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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 248 episodes available.
November 11, 2025198: An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Karen Smoot, a resident of New Mexico who has both idiopathic pulmonary fibrosis and pulmonary arterial hypertension. Karen is a patient ambassador for the Pulmonary Fibrosis Foundation....more16minPlay
November 04, 2025197: An Interview With Gabriela Romanow, Founder of Rare Vision, a Nonprofit That Helps Artists With Rare Neuroimmune DiseasesLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Gabriela Romanow, founder of Boston, Massachusetts-based Rare Vision. The charity showcases works by artists with rare neuroimmune diseases such as NMOSD, MOGAD and transverse myelitis....more9minPlay
October 29, 2025196: An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement for Immunology at Johnson & JohnsonLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Shea, director of global patient advocacy and engagement for immunology at Johnson & Johnson, about the experiences of patients affected by HDFN and FNAIT....more8minPlay
October 22, 2025195: An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University Medical CenterLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Nicole Lamanna, MD, a leukemia physician specializing in CLL treatment at Columbia University Medical Center in New York City....more12minPlay
October 15, 2025194: An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at Johnson & JohnsonLarry Luxner, senior correspondent for Rare Disease Advisor, interviews May Lee Tjoa, PhD, senior global medical affairs leader for Johnson & Johnson’s nipocalimab and maternal-fetal immunology division....more12minPlay
October 10, 2025193: An Interview With Dr. John Mascarenhas, Professor at New York's Icahn School of MedicineLarry Luxner, senior correspondent for Rare Disease Advisor, interviews John Mascarenhas, MD, a professor with the Icahn School of Medicine at Mount Sinai in New York, on advancing care in myelofibrosis....more18minPlay
October 01, 2025192: An Interview With Catherine Miller, PharmD, of Intellia Therapeutics on an Experimental Gene Editing Therapy for HAELarry Luxner, senior correspondent for Rare Disease Advisor, interviews Catherine Miller, PharmD, global medical affairs lead for hereditary angioedema (HAE) at Intellia Therapeutics, on an experimental gene editing therapy known as lonvo-Z....more14minPlay
September 24, 2025191: An Interview With Dr. Shoshana Revel-Vilk, Director of the Gaucher Unit at Israel's Shaare Zedek Medical CenterLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Shoshana Revel-Vilk, MD, director of the Gaucher unit at Shaare Zedek Medical Center in Jerusalem, Israel....more17minPlay
September 16, 2025190: An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient AdvocateLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Nikki McIntoch, mother of a boy with spinal muscular atrophy (SMA) and founder of the advocacy group Rare Mamas....more12minPlay
September 08, 2025189: An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber Cancer InstituteLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Jennifer Brown, MD, PhD, director of the CLL Center at Dana-Farber Cancer Institute in Boston, Massachusetts, and winner of the 2025 Michael J. Keating Outstanding Achievement Award....more14minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 248 episodes available.