Today, we share the heartbreaking news of Qusay Hussein’s passing with heavy hearts and deep reverence for the extraordinary life he lived. Qusay was more than a guest on Stories of Vision Loss—he was a beacon of resilience, a storyteller whose wisdom transcended his blindness, and a man who carried himself with unwavering dignity. 

Qusay’s legacy lives on in countless ways—through the Qusay Hussein Humanitarian Award at UT Austin’s School of Social Work, honoring those who, like him, lead with compassion; through the colleagues who credit his spirit as their motivation in dark times; and through his own powerful words: “I believe in the power of stories… By sharing mine, I hope others can learn, grow, and find strength.”

For those wishing to revisit his indelible voice and the lessons he shared, his interview remains a cherished space to remember him as an enduring tribute. The mark he has left on this world will not fade.

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Lisa is a Diabetes Care and Education Specialist passionate about helping others, which started with helping her mother with diabetes.  She shares her experience developing diabetes, diabetic retinopathy, and strokes.  She has a wealth of professional and personal experience with diabetes, and she hopes that sharing her experience will allow others not to feel so alone on their parallel journey.

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Nazanin shares her journey as a research professor studying health disparities and equity in various populations (including diabetic retinopathy).  She describes her visual experience as always legally blind, but not a label that defines her life.  Though, it has helped make her an excellent problem solver!  She talks about parenting and learning to ride a bicycle again as an adult.

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Mary Tyler Moore is a cherished figure in the hearts of many with her enduring joy for life.  She was a graceful and talented award-winning actress, producer, author, media executive, and advocate for diabetes research.  Her husband, Dr. Robert Levine, shares information about the Mary Tyler Moore Vision Initiative that was created in her honor along with some personal moments they shared.

https://www.marytylermoore.org

https://www.breakthrought1d.org

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Debra shares her vision for The Blind Kitchen after learning about RP at the age of 28 as a single mother of two small children.

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Website: The Blind Kitchen

YouTube: @theblindkitchen

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Veteran, Steve Baskis, shares his experience turning his focus to outdoor adventures after losing his vision while serving in the military.  He shares techniques for sailing, biathlon (skiing and shooting), climbing, and how to prepare for an adventure through gathering a good team.

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www.stevebaskis.com

www.blindendeavors.org

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Qusay Salih Hussein Al-Mamari shares his memoir and story of becoming a refugee from Iraq to the USA after a suicide bomber took his vision and changed the course of his life as a teenager while playing a volleyball match in a stadium with his brothers.

Despite incredible challenges and physical trauma that resulted in more than 70 reconstructive surgeries, Qusay shares his story with unforgettable positivity, strength, humor, and courage. He makes life in Iraq and the United States come alive for us and we see new things through his eyes.

You will never forget this incredible testament to human resilience and determination.

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https://www.qusayhussein.org/

Amazon: Can You Open My Eyes

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Jeanne shares her story of healing her trauma through truth as we discuss her memoir Good Eye, Bad Eye. She has lived her life as a monocular since the age of two, and has worked as a journalist and psychotherapist.  Her insights into her personal healing journey are valuable for anyone.

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Wayne Tuttle "The Blind Guy" and Titanic historian, shares his experience adjusting to RP, reclaiming his enjoyment for scuba diving, and the difficult decision to stop driving while continuing to love his hobby of snowmobiling.

www.thatblindguy.ca

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Introducing MJ Jefferson, Exectutive Producer and Creative Director of Stories of Vision Loss podcast.

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