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Rare Care Podcast
Rare Care Podcast episodes
- 176: An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lyza Weisman, who has spinal muscular atrophy type 2, about how she copes with progressive loss of muscle function.
16 min - 175: An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Marcus Delatte, PhD, on how the versatile cannabis plant offers innovative treatments for children with Dravet syndrome and Lennox-Gestaut syndrome.
11 min - 174: An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lucy Culp, vice-president of state government affairs at the Leukemia & Lymphoma Society, on top issues of importance to patients with rare blood cancers.
12 min - 173: An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews amyloidosis patient and former basketball player Dan Lier, a partner with the nonprofit group Somebody To Talk To, about his new "Rare Disease Playbook."
11 min - 172: An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Live.
13 min - 171: An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people with multiple sclerosis.
16 min - 170: An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month.
13 min - 169: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.
14 min - 170: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.
14 min - 168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP).
13 min
About Rare Care Podcast
From the publisher's feed
Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.