If you're trying to cure a rare disease, there are two tools that you can't live without.

It's a common problem in our house. A certain young lady who gets cuts from time to time. And who hates Band-Aids more than anything.

I want to tell you a story this week of someone who grew up here in Maine. I've gotten to know him over the past few months, and he recently raised his hand, boldly stepped forward, and made a massive difference for Tess and our foundation.  

To quote Princess Leia, the more you tighten your grip, the more star systems will slip through your fingers.

More stories from near the equator. Part 2 of 2 about our recent trip with Tess to Costa Rica. 

It's time. It's time to take Tess out of the United States and into another country.

A huge thank you to Luis and Robert from The Springs Resort in Arenal.

We have a saying in our house. We talk about "the age of independence". And yes, there are some eyerolls from our kids, but we push them to do stuff for themselves.

A rare event. A solar eclipse in the United States. Where was Tess on that day, and what was she doing?

You're busy. Sometimes you think about how busy you were a year ago and think wistfully--man, that wasn't busy at all compared to now! But in spite of this busyness, there's something that's required from all Hao-Fountain patients. 

If you need to donate to our biorepository because you haven't yet, email me here: bo [dot] bigelow [at] gmail.com. 

Buzzy - personal vibrating ice pack for easier shots for kids. Order on Amazon here. 

I always tell you I got more questions than answers. But this week, I've come up with an answer. And it's helping me every single day.