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In this episode of Stronger Than Lipedema, hosts Cindy engages in a heartfelt conversation with Lisa from Canada, who shares her personal journey coping with lipedema.
Lisa discusses her diagnosis, the initial struggles with identifying the condition, and her experiences with multiple surgeries in Germany.
She emphasizes the importance of taking pictures to track progress, sharing stories for community support, and trusting the process during treatment.
Lisa's journey underscores the ongoing battle against lipedema and highlights the significance of support networks and informed choices in managing the condition.00:00 Introduction to Stronger Than Lipedema00:54 Lisa's Personal Journey with Lipedema03:23 Struggles and Misdiagnosis07:14 The Turning Point: Diagnosis and Realization09:04 Navigating the Healthcare System15:04 Exploring Conservative Measures18:17 Choosing the Right Surgeon21:21 Surgery Experience and Reflections27:54 Post-Surgery Challenges and Recovery29:25 Support Systems During Recovery30:00 Experiences with Post-Op Care31:07 Traveling for Surgery and Recovery35:30 Surgery Outcomes and Reflections45:25 Sharing Personal Stories and Community Support51:38 Advice and Encouragement for Others55:54 Conclusion and Future Plans
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Follow Lisa on IG: https://www.instagram.com/lisa_lipedema_journey/
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy welcome their guest Megan Meyer to discuss her journey with lipedema.
Diagnosed only recently in 2024, Megan shares her personal challenges and triumphs in seeking a diagnosis, dealing with various comorbidities, and navigating the healthcare system.
Kristy and Megan talk about the importance of self-advocacy, emotional support from family, and useful resources like online communities and weight management providers.
Megan also touches on her weight loss experiences, lifestyle adjustments, and plans for future surgeries.
This heartfelt conversation aims to empower listeners by highlighting the collective struggles and victories of those living with lipedema.00:00 Introduction to Stronger Than Lipedema01:11 Meet Megan: A Journey of Self-Discovery02:13 The Diagnosis Journey03:48 Connecting the Dots: EDS, Lipedema, and More06:48 Family Matters: Discussing Lipedema with Loved Ones12:04 Weight Loss and Lipedema Management18:28 Support Systems and Finding Community20:23 Navigating Healthcare and Advocacy24:12 Navigating Insurance for Lipedema Treatment24:24 Preparing for Surgery: Steps and Challenges25:36 Consultations and Insurance Limitations27:11 Exploring Treatment Options and Vendors33:26 The Importance of Advocacy and Support39:17 Final Thoughts and Encouragement
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website:
Follow us on Social media!!!
Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Megan Meyers:https://www.instagram.com/navigating_lipedema/
Megan's weight management provider that she mentioned that diagnosed her is:University of Iowa Health Care Weight Management Clinic (part of Endocrinology & Diabetes clinic)Katharine Reustow, ARNP, DNP
In this episode of 'Stronger Than Lipedema,' hosts Cindy sits down with Dr. Laura Haydon, a seasoned physical therapist specializing in lymphatic disorders, to delve into the intricacies of managing lipedema.
Dr. Haydon shares her personal journey with lipedema, the importance of proper diagnosis, and the role of conservative therapies like compression and manual lymphatic drainage. She also discusses the challenges patients face in navigating treatment options and the critical need for a comprehensive approach to managing the condition.
Whether you're newly diagnosed or have been living with lipedema for years, this episode offers valuable insights and practical advice to help you on your journey towards better health and well-being.
00:00 Introduction to Stronger Than Lipedema
01:10 Meet Dr. Laura Hayden
01:52 Dr. Hayden's Journey with Lipedema
03:22 Challenges in Diagnosing Lipedema
13:36 The Role of Compression in Lipedema Management
24:01 Exploring Compression Options
25:04 Personal Experiences with Compression
25:51 Lifestyle Factors and Lipedema
26:53 Challenges of Inactivity
27:40 Travel and Swelling Issues
29:22 Conservative Measures and Tools
36:52 Surgery Considerations for Lipedema
41:22 Advice for Those Suspecting Lipedema
43:32 Conclusion and Final Thoughts
Dr. Laura Haydon's:
https://www.instagram.com/haladayphysicaltherapy/
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy welcome Adrien Mackenzie, a certified lymphedema therapist and clinical advisor for Airos Medical.
The discussion covers a range of topics including the evolution and requirements of pneumatic compression devices, challenges in securing insurance coverage, the need for proper diagnosis, and the importance of comprehensive self-care and community support for those managing lipedema.
