SMA Invisible Life

Do you ever feel like no matter how much you do, it's not enough? I have been feeling that today and share my thoughts for the day.

I have been struggling a lot with motivation lately. However, I did finally make it back into the gym yesterday. That's one of the best things I can do for myself to keep me on track. I also have noticed the weather really seems to affect how motivated I feel.

Are you someone that gives all of your energy to others and enjoys helping out? Or do you know how to save some of that energy for yourself?

Courtney talks about the struggles of SMA and loss, whether it be someone in the community, or the loss of an ability.

An episode about my experience in the work world and different ideas of what success means.

In this episode I share my opinion on achieving goals and watching television.

In this episode, I talk about my struggle with taking a shower with SMA and the exhausted feeling that comes after.

Listen while Courtney talks about her experience with stairs, cat food, and more.

A scenario that came up today.

My take on risdiplam vs Spinraza as someone with spinal muscular atrophy type 3