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This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 3 of 5.
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.
This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.
This week, we're away on a ski vacation as a family. Let's check in with Tess.
This week, someone in our house is considerably under the weather.
This week, got a few fun stories for ya. Vignettes, if you will.
This week, a nifty tech device gets strapped to Tess's wrist.
This week, an emerging artist in Maine works with multiple media and begins an exhibition at a local gallery.
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…