In this heartfelt and informative episode, Kim Wardlow welcomes therapist and advocate Darran Zenger to explore the dynamics of family advocacy in the blind and low-vision community. Drawing from both professional expertise and personal experience living with Usher Syndrome, Darran dives into what it means to advocate for and within your family.

From setting expectations and communicating evolving needs to building support systems and navigating shifting family roles, Darran offers practical strategies and emotional wisdom. The conversation also explores the emotional side of disability, the importance of peer connection, and the value of mental health support for both individuals and families.

🕰️ Chapter Markers:

00:00 – Welcome & Intro to the Advocacy Series

01:20 – Meet Darran Zenger: Therapist and Advocate

03:45 – Defining Family Advocacy in Context

06:00 – Communication & Self-Advocacy Within the Family

08:05 – Common Family Challenges and Emotional Struggles

10:15 – Advocating for Inclusion in Everyday Life

12:30 – Teaching Children Advocacy Through Lived Example

14:35 – Balancing Support and Independence

17:00 – Advocacy Through Layout, Routine & Environment

19:00 – Empathy, Listening, and Perspective Shifts

22:50 – Adapting to Progressive Vision Loss Over Time

25:00 – Humor and Honesty in Self-Advocacy

27:30 – Tools, Training, and Support for Families

29:45 – Guide Dogs, Children, and Trust

31:45 – Educating Without Exhaustion

33:50 – Mental Health and the Need for Connection

36:55 – Final Thoughts and Resources

📬 Contact Information:

📧 Email: [email protected]

🌐 Website: www.aftersight.org