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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 233 episodes available.
May 26, 2025173: An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'Larry Luxner, senior correspondent for Rare Disease Advisor, interviews amyloidosis patient and former basketball player Dan Lier, a partner with the nonprofit group Somebody To Talk To, about his new "Rare Disease Playbook."...more11minPlay
May 19, 2025172: An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HDLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Live....more13minPlay
May 15, 2025171: An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple SclerosisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people with multiple sclerosis....more16minPlay
May 08, 2025170: An Interview With Joyce Kullman, Executive Director of the Vasculitis FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month....more13minPlay
May 08, 2025169: An Interview With Chris Lewis, Son of Famous Comedian Jerry LewisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy....more14minPlay
May 08, 2025170: An Interview With Chris Lewis, Son of Famous Comedian Jerry LewisLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy....more14minPlay
April 30, 2025168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP)....more13minPlay
April 28, 2025167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in ResearchLarry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research....more14minPlay
April 15, 2025166: An Interview With MDA 2025 Patient Ambassador Lily SanderLarry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador....more15minPlay
April 11, 2025165: An Interview With Duchenne Expert Katherine Mathews, MD, of the University of IowaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system....more12minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 233 episodes available.