I'm Dying to Tell You

Questions About ALS? There's an App for That: Roon!


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When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.

Vikram Bhaskaran takes us through the painful journey that sparked innovation – watching his father battle ALS in India while struggling to access reliable information and expertise. The stark contrast between his Silicon Valley tech job, where brilliant minds created seamless user experiences, and the "dark ages" of health information access, drove him to action. The result? ROON.

Roon addresses the three dimensions of living with ALS – medical knowledge, practical daily concerns, and the emotional/existential questions that arise. Through short, digestible videos, users can find answers to questions they might never get to ask during brief clinical appointments.

This episode offers a masterclass in turning personal tragedy into purpose. Beyond highlighting a valuable resource for the ALS community, it demonstrates how technology, when designed with genuine empathy, can create what Vikram beautifully describes as "a doctor friend who has your back."

Download Roon to experience this sanctuary of knowledge, where the burden of searching for reliable information is lifted, and a community of experts and fellow patients are ready to help.  Thanks for sharing with a friend. Hugs, Lorri

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I'm Dying to Tell YouBy Lorri Carey

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