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Empowering Women with Lipedema: Susan O'Hara's Journey and AdvocacyIn this episode of Stronger Than Lipedema, hosts Cindy and Kristy welcome Susan O'Hara, a dedicated advocate for women with lipedema.
Susan shares her personal journey from diagnosis following a traumatic childbirth to becoming a leading voice in the community.
She discusses her efforts in founding the American Lipedema Association, spreading awareness, and offering real-life solutions through her website 'Legs like Mine,' social media, and her books.
The conversation also touches on the importance of optimizing health before surgery, the role of diet and lifestyle in managing the condition, and the broader advocacy work required to secure an ICD code for lipedema.
This heartfelt discussion is packed with insights and encouragement for anyone navigating life with lipedema.00:00 Introduction to Stronger Than Lipedema01:00 Meet Susan O'Hara: Advocate and Author02:46 Susan's Lipedema Journey: Diagnosis and Early Struggles06:16 Discovering the Lipedema Community11:34 The Importance of Pre-Surgery Preparation20:22 Balancing Life with Lipedema30:25 The Impact of GLP-1 on Food Perception31:04 Advocacy and the American Lipedema Association32:14 The Importance of Sharing Stories34:15 Challenges in Diagnosing Lipedema37:10 The Fight for Insurance Coverage50:53 Advice for Lipedema Patients54:23 Final Thoughts and Encouragement
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/legs_likemine/https://legslikemine.com/?utm_source=ig&utm_medium=social&utm_content=link_in_bio&fbclid=PAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGnwmICjWZXfI0LFCDaWipze3UDxZavt3SokoGWMcmS0eHZvHzPy_WdYvLdA6E_aem_iSQ9aQ16TiDg_GhMmcLZeQ
https://l.instagram.com/?u=https%3A%2F%2Fm.youtube.com%2Fc%2Flegslikemine%3Ffbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGn284vlAQSflBZQOsviODuBzdLF3pGhl2bLS3ImFIxQoln_QfLaGlb-Iub-wA_aem_1JxtHKJ8Hrqb87wxjDSWWw&e=AT3EzjrUlXy2nMw2-I2Veb6egqwaZZD-74SlgafRJS3VdNCsXHGRqIifTJbrDaInpbxJ49b2Bsc9kKhlgmazJbNXrWRYSineVObUl5nzUA
https://www.facebook.com/103837708256401?ref=_xav_ig_profile_page_web
In this episode of Stronger Than Lipedema, hosts Cindy and Kristy welcome Leah, a photographer, aunt, and community health coach from Arizona, who shares her powerful journey of losing over 200 pounds and managing lipedema.
Leah talks candidly about her motivations, the challenges she faced, and the surgeries she underwent, including loose skin removal and targeted lipedema surgery.
She emphasizes the importance of discipline over motivation, the significance of mindfulness in dietary choices, and how she stays accountable in her health journey.
Leah also offers invaluable advice to listeners on embracing a balanced lifestyle and committing to daily habits for long-term health.
The episode wraps up with an invitation for community support and future meetups in Arizona.00:00 Welcome and Introduction01:02 Meet Leah: A Journey of Transformation02:38 Discovering Lipedema06:02 Weight Loss Journey and Realizations09:09 Living with Lipedema: Symptoms and Challenges13:21 Hypermobility and Body Awareness16:58 Surgery Decisions and Experiences19:47 Post-Surgery Reflections and Insurance Struggles28:46 Finding Emotional Support in Healthcare29:16 Staying Motivated Through Weight Loss31:44 The Importance of Discipline Over Motivation34:05 Balancing Healthy Choices and Indulgence36:54 Mindfulness in Eating Habits44:49 The Journey of Post-Surgery Recovery50:23 Maintaining a Healthy Lifestyle53:47 Accountability Coaching and Community Support58:26 Final Thoughts and Future Plans
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/leahhopehealth/
https://leahhopehealth.com/
In this episode of Stronger Than Lipedema, hosts Cindy and Kristy delve into the world of lipedema, bringing expert insights and motivational stories.
