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Picture it. You're at the dentist. The dentist says things like open wide. And you open your mouth. Except. If you don't understand simple commands like that. Then, it's a whole different ballgame.
We spent a full morning of walking around in the pouring rain with Tess. Something we do annually, each spring.
I was lucky enough to have some uninterrupted time with Tess recently. She showed me one of her favorite places.
A lunch table on a lazy Saturday. A plate of food. The occasional clink of a fork as we feed Miss Tess. And then, jackpot.
We've had a rough couple of days for our girl. Simply put, Tess is not her usual happy self.
A bird falls from the sky. We try to solve a mystery about Tess. And we use a tool made by a mom, hoping for a day when those mysteries are behind us.
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…