Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article from co-columnist Emma Schmitz on how she misses giving her Mom hugs amid the current COVID-19 pandemic. Not only is this discouraged from a public health guideline, Emma strives to be extra cautious as her Mom recovers from a lung transplant and is considered immune-suppressed. Read how something as simple as a hug is missed amid our current global health crisis.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing the results of a Eurodis Survey highlighting the healthcare experience for patients with a rare disease. Respondents to the survey identified three priority healthcare areas where changes could be made to help better care for patients with rare or complex diseases. Eurodis hopes the results of this survey will inspire policymakers to improve care to patients with a rare disease in Europe.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote on helping others manage stress amid the COVID-19 pandemic. Everyone deals with stress differently, but collectively, this pandemic has forced us to utilize many different coping skills to manage the stress of our current health crisis. Read some tips on how to help others effectively manage pandemic-related stress.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing the development of a lung-on-a-chip which will provide a more precise model for studying lung disorders, such as PF. Researchers at the University of Bern in Switzerland hope the application of this technology will advance both basic research into lung diseases and improve personalized medicine.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a piece from fellow columnist Christie Patient on the hope she feels after her parents both received their first COVID-19 vaccination. Christie’s Mom, Holly, is a lung transplant recipient and thus, Christie and her family have understandably been fearful of the virus throughout the last year. While we have a way to go before things are considered “normal” again, Christie feels hopeful as a result of the vaccine.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article announcing a priority review by the FDA on using Esbriet as a treatment for Unclassifiable Interstitial Lung Diseases (UILDs). Currently, there are no treatment options to slow the fibrotic progression for patients living with a UILD so the priority review, pending it’s results, could bring hope for people who otherwise have no option to treat their UILD.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote on the importance of goal-setting as a contributor to better overall health. Charlene has found this particularly important as she continues to recover and starts a new job. She also shares some of the tips that help her achieve those goals.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article highlighting an upcoming event by the European IPF and Related Disorders Federation (EU-IPFF). This virtual summit was created for patients, by patients and will focus on the patient voice and experience. To learn more about this virtual event, visit: eu-ipff.org

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote in memory of Don Prager, known to the PF community at Donnie Vapor. Charlene shares memories of Donnie in this piece, along with what she and other members of the PF community will miss most about him. Charlene is still contemplating how else to honor this great man but invites others to share their memories of him after reading this piece.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a recent webinar where key staff from NORD, the FDA and the CDC addressed concerns regarding the COVID-19 vaccines from the rare disease community. Among many other messages, an important takeaway from this webinar is that the current COVID-19 vaccines are safe for the rare disease community, including those living with pulmonary fibrosis. The full webinar discussion can be found on NORD’s homepage.

Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com