Today we're gonna talk about Miss Tess's recent visit to the dentist.

Many thanks to the New York Times for writing about dental patients with disabilities back in 2019, and NYU's new facility designed to help them:  "Saving the Teeth of Patients with Special Needs," by Catherine St. Louis, 5/2/2019.  

Today we're talking a bit more about basketball and what it means to Tess.

Today we're gonna talk more about the podcast The Telepathy Tapes and how it applies to our Tess.

More patients found! Not one but TWO groundbreaking scientific projects underway! And a new paper that could contain the key to our cure—something that might even be in your medicine cabinet. Today I'll be giving you an update on some of the thrilling developments of our foundation in our quest for a cure for Tess and the other patients.

Today I'll be telling you more about Tess playing basketball, and a new development for her on the court.

Today I'm talking about the ability to read minds. And how it might affect our relationship with Tess.

 I've been listening to The Telepathy Tapes, a podcast by Ky Dickens about how certain nonspeaking people with autism have displayed the ability to read minds. 

Today we're talking about an irksome behavior of Tess's, something that's happening more and more frequently, and what it could mean.

SED 527: Why I'm Changing the Show Back

Last summer, I made a big change to this show. Now, I’m changing it back. In this episode, I share why—and how a recent ski day with Tess, in zero-degree weather, reminded me of something important. Tune in to hear the full story.

Stronger Every Season: A Caregiver’s Mindset Shift

What if the way you think about aging is making caregiving even harder?

If you're a caregiver, you know the toll it can take on your body—aching muscles, exhaustion, and the creeping fear that one day you just won’t be able to do it anymore. But what if there’s a different way to look at it? A mindset shift that keeps you strong, capable, and even optimistic?

Discover how changing your perspective on physical decline can make a huge difference in caregiving.

Learn how building a personal ‘support team’ can keep you strong and resilient.

Get inspired by a powerful reframe that turns dread into determination.

Hit play now to hear a short but game-changing episode about staying strong, shifting your mindset, and bringing the heat—season after season.

Max Flex: The Rare-Disease Parent’s Superpower for Navigating Uncertainty

How do you keep going when rare-disease parenting constantly upends your plans?

If you're raising a child with a rare disease, you know that unpredictability is the norm—canceled plans, last-minute doctor visits, and constant pivots can feel exhausting. In this episode, we explore why these disruptions hit so hard and how a simple mindset shift can help you regain a sense of control.

Understand why rare-disease parenting makes traditional planning so difficult—and what to do about it.

Learn a new way to approach daily schedules that reduces frustration and stress.

Discover how embracing "Max Flex" can help you feel more confident and prepared, no matter what comes your way.

Listen now to learn how rare-disease parents can build a mindset that turns constant disruptions into opportunities for strength and adaptability.