They are joined by Sylvie from Lipo-Elastic who shares her personal journey from discovering her lipedema diagnosis to becoming an ambassador for the Lipedema Heroes project.
Discussing the challenges of managing lipedema, the episode sheds light on global differences in recognition and treatment, and highlights the importance of community support.
Key takeaways include the significance of engaging with others facing similar challenges and the innovative initiatives like the Lipedema Heroes project that provide a safe space for women to share and learn.
The episode concludes with encouraging advice for listeners to connect and advocate for themselves, emphasizing that they are not alone in their journey.00:00 Introduction to Stronger Than Lipedema00:48 Meet Sylvie: From Marketing Manager to Lipedema Ambassador01:57 Sylvie's Personal Lipedema Journey02:48 Managing Lipedema: Community and Support05:16 Challenges and Misconceptions About Lipedema13:46 Global Lipedema Heroes Project17:32 Sylvie's Lipedema Surgeries and Recovery22:02 Post-Surgery Sleeping Challenges22:27 Compression Garments and Binders24:09 Finding the Right Garment24:43 Lipo-Elastic Garments25:59 Dealing with Swelling and Sizing Issues29:51 Lipo-Elastic's Global Reach and Quality32:56 Misconceptions and Challenges of Lipedema39:06 Community Support and Advice40:34 Conclusion and Final Thoughts
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
LIPOELASTIC IG Pages:https://www.instagram.com/lipoelastic/https://www.instagram.com/lipoelastic_usa/
Lipedema Heroes IG Page and Facebook group:https://www.instagram.com/lipedemaheroes/https://www.facebook.com/groups/477270371075003/
Empowering Journey: Overcoming Lipedema and Embracing Health with Jenn
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy welcome Jennifer, who shares her profound journey of getting diagnosed with lipedema, battling cancer, and undergoing multiple surgeries.
Jenn opens up about her initial discovery of her condition through social media, the steps she took towards diagnosis, and her decision-making process regarding surgery. She emphasizes the importance of physical fitness, meal planning, and having a robust support network.
Jenn also discusses the mental challenges and the ongoing work required to manage lipedema. Her inspiring story highlights resilience, hope, and the significance of community support.00:00 Introduction to Stronger Than Lipedema00:56 Jenn's Lipedema Journey Begins02:12 Discovering Lipedema Through Social Media03:35 The Emotional Impact of Lipedema05:15 Seeking Diagnosis and Facing Fears08:09 Navigating the Healthcare System09:32 Surgery Decisions and Support System12:34 Surgery Experiences and Reflections26:55 Unexpected Challenges of Surgery29:01 The Third Surgery and Recovery29:54 The Fourth Surgery and Final Results32:40 Support System During Recovery36:01 Mental Strength and Coping Mechanisms38:10 Advice for Surgery Preparation40:09 Weight Loss Journey and Lipedema44:20 The Role of GLP-1 in Weight Loss50:04 Sharing the Journey Online53:34 Final Thoughts and Encouragement
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema!
Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Follow Jenn at: https://www.tiktok.com/@inpursuitofjenn?is_from_webapp=1&sender_device=pc
IG: https://www.instagram.com/inpursuitofjenn/
Stronger Than Lipedema: Friendsgiving Special & Sound Healing SessionIn this special episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy invite listeners to their Friendsgiving gathering, featuring heartfelt messages of gratitude and goals for the upcoming year from members of their Arizona group.
The episode also includes a soothing sound healing session led by Kristy, designed to provide relaxation and reflection. This episode emphasizes the importance of community, support, and personal growth in managing lipedema.
