Stronger Every Day

This week, I want to tell you about how I'm using AI to help with our foundation's work in our quest for a cure or treatment for Hao-Fountain syndrome.

This week, we're delighted as Tess expands her video library into uncharted territory.

This week, we're launching a new initiative that's going to make our Hao-Fountain crew a million times stronger.

This week, it's an earth metal, a chemical element, a thing you can use when making fireworks. And hey, maybe we should drink it.

This week, the three letters that have often invoked dread in many a parent are instead making me feel positively gleeful about our girl.

This week, we're working hard to manage some new factors in Tess's life.

This week, we know what we need in order to get to a cure or treatment for Hao-Fountain syndrome. And you can help.

Get started with Matrix:  https://usp7x.acrossmatrix.com/en-US/#/user-request

This week, a couple fun updates about Tess's re-entry after her seizure.

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 5 of 5.

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 4 of 5.