She's also a movement therapist and a clinical social worker.
Thanks for listening!

You will find all the past episodes  for this series  in The Podcast Vault, on our website:  https://www.ourmbclife.org/vault/meditation

 Do you like this series? We welcome feedback

Email:

[email protected]

 Send us a voice recording via email or through SpeakPipe on our website. 

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We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

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In today’s episode, Anne Woodward sits down with a special guest to discuss the in’s and outs of having MBC while living in the public eye. Get ready folks you are not going to want to miss hearing from Kelly Crump. She is the first ever sports illustrated swimsuit model photographed while posing on a picturesque beach in a gorgeous swimsuit with a mastectomy scar for all the world to see. In this incredible interview Kelly explains how she embraced social media to live out loud and in doing so harnessed all the attention to be an inspiration and help her 30,000 + followers.

CoppaFeel- Is the first breast cancer charity in the UK to solely create awareness amongst young people, with the aim of instilling the knowledge and tools they need to get to know their bodies. We like to talk about a serious message in a light-hearted way, empowering people to start healthy habits for life.

https://coppafeel.or    

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

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 Welcome to the Meditation Mondays series, created with MBC patients in mind and designed for people who want to assist their body's natural tendency to repair and heal. It's not a substitute for medical treatment, but a compliment to it.

Inspired by a very enthusiastic response to monthly meditation sessions from one of SHARE’s MBC support groups, this episode is our third in the series of meditation sessions recorded over the last year. These sessions are on average  20-25 minutes long. Our meditation leader is Barbara Chutroo,  an MBC patient herself and a member of the group. 

Barbara is a longtime meditator and experienced meditation teacher. She's also a movement therapist and a clinical social worker.

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

Remember you are not alone.

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Introducing OMBCL Shorts! This new feature of our podcast brings you memorable outtakes from the amazing interviews we do with people living with MBC and the many incredible people who support us. Our inaugural OMBCL Shorts features Dr. Stephanie Graff talking about what she does when someone is newly diagnosed with MBC. This season, we had a 3-part series for people newly diagnosed and we couldn't resist getting her take on the topic. And we're so glad we asked! Listen in, enjoy, and let us know what you think by sending us a message on Twitter, Facebook, or Instagram! @ourmbclife

And don't forget to rate and review the podcast! Thanks so much for listening! 

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

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If you don't hear much about the rising rates of all stages of breast cancer, including MBC, in young women, you're not alone. De novo MBC rates (when Stage 4 MBC is found at the first diagnosis) are rising "exponentially", and fastest among women between the ages of 25 and 39, but not in older women. These trends are alarming to researchers. Perhaps most shocking of all: half of young women diagnosed with breast cancer under 45 have a postpartum diagnosis, defined as being within 10 years from their youngest child's birth, and that is something that rarely gets covered or explained. We'll explore it all in this episode, including the possible causes, recommendations for testing and even contraception for young women, and the research and clinical leaders working to make this a top priority in the BC & MBC space. It's difficult to consider, and dense, we know. But so important and important to share with all the young women in our lives. Not to scare them, but to inform and empower them.

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

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In 2021, the estimated number of women in the United States living with metastatic breast cancer rose to about 168,000 from 155,000 the year before, according to the Breast Cancer Research Foundation. The good news is that survival rates are also climbing, Over the last 20 years, advances in HER2 targeting treatments, ADCs, immune checkpoint inhibitors, and CDK4/6 inhibitors have prolonged survival and changed the breast cancer treatment landscape. 

New treatment paradigms and advances invariably lead to more questions about optimal drug sequencing, mechanisms of resistance, and how to overcome that resistance

In this episode we attempt to tackle these questions and review new advances and trends in MBC with assistance from Dr. Stephanie Graff

Take a listen. It is going to be an exciting discussion.

More info about the show and past episodes is available on our website: www.ourmbclife.org

Got something to share? Feedback? 

Email: [email protected]

Follow us on Facebook, Instagram, and twitter @ourmbclif

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

Remember you are not alone.

Send us Fan Mail

Welcome to the Meditation Mondays series, created with MBC patients in mind and designed for people who want to assist their body's natural tendency to repair and heal. It's not a substitute for medical treatment, but a compliment to it.

Inspired by a very enthusiastic response to monthly meditation sessions from one of SHARE’s MBC support groups, this episode is our second in the series of meditation sessions recorded over the last year. These sessions are on average  20-25 minutes long. Our meditation leader is Barbara Chutroo,  an MBC patient herself and a member of the group. 

Barbara is a longtime meditator and experienced meditation teacher. She's also a movement therapist and a clinical social worker.

 The focus of this episode  is practice of awareness.   When we meditate, what do we learn about ourselves?

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

Remember you are not alone.

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Living with metastatic breast cancer is hard enough, but for those who are single or do not have a primary caregiver, living alone with MBC can be especially challenging. Even if you're used to being independent, having cancer and going through treatment when you live alone raises many challenges.  Making space for all that you are feeling & managing the practical things of day to day may sometimes feel overwhelming but with some extra planning and working out who can support you, it is possible to continue to live alone and well even when you have MBC.

In this episode, we have a panel of four amazing ladies who share their experiences with living alone while navigating their MBC diagnosis and treatment. Then, we talk to Dr. Jane Lowers, Monica Bryant of Triage Cancer, and Lesley Glenn of Project Life about resources that can help us live alone and well with MBC.   There are many ways to make things easier emotionally and practically. We hope that in this episode you feel seen. 

*Note: individuals in this episode share their thoughts on medical aid in dying as one part of this rich discussion.  

MUSIC CREDITS:

"Honey Jam" by Massobeats

"Onion" by LuKremBo

"Exit to Nowhere" by DRG1991

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

Remember you are not alone.

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The first days, weeks, and months after being diagnosed with MBC can feel like you’ve been dropped into a dangerous and alien landscape, one whose inhabitants speak a new and confusing language. Numb and bewildered, you face a mountain of medical decisions—each of them seemingly high stakes.

If that sounds all too familiar, take a deep breath. Our goal for this third episode in our 3-part series for newly diagnosed patients is to help our listeners: 

1. Understand the Basics of their diagnosis

2. Make Informed Decisions about the tests their doctors order—and understand what the results mean

3. Feel Confident and Empowered to ask their doctors and other medical providers questions and to advocate for their best treatment

OMBCL senior producer Martha Carlson began by asking newly diagnosed MBC patients about what was most difficult with their medical care. The responses shaped this episode because what she heard back touched on everything from hearing the news to treatments to tests. Martha turned to leading medical oncologist Rebecca Shatsky, MD from UC San Diego Health for her take on these real-life, patient-focused topics. Dr. Shatsky not only demystified doctor-speak, she gets into the details of first steps and first tests for MBC subtypes, the differences between CTs and PET scans, what blood biopsies and tissue biopsies tell our oncologists and so much more. Because few things connect us better than sharing our stories, Martha also asked experienced MBC patients a single question: What do you wish you knew when you were first diagnosed? Throughout the episode, we hear from experienced patient advocates Dr. Kelly Shanahan, Joan Mancuso, Sheila Johnson, Marissa Holzer, and Ashley Fernandez. 

We’re so happy you joined us! If this conversation resonated with you please share it with someone who might need it. Don't forget to like and subscribe here to follow us on your favorite podcast platform so you never miss an episode. You can find more episodes, resources and ways to get involved on our website Our MBC Life. Have a topic you’d like us to cover? Email us at [email protected]. And don’t forget to follow us on our socials @ourmbclife. 

Remember you are not alone.