Join us for an uplifting and inspirational experience as we share thankfulness and aspirations for the future.00:00 Welcome and Introduction01:00 A Message from Cindy and Kristy02:00 Friendsgiving Reflections and Gratitude05:20 Community Support and Goals08:00 Personal Stories and Experiences23:09 Sound Healing Session37:37 Closing Remarks and Farewell
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Overcoming Trauma and Empowering Women with LipedemaIn this episode of Stronger Than Lipedema, hosts Cindy and Kristy welcome Miriam, a trauma and grief expert with a personal story of overcoming trauma. They dive deep into the impacts of lipedema, discussing the importance of regulating the nervous system, managing PTSD, and connecting with oneself for true healing. The episode offers valuable insights on breath work, the polyvagal theory, and the stages of grief, while emphasizing the necessity of finding the right support system and professional guidance. Miriam shares her journey, practical advice, and emphasizes hope and empowerment for women living with lipedema.00:00 Introduction to Stronger Than Lipedema00:55 Meet Miriam: A Journey Through Grief and Trauma01:23 Miriam's Background and Personal Struggles02:50 Understanding Trauma and PTSD07:50 The Role of Inflammation in Trauma11:21 Connecting with Your Body for Healing15:32 The Impact of Lipedema on Mental Health18:31 Parenting the Self: Reconnecting with Your Inner Self27:44 Navigating the Stages of Grief28:22 Ego and Identity Challenges28:36 Personal Journey and Postpartum Realization29:44 Grieving and Stripping Egos30:12 The Healing Process and Client Experiences32:12 The Importance of Support Systems34:38 Techniques for Self-Healing34:59 Breath Work and Priming Safety41:43 Finding the Right Therapist48:40 Final Thoughts and Encouragement
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Miriam email: [email protected]
Empowering Women with Lipedema: A Deep Dive into Lymphatic HealthIn this episode of 'Stronger Than Lipedema', hosts Cindy and Kristy engage in an empowering conversation with Claire, a certified lymphatic drainage therapist.
Claire shares her journey into massage therapy and her expertise in the lymphatic system, highlighting the benefits of manual lymphatic drainage (MLD) for women with lipedema and beyond.
The discussion covers the importance of proper training, the misconceptions surrounding lymphatic treatments, and the challenges and rewards of running a private practice.
Claire also offers insights into the role of insurance in lymphatic care and advice for both practitioners and individuals navigating their health journeys.
Tune in for expert advice, personal stories, and strategies to manage lipedema with confidence.00:00 Introduction to Stronger Than Lipedema00:55 Meet Claire: A Journey into Massage Therapy02:50 Discovering the Lymphatic System06:22 The Importance of Lymphatic Drainage09:45 Challenges and Misconceptions in Lymphatic Therapy18:21 Claire's Professional Journey and Teaching Experience21:23 Introduction to Morgan and Webinar Challenges22:06 Differences Between Lipedema and Wellness Clients23:18 Starting a Business in Massage Therapy25:14 Mobile Services and Client Relationships25:56 Insurance and Wellness Services32:33 Empowering Lipedema Clients37:32 Resources and Final Thoughts
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/clairehofstettereid/https://www.instagram.com/apexbodyworx/
Empowering Journeys: A Journey with Jennifer GoretzkiIn this episode of 'Stronger Than Lipedema, hosts Cindy and Kristy welcome Jennifer, an occupational therapist with extensive experience in lymphedema and lipedema treatment.
Jennifer shares her journey into the field, insights on the conditions, and emphasizes the importance of consistent self-care.
The conversation covers the differences between lipedema and lymphedema, common misconceptions, and introduces Jennifer's tool, Track My Lymph, designed to help patients manage their condition effectively.
