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Friday, February 28, 2025 - Week 9
Hope vs. Despair?
Despair:
https://www.usatoday.com/story/life/health-wellness/2025/02/25/elon-musk-donald-trump-disabled-people/80112602007/
Hope:
Disability is Political
Take it or Advocate?
Taking it does not work.
Advocate:
Annie Kennedy’s comments at the ELF Capitol Briefing: https://www.youtube.com/live/F6kfKsYCQYU?si=ihWOl7Lda7Steg3p&t=3391
Responsibility to those who cannot or will not be here. 10% of Americans. 10k diseases, all chronic. Childhood. Do not have FDA approved treatments, no cures. Staggering Financial Costs aka Toxicities. Efforts to date have allowed for interventions that may still matter. We have invested so much.
Episode 163 of #Syngap10
#Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1
5
8383 ratings
Friday, February 28, 2025 - Week 9
Hope vs. Despair?
Despair:
https://www.usatoday.com/story/life/health-wellness/2025/02/25/elon-musk-donald-trump-disabled-people/80112602007/
Hope:
Disability is Political
Take it or Advocate?
Taking it does not work.
Advocate:
Annie Kennedy’s comments at the ELF Capitol Briefing: https://www.youtube.com/live/F6kfKsYCQYU?si=ihWOl7Lda7Steg3p&t=3391
Responsibility to those who cannot or will not be here. 10% of Americans. 10k diseases, all chronic. Childhood. Do not have FDA approved treatments, no cures. Staggering Financial Costs aka Toxicities. Efforts to date have allowed for interventions that may still matter. We have invested so much.
Episode 163 of #Syngap10
#Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1
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