Adie shares her journey, valuable insights on treatment options, and highlights the importance of advocacy and staying informed about the latest medical advancements.
Join them for an informative conversation aimed at empowering women with lipedema.00:00 Welcome to Stronger Than Lipedema01:12 Meet Addie Mackenzie: Certified Lymphedema Therapist02:55 Role and Responsibilities of a Clinical Advisor03:46 Understanding Aeros Medical's Products10:05 Challenges with Insurance and Lipedema12:58 The Importance of Preventative Healthcare18:51 Innovations and Future Directions at Aeros Medical31:16 Discussing Diagnosis and Awareness32:32 Challenges of Social Media and Body Image33:34 Portable Compression Devices34:50 Traveling with Compression Devices35:22 FDA Approved vs Non-Approved Devices36:18 Benefits of Compression Therapy46:11 Challenges in Diagnosing Lipedema51:50 Virtual Consultations for Lipedema58:06 Insurance and Psychosocial Factors01:00:09 Conclusion and Final Thoughts
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Adrien MacKenzie: [email protected]
In this episode of 'Stronger Than Lipedema,' Co-host and Kristy and the owner of Lipedema Chats FB group Brandi Graves are joined by Dr. Gruber, a renowned plastic surgeon specializing in awake liposuction and skin surgeries for lipedema patients.
Dr. Gruber discusses her journey into this niche specialty, her unique techniques, and the benefits of awake surgeries.
The episode also covers the logistical aspects for patients traveling for surgery, the detailed plans Dr. Gruber offers, and the importance of personalized care.
Listeners will gain invaluable insights into managing lipedema and the latest advancements in surgical treatments.00:00 Welcome and Introduction01:40 Meet the Hosts and Guest02:52 Dr. Gruber's Journey into Lipedema Surgery05:46 Surgical Techniques and Patient Care15:16 The Gruber Booty and Other Procedures17:43 Travel and Post-Op Care21:44 Closing Remarks and New Facility Announcement24:55 Final Thoughts and Farewell
Navigating Lipedema with Dr. Lakovos Georgiou: Insights and SolutionsIn this episode of Stronger Than Lipedema, Co-host Kristy and guest Brandi, admin of Lipedema chats FB, welcome Dr. Lakovos Georgiou, a renowned plastic surgeon specializing in lipedema reduction surgery.
Dr. G shares his journey into this specialty, his credentials, and the techniques he utilizes, including power-assisted liposuction and Vaser ultrasound.
The discussion covers essential topics such as the importance of conservative treatments, diet recommendations, handling comorbidities, and the logistics involved in international travel for surgery.
Dr. G explains how he ensures individualized patient care and successful recovery, making it clear that effective lipedema management is achievable.
The episode concludes with practical advice for prospective patients and highlights the importance of patient empowerment through knowledge and support
00:00 Introduction to Stronger Than Lipedema
01:40 Meet the Hosts and Special Guest
02:34 Dr. G's Journey into Lipedema
03:45 Credentials and Experience
05:46 Patient Consultation and Treatment Approach
08:09 Diet and Lipedema09:58 Surgical Techniques and Skin Tightening
14:29 Areas of Treatment and Surgery Breakdown
18:08 Post-Surgery Care and Patient Support
21:53 Travel and Logistics for International Patients
23:47 Preventing Blood Clots During Travel
26:40 Patient Support and Teamwork
31:28 Pricing and Final Thoughts
36:31 Conclusion and Farewell
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Empowering Women with Lipedema: Kristin Richard's Journey
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy, both advocates and women living with lipedema, speak with Kristin Richards, a certified menopause coach and health and wellness expert.
Kristin shares her emotional journey from discovering she had lipedema at 48 to undergoing surgery and finding support within the community.
She emphasizes the importance of self-advocacy, research, and finding trustworthy medical professionals.
Kristin also discusses how she supports other women through personalized health coaching, addressing both physical and emotional aspects of living with lipedema.
This episode is filled with valuable insights, personal stories, and hope for those navigating life with lipedema.
