RealTalk MS

This past weekend, 8,000 MS research scientists and clinicians gathered virtually for the joint meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis and the European Committee for Treatment and Research in Multiple Sclerosis. Known as ECTRIMS, this year's conference was appropriately re-branded as MSVirtual2020. We're talking about great presentations on the MS prodrome (and we'll explain what that is and why it's important), when it might be time to discontinue MS disease-modifying therapies, some encouraging progressive MS clinical trial results, the new number for global MS prevalence, and more! We have a lot to talk about. Welcome to MSVirtual2020!

The MS Prodrome :56

When is it appropriate to discontinue disease-modifying therapy in MS? 4:18

Study shows Masitinib slows disability progression in progressive MS 6:49

Multiple Sclerosis International Federation announces the Atlas of MS, with Clare Walton 9:08

Study shows disease-modifying therapy may delay disability progression and time until people with primary progressive MS need a wheelchair 20:55

Study analyzes benefits of Wahls Diet & Swank Diet 22:47

Atara BioTherapeutics shares initial data from its ATA-188 cell therapy clinical trial, with Dr. AJ Joshi 24:07

Share this episode 40:17

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Bonus Episode: Guests: Clare Walton, Dr. AJ Joshi

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSVirtual2020, RealTalkMS

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You can't control the weather, but you can learn to dance in the rain. And developing resilience teaches you how to dance in the rain. My guest is Dr. Dawn Ehde, a clinical psychologist and professor of rehabilitation medicine at University of Washington Medicine. Dr. Ehde is an expert in understanding resilience, and she's joining us to explain why having resilience is central to improving the well-being of people affected by MS, and how to go about building your resilience -- even in the midst of a global pandemic. We're also talking about Bafiertam, a lower-cost, FDA-approved bioequivalent to Tecfidera. We'll share the results of a study of more than 5,000 people who were newly diagnosed with MS -- and not prescribed a disease-modifying therapy for two years following their diagnosis. We'll also explain why that's just wrong! We'll talk to Suzi Claflin, the academic lead for Understanding Multiple Sclerosis, a free comprehensive 6-week online course that's open for registration right now. And we'll remind you about where you can register for next week's Black MS Experience Summit. We have a lot to talk about! Are you ready for RealTalk MS??!

We're celebrating 3 amazing years! :22

The joint ACTRIMS-ECTRIMS meeting took place last weekend and that means a bonus episode of RealTalk MS is coming 2:38

Bafiertam is now available in the United States 4:44

Study shows that 2/3 of people newly diagnosed with MS in the U.S. are not prescribed any disease-modifying therapy for 2 years following their diagnosis 5:43

Understanding Multiple Sclerosis, a free online course, is open for registration. My interview with Suzi Claflin 8:44

The Black MS Experience Summit takes place next week 21:51

My Interview with Dr. Dawn Ehde 23:43

Share this episode 40:32

Donate to the National MS Society COVID-19 Response Fund 40:52

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/159

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Bafiertam

STUDY: A Novel In-Home Digital Treatment to Improve Processing Speed in People with Multiple Sclerosis: A Pilot Study

STUDY: Treatment Patterns and Comorbid Burden of Patients Newly Diagnosed with Multiple Sclerosis in the United States

"Understanding Multiple Sclerosis" Online Course Registration

National MS Society Black MS Experience Summit

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 159 Guests: Dr. Dawn Ehde

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, UWMedicine, RealTalkMS

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Disease-modifying therapies are the cornerstone of any effective MS treatment plan. But with more than 20 approved prescription medications available today, the choices can seem overwhelming. People living with MS have questions -- Do you start out with a safe but less effective medication, or do you hit MS hard with a high-efficacy drug that may carry more risks? When is the right time to consider switching medications, and how do you have that conversation with your neurologist? Do things like other health conditions affect which disease-modifying therapy you're on? And what about aging? My guest is Dr. Scott Newsome, an Associate Professor of Neurology, and Director of Neurosciences Consultation and Infusion Center at Johns Hopkins Medicine. Dr. Newsome also serves as the Co-Director of the Multiple Sclerosis Experimental Therapeutics Program at Johns Hopkins. And I'm devoting this entire episode of RealTalk MS to taking a deep-dive into disease-modifying therapies with Dr. Newsome. We'll also give you the details about two major events taking place this week -- the MSVirtual2020 conference and the Keep Moving Forward benefit celebrating the MS Movement. We have a lot to talk about! Are you ready for RealTalk MS??!

