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In 2015, I was just starting out. Fresh out of the long winding painful chute of diagnosis with our T-Bird. What a difference 1460 days make.
Austria. The land of the Von Trapps. The composers Schubert and Liszt. And the chef Wolfgang Puck. And also a guy whose work you might have seen, if you've ever gone to a rave in Vienna.
Janet Mills. She's the governor of our fine state of Maine. And I want to meet with her ASAP to talk about Tess.
Keep your eyes peeled, my dad used to always say in the car when we were driving around, on the hunt for our destination. And I find these days, I'm still doing that.
Working on a new skill with Tess. One that you and I and almost everyone does several times a day.
Wacky music and clips of a possibly over-sugared kid. These just might be the key to getting Tess's attention.
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Hey! Please reach out to a friend and share the six essential episodes about Tess. They’re here: http://www.portlandrootsmedia.com/stronger-every-day-blog/2018/11/15/catch-up-with-tess
Want to hear more about Tess’s adventures with Gemiini? Listen to episode 221, “Jackpot,” which is available here, for zero dollars: http://www.portlandrootsmedia.com/strongerpodcast/2019/4/10/221-jackpot
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…