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Abundant sunshine, a long overdue task, and a chance meeting that makes me feel better about some heavy stuff.
Holidays aren't always Tess's favorite. After all, they interrupt something that is her favorite: the routine of going to school. But this year on the 4th, Tess had a blast.
Summertime for Tess. Our girl has been a busy bee, to say the least.
Help Nick’s family get answers about Cameron by clicking and sharing. #HelpCameron https://cameronsmystery.com/
Tess stood up in front of her class and got an award last week. It was amazing to see, but my favorite part was what happened just after that.
Did you know that we recently found our 50th USP7 patient? We did. Hooray! Remember, Tess was the 8th known patient in 2015. One of the ways we find more is through your help, Tess Army. You've been with us on this journey, and we feel it. We feel your love every time you share this podcast with someone. So keep it up. Keep sharing and help us get our next 50 USP7 patients. You guys are awesome.
Hope Solo. Dennis Eckersley. Dominik Hasek. All of these people have made great saves. But they got nothing on my wife.
Hey, if you're new to the podcast, you know what would really help me? Give me a quick review and rating on iTunes. It really helps people find my show and gets the story of Tess out there to more folks. Thanks!
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How do you explain Tess to someone who doesn't know her but needs to get to know her? What details would you include?
Quick one for ya this week. Update on some super-dope studies happening with USP7.
It's like a Samuel Beckett play. A tiny room. People waiting. Including Tess. Have they always been in this room? Will they have to wait for all eternity, because they wait for something that will never take place?
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…