ECTRIMS + ACTRIMS = MSVirtual2020 :24

Don't miss Keep Moving Forward 1:08

My Interview with Dr. Scott Newsome 1:38

Share this episode 33:06

Leave a rating & review 33:26

Please Support the National MS Society COVID-19 Response Fund 34:45

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: realtalkms.com/158

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 158 Hosted By: Jon Strum Guests: Dr. Scott Newsome

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Tecfidera, Ocrevus, Kesimpta, Copaxone, Gilenya, RealTalkMS

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One of the very few bright spots to emerge during the COVID-19 pandemic is the overall effectiveness and efficiency of telemedicine. And although people living with MS and their doctors have largely hailed telemedicine as a success, there are significant obstacles to overcome before it can become a permanent part of our healthcare system. My guest is Mei Wa Kwong, the Executive Director of the Center for Connected Health Policy, and we're talking about the things that need to happen to ensure that telemedicine remains a viable means of healthcare delivery. We're also talking about a study that demonstrates that playing a video game can improve cognitive function for people with MS. We'll tell you about the research team that has identified the specific areas in the brain where the neurological changes triggered by fatigue actually occur, and why that's a good thing for people living with MS. Over 1,000 people living with MS completed the global vsMS survey. We'll share the key results with you. We'll also give you the details about a small MRI study that shows one way that the brains of African-Americans with MS are affected differently than the brains of Caucasians with MS. And we'll remind you about where you can register for the upcoming National MS Society's Black MS Experience Summit. And we're inviting you to Keep Moving Forward, a virtual benefit to celebrate the MS Movement. You won't want to miss this! We have a lot to talk about! Are you ready for RealTalk MS??!

A study shows that a video game can improve cognitive function for people with MS 2:25

Researchers identify areas of the brain that are affected by fatigue 5:09

Results of the global vsMS survey remind us of all the ways that MS interrupts lives 7:04

MRI study shows one way that MS affects the brains of African-Americans differently than Caucasians 9:30

National MS Society to convene the Black MS Experience Summit 10:50

You're invited to Keep Moving Forward, a virtual benefit to celebrate the MS Movement 11:56

My Interview with Mei Wa Kwong 13:31

Share this episode 23:48

Leave a rating & review 24:09

Please Support the National MS Society COVID-19 Response Fund 24:51

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/157

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

The Center for Connected Health Policy

STUDY: A Novel In-Home Digital Treatment to Improve Processing Speed in People with Multiple Sclerosis: A Pilot Study

STUDY: Neural Mechanisms Underlying the Effects of Physical Fatigue on Effort-Based Choice

Effects of Multiple Sclerosis on Daily Activities, Emotional Well-being, and Relationships: The Global vsMS Survey

STUDY: African Americans Experience Disproportionate Neurodegenerative Changes in the Medulla and Upper Cervical Spinal Cord in Early Multiple Sclerosis

National MS Society Black MS Experience Summit

Keep Moving Forward: A Benefit to Celebrate the MS Movement

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 157 Guests: Ms. Mei Wa Kwong

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Telehealth, vsMS, RealTalkMS

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Whether you call it brain fog, cog-fog, or you don't happen to have a name for it, cognitive dysfunction affects more than half of all the people with MS. Joining me once again is Dr. Meghan Beier, a Rehabilitation Neuropsychologist and Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine. Dr. Beier specializes in cognitive rehabilitation and neuropsychological assessment and intervention and she's back to answer more of our questions about managing the cognitive issues typically associated with MS. We're also talking about Kesimpta (ofatumumab), the high-efficacy b-cell disease-modifying therapy that just received FDA approval. We'll tell you about the case study of a patient who lost their vaccination immunity to the Varicella-Zoster virus (causes chickenpox & shingles) after receiving their first Ocrevus infusion. We'll give you the details about the generic for Tecfidera that's going to be available in just a few weeks. And we'll tell you why the U.S. Department of Justice is suing Teva, the manufacturer of Copaxone. We'll share all the details and let you know where to register for the National MS Society's Black MS Experience Summit. And we'll tell you how a research team from Facebook (yup -- you read that right!) and New York University is hoping to speed up MRI exams. We have a lot to talk about! Are you ready for RealTalk MS??!

