Real Pink

Breast cancer is the leading cause of cancer deaths for Hispanic and Latina women in the U.S., a fact that has driven today’s guest to become a passionate advocate for health equity in the Latinx community. After her diagnosis in 2018, Idalia Guzman realized that living with MBC was possible and that she could continue to have a productive life while enduring the treatment’s side effects. In fact, she is fortunate enough that she was able to continue with her doctorate degree studies and work full time while raising two teenagers. Idalia is part of Komen’s newly formed MBC Steering Committee, which seeks to ensure the unique needs of the MBC community are integrated across Komen’s programs and initiatives. She also has provided feedback for the development Komen’s MBC Impact Series focused on the Hispanic/Latinx community and participated in Komen’s Race for the Cure in Puerto Rico. Sharing her experience and knowledge with other patients gives her a sense of purpose, so we are thrilled to have her on the show today to share her experience of living life with MBC in the Latinx community. Idalia, welcome to the show!

Women are often the gatekeepers of the family’s health and the ones responsible for ensuring their family members stay on top of health information and screenings. Because of this, it can be helpful for them to understand that certain inherited gene mutations may increase the risk of breast cancer in both women and men in their family. These inherited gene mutations may also increase the risk of other cancers such as ovarian cancer (in women) and prostate cancer (in men). Therefore, it is important for family members with inherited gene mutations to share their test results with both men and women in their families, since they all may benefit from talking to their doctors about how these mutations impact their risk for breast, prostate and other cancers as well as exploring options for genetic counseling and testing. Here today to help us specifically understand the relationship between breast cancer and prostate cancer is medical oncologist, Assistant Professor of Medicine and Director for the Program for Breast Cancer in Men at Dana-Farber Cancer Institute, Dr. Jose Pablo Leone. Dr. Leone, welcome to the show!

Breast cancer screening can help find breast cancer early when the chances of survival are highest. In this episode, we are going to learn more about Komen’s Screening & Diagnostics Program, which provides no-cost breast cancer screening and diagnostic services for people of all ages and genders who meet income guidelines in select cities. I am excited to be joined by Jade Gibson, a patient navigator at Komen, and Morgan Barnes, a Wellness Program Coordinator at the Center for Black Women’s Wellness in Atlanta, to learn more about the Screening & Diagnostics Program. Welcome to the show, Jade and Morgan!

Every person’s experience with mastectomies is different. Some people might experience extreme body dysmorphia following their surgeries and others might find the healing process easier. Concerns about body image and sexuality are common and can be especially hard for young breast cancer survivors, who find that regaining body confidence after a mastectomy can be difficult. Today’s guest was diagnosed at age 36 with stage IIIC triple-negative breast cancer and because of ongoing treatments, has not yet been able to have a breast reconstruction or even have expanders put in. Here today to talk about how that has affected her physically, emotionally and mentally is LaToya Bolds-Johnson.

A cancer diagnosis is never easy, especially on the children of the family. Today's guest a friend of host Adam Walker -- Sindhu Giedd. Her mother was diagnosed with early stage breast cancer when she was in ninth grade. Now as a mother herself and near the age that her mother was when she was diagnosed, Sindhu reflects on her experience with her mother's diagnosis, how she thinks about her health and the health of her family, and gives us some advice for how families can include their older children in the breast cancer conversation.

When something feels off, it's important to pay attention to it. Sometimes that might mean having to stand up to your healthcare team when your needs are not being met, which is not always easy. Asking questions or pushing can be difficult when you're feeling overwhelmed, scared, or want to be seen as a good patient.However, you know your body best and self advocating really boils down to listening to your body and speaking up for it. Today's guest was having warning signs that something was wrong, but dismissed them at first because she could not feel a lump. She knew her body and despite doctors telling her that it was no big deal, she pushed for further testing, which ultimately led to her diagnosis. Here today to tell her story and why it is so important to advocate for yourself until you get the answers you need is Laurie Potz.

The path to care is daunting and complex under the best of circumstances. But it is further complicated for underserved populations, particularly women of color, who experience significant barriers throughout the continuum of care. Komen is focused on ensuring all people receive the care they need through our Patient Care Center, which seeks to remove barriers and serve as a dedicated care partner, helpful guide, and support resource throughout the breast health care journey.

On today's podcast, we talked to Dr. Fred Singer from American Bone Health to discuss the link between breast cancer and bone health. You will learn about how to assess your risk of bone fractures, how to improve your overall bone health, and the different screenings available to integrate. Obtaining a baseline bone scan coupled with knowing your bone health risks can offer you a plan for maintaining strong, healthy bones, which is important to your overall health.

This episode originally aired on September 20, 2021.

In any healthcare situation, it is important to be your own best advocate. No one knows more about your body than you do. Not your partner, not your family, not even your doctor. So when you talk with medical professionals about your health, remember that you have important information they can use. You know about changes in your body and about any problems you are having. You know what your breasts normally look and feel like. Trust your own experience and talk honestly about it with your doctor to make sure you get the care you deserve. Demand more tests when you know something isn’t quite right, understand your disease, be involved in medical care decisions, ask questions and reach out for support. Today’s guest did just that and is here to share the importance that standing up and being heard has played in her breast cancer journey. Mary Ann, welcome to the show!

When you receive a breast cancer diagnosis, your life can literally change in an instant.  It is important to know that you are not alone.  The support of friends and family is crucial, but a patient navigator can also be an invaluable part of your support team.  Patient navigators are trained to help to guide you through the healthcare system, to work with you to find the resources and support you need and to help keep you on course with your treatment plan. They are there to check on you, to lend support and let you know that you are not alone. Today’s guest was laid off from her job within a week of the time that she was diagnosed with breast cancer. Here today to tell her story and why it was so crucial to have a patient navigator to help maneuver through the many life changes that she was experiencing is Melissa Jones.  Melissa, welcome to the show!