The episode underscores the value of education, advocacy, and the evolving landscape of treatment options.00:00 Introduction to Stronger Than Lipedema00:55 Meet Jennifer: An Occupational Therapist's Journey05:31 Understanding Lymphedema and Lipedema14:43 Creating a Self-Care Tool for Patients20:57 Key Self-Care Routines and Habits22:27 The Importance of Consistency in Therapy23:43 The Role of Compression in Managing Symptoms25:02 Travel Tips for Managing Lymphedema28:16 Knowledge and Advocacy in Lymphedema Care29:47 Future Innovations in Lymphedema Treatment34:38 Hereditary Factors and Early Detection38:17 Resources and Community Support40:22 Conclusion and Final Thoughts
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Jennifer Goretzki: Trackmylymph
trackmylymph.comhttps://www.instagram.com/trackmylymph?igsh=YzdoZTY2NXZmMnRw
Link for trackmylymph journal on amazon: https://a.co/d/72Ldi4b
Lauren Patterson’s Journey with Lipedema and Autoimmune DiscoveryIn this episode of Stronger Than Lipedema, hosts Cindy and Kristy welcome Lauren Patterson to discuss her experiences with lipedema and the discovery of her autoimmune conditions.
Lauren provides a comprehensive account of her journey, detailing the initial detection of symptoms, multiple surgeries, complications, and eventual diagnosis of aseptic abscess syndrome.
Despite the challenges and setbacks, Lauren's story is one of resilience and advocacy, underscoring the importance of self-advocacy and medical support in managing lipedema.
This episode also highlights the emotional and physical impact of the condition and the transformative potential of surgery, despite the inherent risks.00:00 Welcome to Stronger Than Lipedema00:57 Lauren Patterson's Lipedema Journey Begins01:39 Diagnosis and Initial Reactions03:25 Exploring Treatment Options04:34 The Rollercoaster of Lipedema Surgery12:53 Facing Post-Surgery Complications18:41 The Emotional and Physical Toll24:32 Deciding to Try Again34:42 Post-Surgery Inflammation and Autoimmune Symptoms36:45 Navigating Multiple Surgeries and Complications41:03 Third Surgery and Insurance Challenges44:19 Discovering Aseptic Abscess Syndrome48:43 Steroid Treatment and Recovery59:13 Sharing Personal Stories and Advocacy01:09:13 Conclusion and Final Thoughts
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
In this episode of 'Stronger Than Lipedema', hosts Cindy and Kristy explore the transformative potential of breathwork with Cheryl Bailey, a wellness practitioner specializing in sound healing and breathwork.
Cheryl shares her journey and profound experiences with breathwork, including how it helped her overcome personal trauma. She explains the significance of breathwork in regulating the nervous system, releasing stored trauma, and achieving emotional and physical healing.
The conversation delves into the applicability of breathwork for women with lipedema, highlighting its benefits in alleviating guilt, shame, and stored emotional burdens.
Cheryl also discusses the logistics of breathwork sessions and offers guidance on getting started with this powerful healing modality.
This episode is a deep dive into how harnessing the power of breath can be a game-changer for managing lipedema and overall well-being.
00:00 Introduction to Stronger Than Lipedema
00:55 Meet Cheryl Bailey: Sound Healing and Breathwork Expert
02:32 Discovering Breathwork: Cheryl's Journey
05:40 The Profound Impact of Breathwork
11:49 Breathwork Techniques and Benefits
17:07 Breathwork in Practice: Transformative Experiences
21:11 Navigating Modern Stress with Breathwork
23:06 Introduction to Online Breathwork Sessions
23:46 Guided Breathwork Process
24:16 Breathwork Techniques and Challenges
24:58 Climax and Release in Breathwork
25:31 Post-Session Experience and Contraindications
27:28 Choosing Between Group and Personal Sessions
29:19 Combining Breathwork with Coaching
29:56 Breathwork's Benefits for the Lipedema Community
31:36 Breathwork for Trauma and Healing
34:42 Breathwork for Different Age Groups
37:40 Organizing Community Breathwork Sessions
41:48 Connecting with the Practitioner
43:08 Conclusion and Final Thoughts
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Sunrise Healing, LLC Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/cmcbride12/https://www.facebook.com/cheryl.t.mcbride
Cheryl's Website:https://www.gritandgracemeditation.com/
https://linktr.ee/CherylBailey?utm_source=linktree_profile_share
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