We're trending! :22

FDA approves ofatumumab (Kesimpta) for treating relapsing-remitting MS and active secondary-progressive MS 3:53

Patient loses vaccination immunity for Varicella-Zoster virus after Ocrevus infusion 5:44

Generic for Tecfidera will be available in September 8:25

U.S. Department of Justice sues Coaxone manufacturer, Teva 9:18

National MS Society to convene the Black MS Experience Summit 12:24

Facebook & New York University research team develop artificial intelligence technology that will speed up MRI exams 13:26

My Interview with Dr. Meghan Beier 15:48

Share this episode 29:38

Leave a rating & review 29:58

Please Support the National MS Society COVID-19 Response Fund 30:22

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/156

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Varicella-Zoster Immunity Loss in Multiple Sclerosis Patient Treated with Ocrelizumab

National MS Society Black MS Experience Summit

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 156 Hosted By: Jon Strum Guests: Dr. Meghan Beier

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Tecfidera, Ocrevus, Kesimpta, Ofatumumab, RealTalkMS

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Being a caregiver can be stressful in the best of circumstances. And life certainly doesn't get any easier or less burdensome for a family caregiver during a global pandemic. Research shows that COVID-19 is adding to the long list of things that caregivers worry about, adding a whole new layer of stress and anxiety to the situations they face every day. My guest this week is MaryAnne Sterling. MaryAnne is an expert on the challenges of family caregiving. And we're talking about ways that MS caregivers can offset stress and avoid burnout by incorporating self-care into their daily routine. We're also talking about a UTSW research team that's identified a new target for minimizing inflammation in the central nervous system. We're looking at some alarming results from a study that shows 1 in 5 MS patients fail to stay on their oral disease-modifying therapy. And we're sharing the details of a new at-home UTI test kit. We don't want you to miss A&W's Burgers to Beat MS Day this Thursday, so we'll tell you how you can participate -- even if you're nowhere near an A&W! And we'll share some of the alarming findings from a report on the impact of the COVID-19 pandemic on family caregivers. We have a lot to talk about! Are you ready for RealTalk MS??!

Reelin' in a new treatment for Multiple Sclerosis 2:32

Study finds 1 in 5 MS patients don't stay on their oral DMT 5:50

At-Home UTI Test Kit launching in the U.K. 8:15

Thursday is Burgers to Beat MS Day! 10:18

Survey shows that COVID-19 has increased the pressure on caregivers 12:44

My Interview with MaryAnne Sterling 16:43

Share this episode 34:10

Please leave a rating & review 34:29

Please Support the National MS Society COVID-19 Response Fund 34:52

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/155

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

STUDY: Reelin Depletion Protects Against Autoimmune Encephalomyelitis By Decreasing Vascular Adhesion of Leukocytes

STUDY: Real-World Adherence to, and Persistence With, Once- and Twice-Daily Oral Disease-Modifying Drugs in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysis

Burgers to Beat MS

Caregiving and COVID-19 Report

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 155 Hosted By: Jon Strum Guests: MaryAnne Sterling

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSSocietyCA, Reelin, Caregiving, Caregiver RealTalkMS

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One of the things that people affected by MS seem to worry about every year is the flu vaccine. And the question is always the same -- is it safe for someone with MS to get a flu shot? This year, that question and its accompanying anxiety are compounded by the COVID-19 pandemic. Is it safe for someone with MS to get a flu vaccination during the pandemic? Is it safe for someone with MS to get a COVID-19 vaccination when one becomes available? And what about the impact of MS disease-modifying therapies on the effectiveness of any vaccination? My guest is Dr. John Ciotti, a board-certified neurologist and clinical fellow at Washington University in St. Louis, Missouri. Dr. Ciotti is with us to answer those important questions. We're talking about flu shots and other vaccinations, and we're even talking about how a COVID-19 vaccine -- which doesn't exist today -- is likely going to affect people with MS who are on disease-modifying therapies. This is a conversation you don't want to miss because the perfect antidote to worrying is getting your hands on good, credible information. We're also talking about the very positive outcomes of two clinical trials comparing ofatumumab to Aubagio. It's likely that next month, ofatumumab (Arzerra) is going to receive FDA approval for treating MS, so these clinical trial results are something you'll want to know about. We'll share the results of a study that should give you the most important reason yet to include exercise as part of your regular routine and we'll point you toward the new exercise resources that have been created especially for people living with MS. The National MS Society conducted a survey to measure how the COVID-19 pandemic was affecting people living with MS. We'll share some of the highlights from the survey and we'll even remind you where to find the resources that were requested most by survey respondents. And we'll tell you about the very first study to measure the incidence of MS in China. We have a lot to talk about! Are you ready for RealTalk MS??!

