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Stronger Every Day
By Bo BigelowKids & Family
Stronger Every Day episodes
- 9 min
- SED 564: Sixteen
This week, this very day in fact, Tess is celebrating a special birthday. This is sixteen.
9 min - SED 563: Tess the Freshman
This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.
9 min - SED 562: The Big Four
There are four little things you can do as a Hao-Fountain patient to move things forward in a huge way. I'm gonna tell you how these four went for Tess and why it matters.
12 min - SED 561: We Interrupt this Party to Bring You A Special Bulletin
Tess wanted something recently, and she used all her abilities to let me know what it was.
10 min - 7 min
- SED 559: Nashville Part 2 of 2
It's that time of year, and we just held our annual Hao-Fountain conference.
Hao-Fountain patients and families: please SIGN UP for our October 2nd Zoom about MATRIX, where we can help you sign up for Matrix and answer your questions. Sign up here: https://usp7.salsalabs.org/MatrixSignupandQA
17 min - SED 558: Nashville Part 1 of 2
It's that time of year, and we just held our annual Hao-Fountain conference.
9 min - 7 min
- SED 556: Tess in the ER and ICU - Part 2 of 2
Recently Tess had a seizure and went to the ER, so I want to tell you more about it.
14 min
About Stronger Every Day
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…
#HaoFountainSyndrome #autism