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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 248 episodes available.
June 26, 2025178: An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, TexasLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas, on therapeutic options available to patients with Duchenne muscular dystrophy (DMD)....more15minPlay
June 20, 2025177: An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia GravisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Sithara Ramdas, MD, of Oxford Children's Hospital in England, on neonatal and juvenile myasthenia gravis....more12minPlay
June 18, 2025176: An Interview With Lyza Weisman on Living With Spinal Muscular AtrophyLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lyza Weisman, who has spinal muscular atrophy type 2, about how she copes with progressive loss of muscle function....more16minPlay
June 13, 2025175: An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure DisordersLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Marcus Delatte, PhD, on how the versatile cannabis plant offers innovative treatments for children with Dravet syndrome and Lennox-Gestaut syndrome....more11minPlay
June 09, 2025174: An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma SocietyLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lucy Culp, vice-president of state government affairs at the Leukemia & Lymphoma Society, on top issues of importance to patients with rare blood cancers....more12minPlay
May 26, 2025173: An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'Larry Luxner, senior correspondent for Rare Disease Advisor, interviews amyloidosis patient and former basketball player Dan Lier, a partner with the nonprofit group Somebody To Talk To, about his new "Rare Disease Playbook."...more11minPlay
May 19, 2025172: An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HDLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Live....more13minPlay
May 15, 2025171: An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple SclerosisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people with multiple sclerosis....more16minPlay
May 08, 2025170: An Interview With Joyce Kullman, Executive Director of the Vasculitis FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month....more13minPlay
May 08, 2025169: An Interview With Chris Lewis, Son of Famous Comedian Jerry LewisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy....more14minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 248 episodes available.