National MS Society survey measured the impact of the COVID-19 pandemic on people living with MS 1:54

Clinical trial data shows ofatumumab outperforms Aubagio 4:08

Research shows that exercise preserves key areas of the brain among people with MS 6:53

Research team is first to report the incidence of MS in China 10:00

My Interview with Dr. John Ciotti 12:55

Share this episode 28:25

Please leave a rating & review 28:48

DUNK MS is happening Saturday! 29:01

Please Support the National MS Society COVID-19 Response Fund 29:40

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/154

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Effects of MS Disease-Modifying Therapies On Responses to Vaccinations: A Review

RealTalk MS Episode #148: Updated guidance on COVID-19 and each of the available disease-modifying therapies

STUDY: Ofatumumab vs Teriflunomide in Multiple Sclerosis

STUDY: The Importance of Physical Activity to Preserve Hippocampal Volume in People with Multiple Sclerosis: A Structural MRI Study

National MS Society Recommendations for Exercise & Physical Activity For ALL People with MS

VIDEO: Stretching Tips for MS

VIDEO: Aerobic Exercise Tips for MS

VIDEO: Breathing Exercise Tips for MS

STUDY: Incidence of Multiple Sclerosis in China: A Nationwide Hospital-Based Study

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

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Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 154 Hosted By: Jon Strum Guests: Dr. John Ciotti

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Vaccinations, COVID-19, RealTalkMS

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MS patients experience better treatment outcomes when they actively participate in their own care. And that requires high health literacy. One of my guests is health literacy expert Dr. Kalina Sanders and we're talking about how being an informed patient can have a significant impact on the healthcare you receive.

A well-rounded MS treatment plan will include wellness practices like making smart food choices and adding exercise to your routine. But making changes to our health behaviors is challenging for everyone -- and maybe more challenging if you're already trying to manage a chronic illness like MS. My second guest is wellness coach Kate Costello and we're talking about how changing your health behaviors can be a lot easier when you have someone supporting you every step of the way.

We're also talking about the new guidelines for diagnosing and treating MS in Canada. We'll tell you about a 10-year study that shows that when motor skills decline, walking takes the first hit. Find out where to apply for the CAN-DO MS two-day Take Charge program for young adults and their support partners. And we'll tell you how (and why!) to share your voice about MS advocacy issues. We have a lot to talk about! Are you ready for RealTalk MS??!

Canadian MS Working Group issues new MS diagnosis & treatment guidelines 2:14

When motor skills decline, walking takes the first hit 4:14

The importance of health literacy with Dr. Kalina Sanders 6:33

CAN-DO MS announces two-day Take Charge program for young adults living with MS and their support partners 17:10

Add your voice to the National MS Society's public policy survey 19:16

My Interview with wellness coach Kate Costello 20:55

Share this episode 32:40

Leave a rating & review for RealTalk MS 32:59

Please Support the National MS Society COVID-19 Response Fund 33:15

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/153

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Kate Costello at Wildcrafted Wellness

Treatment Optimization in Multiple Sclerosis: Canadian MS Working Group Recommendations

STUDY: Ten Year Disease Progression in Multiple Sclerosis: Walking Declines More Rapidly than Arm and Hand Functioning

CAN-DO MS Take Charge Program for Young Adults

National MS Society Public Policy Survey

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 153 Hosted By: Jon Strum Guests: Dr. Kalina Sanders, Kate Costello

