Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article from co-columnist Emma Schmitz who chronicled her Mom’s lung transplant experience amid COVID-19. Emma’s Mom received a single lung transplant in May of last year, and despite having to stay out of the hospital due to the pandemic, Emma shares what the experience was like for her.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a study out of Kindai University in Japan, where researchers investigated outcomes of IPF patients who experienced a pneumothorax (collapsed lung). They concluded that unfortunately, a pneumothorax among IPF patients can be difficult to treat and is associated with poorer outcomes, and noted that recurrence is common, especially among patients requiring a chest tube drainage for their first pneumothorax.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she recently wrote on her experience with post-traumatic stress disorder (PTSD). Charlene decided it was important to be vulnerable and discuss this topic, as she believes PTSD might be more common among chronically ill patients than we think, including those living with IPF. Charlene shares both her struggle with the disorder and what helps her combat it.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a summary of a study investigating fatigue in IPF patients (as measured by a Fatigue Assessment Scale, FAS) in those taking both Esbriet and Ofev. Unsurprisingly, the study revealed that fatigue is IPF patients suffer substantially from fatigue, regardless of the type of anti-fibrotic therapy they are taking.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote to help the chronic illness community address any pandemic-related anxiety through various resources. Many patients living with IPF are not immune to feeling anxious, and the current global health crisis has unfortunately increased those feelings. If you’re struggling and needing help, please check out the resources listed in this briefing.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a National Institute of Health (NIH) grant awarded to Boston University School of Medicine to create a cell model of IPF. This will help investigators better understand the processes that initiate and drive the progression of this cruel lung disease.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a European study examining the health-related quality of life (HRQoL) of patients living with idiopathic pulmonary fibrosis. Unsurprisingly, disease severity and age consistently emerged as two causes of decreased HRQoL among patients.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing an initiative between IPF patient, Nick Brown and the Three Lakes Foundation (TLF). This partnership is to help raise awareness for IPF while detailing the efforts of TLF along with sharing Nick’s story of being diagnosed with IPF as a young adult and subsequently receiving his double lung transplant.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a piece from our new columnist, Emma Schmitz on the experience of caregiving for her Mom post single lung transplant, amid a pandemic. Welcome Emma to the PF columnists’ team, we look forward to hearing more about yours and your Mom’s experience with IPF, transplant and caregiving.

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Beginning Wednesday, December 23, those of us at Pulmonary Fibrosis News will be taking a break for the holiday season. The flash briefings that you normally listen to every Monday and Thursday, will resume on Monday, January 4th, 2021.

We hope that you, your family and loved ones have a wonderful holiday season, and we look forward to bringing you the latest news and perspectives regarding PF in 2021.