Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reflects on another birthday and the opportunity for reflection on the year just passed and the one to come. Birthdays tend to hold a lot of meaning for patients with a life-threatening lung disease like IPF. Therefore, Charlene spends time each year reflecting on what the previous year has taught her. Hear those reflections in her latest briefing!

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a UK-based, aimed at understanding the impact of COVID-19 on the PF community. Results showed an unrelenting impact of the virus on this particular rare disease community. From delayed diagnosis, to cancelled medical appointments and pulmonary rehabilitation classes, the COVID-19 pandemic is deeply affecting those living with PF.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote about finding the power in sharing your pulmonary fibrosis story. Inspired by the members of a recent peer support group through the Pulmonary Wellness Foundation, Charlene is considering a few new initiatives to encourage others to help one another through the sharing of their own story. There is no greater good than helping others, and as patients living with the same disease; we’re in a unique position to do that for one another.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a European survey investigating the impact of COVID-19 on rare disease patients in Europe. More specifically, the survey conducted by Eurodis was looking at how the pandemic disrupted care for this particular cohort of patients and plans to use the results to provide recommendations for better healthcare amid the continued pandemic and beyond.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column written by co-columnist Christie Patient on how she navigated time in the ICU with her Mom, while combating obsessive compulsive disorder (OCD) which complicates her thoughts. Christie shares some strategies that helped her during this difficult time and talks openly about caregiving with a mental illness.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a new trial taking place in partnership between Boehringer Ingelheim and Mount Sinai Hospital. The study will investigate the effect of Ofev on patients who develop lung fibrosis as a result of a COVID-19 infection.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote discussing palliative care and the historical stigma attached to this specialized type of medicine. Unfortunately, palliative care remains associated with end-of-life, which often deters patients from seeking out these professionals as part of their care team. However, palliative care focuses on improving quality of life and Charlene shares several ways they’ve helped her since her IPF diagnosis.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing two studies examining new targeted therapies to help patients living with pulmonary fibrosis. Both therapies are expected to move into clinical trials in the next several months and are being led by a researcher in Indiana.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column about the importance of embracing caregiving, in honor of National Caregiver Awareness Month. PF News Columnist Christie Patient writes about the beauty in caregiving for her Mom following a double-lung transplant, and how this is a necessity to recover from such a difficult operation.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column summarizing the work of researchers from University at Buffalo (UB) who recently received a large grant from the National Heart, Lung and Blood Institute to develop a model that mimics human lung tissue. The chair of the biomedical engineering department at UB calls this research exciting and is quoted saying it could “improve drug development and ultimately lower costs” for options to treat patients living with PF.

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