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Cognitive decline and depression are two of the more common invisible symptoms of multiple sclerosis, impacting at least half of all the people living with MS. My guest is Dr. Meghan Beier, an Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine, and a Rehabilitation Neuropsychologist. Dr. Beier specializes in cognitive rehabilitation and neuropsychological assessment and intervention, and she's going to share some specific strategies that you can use to best manage MS-related cognitive problems and depression. We're also talking about the newly announced $16 million dollar investment from the National MS Society that will support 50 new MS research initiatives. We'll tell you about a small pilot study that suggests that ketamine may be effective in treating MS fatigue. And if you're contemplating using a CBD product to help manage your MS, you'll want to hear what the FDA discovered when they checked the labels on 147 different CBD products. We're even sharing a new, super-easy way for you to add your rating and review of RealTalk MS (and we'd love it if you would!). We have a lot to talk about! Are you ready for RealTalk MS??!

Announcing the easiest way ever to leave a rating and review for RealTalk MS :29

The National MS Society just invested $16 million in new MS research 3:14

Study shows that ketamine may be an effective treatment for MS fatigue 5:14

The FDA checked the labels of 147 CBD products 7:37

My Interview with Dr. Meghan Beier 13:31

Share this episode 30:57

Please Support the National MS Society COVID-19 Response Fund 31:16

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/152

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society's New MS Research Investments

STUDY: Pilot Randomized Active-Placebo-Controlled Trial of Low-Dose Ketamine for the Treatment of Multiple Sclerosis-Related Fatigue

Report to the U.S. House Committee on Appropriations and the U.S. Senate Committee on Appropriations: Sampling Study of the Current Cannabidiol Marketplace to Determine the Extent That Products are Mislabeled or Adulterated

Contact an MS Navigator: On The Web By Phone: (800) 344-4867 By Email: [email protected]

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 152 Hosted By: Jon Strum Guests: Dr. Meghan Beier

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Pain and fatigue are two of the most common and challenging symptoms of MS. These are the symptoms that can stop you from fully engaging in your life at work, at home, with friends, or family. My guest is Dr. Heidi Maloni. Dr. Maloni is a nurse practitioner and the National Clinical Nursing Director for the Multiple Sclerosis Center of Excellence East at the Veterans Affairs Medical Center in Washington, DC. And Dr. Maloni is an expert on treating pain and fatigue in MS. Dr. Maloni will share some best practices for managing MS-related pain, we'll talk about some specific medications that can help manage MS-related pain, and we'll also get into the effectiveness of cannabis-based products for managing pain. And when we talk about fatigue with Dr. Maloni, we'll talk about how to get your friends and family to stop telling you that you're probably just tired, and a nap will fix everything. We're also talking about why access to affordable healthcare isn't shouldn't be a partisan political issue and what gets lost in the conversation when it is. If you happen to be an African-American or Hispanic MS patient and you'd like to have a voice in the design of an important MS research study, we'll tell you how you can be a part of that study's Patient Advisory Group. It's an opportunity for the patient perspective to be part of the planning for this study. And it's an opportunity for you to be paid for your participation in that planning. We'll also tell you about Sidecar, a dramatic short film from SHIFT-MS that illustrates the physical and emotional burden that accompanies MS progression. And if you're an MS caregiver who would like to contribute to MS research, or you know someone who is, we'll tell you about an online survey just for you. We have a lot to talk about! Are you ready for RealTalk MS??!

Your access to healthcare shouldn't be a partisan issue, right? 2:25

Join the Patient Advisory Group for the CHIMES study 8:32

DUNK MS is going virtual and raising funds for MS research 10:24

SHIFT-MS debuts Sidecar, their latest short film 20:03

Are you an MS caregiver? There's an online survey for you 20:59

My Interview with Dr. Heidi Maloni 22:19

Share this episode 42:06

Please Support the National MS Society COVID-19 Response Fund 42:26

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

CHIMES Study Patient Advisory Group questionnaire

DUNK MS

SIDECAR: A SHIFT-MS film about the misapprehensions of advanced multiple sclerosis

Accelerated Cure Project for MS Survey: Caregiver Relationships with Healthcare Providers

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RealTalk MS Episode 151 Hosted By: Jon Strum Guests: Dr. Heidi Maloni, Blake Arnet

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, DunkMS, RealTalkMS

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