00:00 Introduction to Stronger Than Lipedema
00:44 Kristen Richards' Lipedema Journey
03:09 Challenges in Finding a Specialist
05:42 Emotional Impact of Diagnosis07:10
Exploring Treatment Options
07:19 Starting Conservative Therapies
08:02 Surgical Decisions and Financial Considerations
10:42 Insurance Approval and Emotional Relief
17:28 Sharing the Journey and Building Community
24:06 Advocacy and Support for Lipedema
39:28 Introduction to Lipedema Journey
39:47 Early Signs and Diagnosis
41:36 Finding a Specialist
43:45 Emotional Impact of Diagnosis
45:32 Conservative Therapies and Lifestyle Changes
46:18 Surgical Options and Decisions
49:16 Insurance Approval and Emotional Relief
55:19 Supporting the Lipedema Community
01:02:26 Advocacy and Self-Care
01:12:14 Final Thoughts and Encouragement
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, PHC, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
In this episode of 'Stronger Than Lipedema,' Co-host Kristy and the owner of Lipedema Chats FB Group Brandi Graves dive deep into the world of lipedema with special guest Dr. Jorkani, a plastic surgeon and lipedema specialist.
They discuss Dr. Jorjani's journey into the field, his techniques for liposuction, and his honest, patient-focused approach.
Dr. Jorjani's also shares insights on choosing the right surgeon, the importance of individualized care, and the challenges of treating lipedema both technically and psychologically.
Practical advice is also given on preparing for surgery and postoperative care.
This episode aims to provide valuable knowledge and support for women navigating lipedema and looking for real-life solutions.
00:00 Introduction to Stronger Than Lipedema
01:31 Meet the Hosts and Special Guest
02:15 Dr. Gii's Journey into Lipedema Surgery
04:06 Challenges and Rewards of Lipedema Surgery
06:31 Patient Experiences and Psychological Impact
12:14 Technical Aspects of Lipedema Surgery
14:19 Choosing the Right Surgeon
23:37 Body Dysmorphia and Post-Surgery Realities
25:25 Music Preferences in the Operating Room
27:08 Surgical Techniques and Tools
38:21 Challenges in Liposuction for Lipedema
39:16 The Importance of Comprehensive Treatment
39:40 Surgeons' Workload and Patient Care
40:21 Aesthetic Considerations in Surgery
41:00 Patient Experiences and Concerns
41:17 Combining Surgeries: Exceptions and Rules
41:45 The Reality of Surgical Outcomes
42:24 Financial and Ethical Issues in Lipedema Treatment
43:15 Scientific Evidence and Misconceptions
44:55 The Role of Plastic Surgeons vs. Other Specialists
48:00 The Importance of Sterile Environments in Surgery
52:08 Post-Surgery Care and Recommendations
54:29 International Surgical Practices and Training
59:09 Choosing the Right Surgeon
01:04:17 Final Thoughts and Advice
01:08:56 Conclusion and Farewell
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, PHC, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
In this episode of Stronger Than Lipedema, host Cindy, while co-host Kristy is on vacation, delves deeply into the critical topic of getting diagnosed with lipedema.
Cindy discusses the challenges of diagnosis, common symptoms, and the importance of finding a knowledgeable healthcare provider.
She shares her personal journey, offers practical advice on advocacy, and highlights essential steps for a successful diagnosis.
Cindy also explains various treatment options, from compression therapy to potential surgical interventions.
Throughout the episode, she emphasizes the importance of support groups and community resources for women navigating lipedema.
00:00 Introduction to Stronger Than Lipedema00:55 Today's Topic: Getting Diagnosed with Lipedema01:55 Understanding Lipedema and Misdiagnosis06:03 Recognizing the Signs and Symptoms of Lipedema10:19 Finding the Right Healthcare Provider14:14 Preparing for Your Appointment18:02 Post-Diagnosis: Treatment Options22:47 Conclusion and Support Resources
Follow us on Social media!!!
Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG:https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
In this episode, a seasoned nurse practitioner with 46 years in the medical field shares her personal and professional journey through breast cancer and the evolution of cancer detection.
She discusses the Dutch test and its significance in shifting from early detection to early prevention, addressing the impact of estrogen metabolites on health.
The episode highlights the importance of hormonal balance, metabolite monitoring, and the benefits of a mindset of gratitude, offering a comprehensive view on proactive health management and disease prevention.
00:00 Introduction and Background00:26 Early Detection vs. Early Prevention
01:00 Understanding Hormonal Pathways01:32 The Role of Insulin and Stress
01:51 Inflammation and Cancer Risk
02:25 Estrogen Dominance and Its Effects
03:16 Importance of Metabolites in Lipidema
03:58 The Power of Gratitude and Partnership
04:42 Diet and Testing Strategies
05:04 Benefits of Estrogen
05:30 Conclusion and Call to ActionCarla Whorton NP
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Kristy's Contact information:
Stan store: stan.store/Sunrisehealingaz
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Carla Whorton NP Phone# 602-777-1429
Facebook account:https://www.facebook.com/profile.php?id=61567932672252
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