Survivorship - The Bloodline with Blood Cancer United Podcast

Cliff Davis was only sixteen weeks away from graduating medical school when he received the shocking news that he had Hodgkin Lymphoma.  His path has been unique and his story will inspire you.

Cliff has a story that is familiar to many patients –a cancer diagnosis that resulted in pausing his schooling and career aspirations. In this case, going back to finish medical school proved much more difficult than expected when he took a leave of absence. Be sure to tune into this incredible story of resilience, as Cliff never gave up on the one thing he felt like he was meant to do – while learning so much about the world of patient care along the way. 

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Additional LLS Support Resources: 

Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

The post Continuing The Dream: An Inspiring Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us for this second live episode from CancerCon® 2023, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed “chemo brain”, palliative care, and healing through writing.

Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from hearing from these experts.

Be sure to tune into the previous episode from CancerCon, where we heard from young adult cancer patients and survivors on the milestones and challenges that they have experienced along the road of survivorship.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

The post LIVE! At CancerCon: Coping with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about where they are along the road of survivorship.

In the exhibit hall, we displayed a roadmap of survivorship, which had many detours and pit stops along the way towards long-term survivorship. The responses from young adult patients and survivors varied and each person had different milestones or points along the road that that they found significant.

We encourage our listeners to view the roadmap on the episode page. To our patients and survivors, where do YOU fit along the road? Be sure to share in the comments or discuss in the PodClub in our Subscriber Lounge.

Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on various ways to cope with a cancer diagnosis and treatment.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

The post LIVE! At CancerCon: The Roadmap of Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other age groups.  Healthcare and nonprofit professionals around the world are listening to patients and researching these issues to improve quality of life during and after treatment.

In this episode, we are taking you onsite to the 5th Annual Global Adolescent and Young Adult Cancer Congress in Long Beach, CA. Elissa met with experts who discussed mental health, the resiliency of AYA patients when facing uncertainty, healthcare transitions and disparities, and how patients can advocate for their care. 

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Additional LLS Support Resources: 

The post The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

Cancer related costs can be an overwhelming burden for patients on Medicare. However, new changes in Medicare will directly impact cancer patients and ease this financial burden.

In this episode, Brian Connell, the Vice President of Federal Affairs at LLS, discusses the new changes in Medicare for 2024 and 2025, as a result of the recent Inflation Reduction Act. Medicare recipients will benefit from these important changes, making cancer treatment more affordable and accessible.

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Additional LLS Support Resources: 

The post Be Informed: Beneficial Medicare Changes first appeared on The Bloodline with Blood Cancer United Podcast.

Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival. Join us as we talk to chronic myeloid leukemia (CML) patient, Jonathan Daige, and Registered Dietitian, Jennifer Redlich, about healthy eating and the benefits of a balanced diet.

In this episode, Jonathan, a three-time cancer survivor, shares his journey of nutrition and exercise through his cancer treatments. Jennifer gives tips on putting together balanced meals that provide patients with the nutrients they need to nourish their bodies during cancer treatments. All cancer patients and caregivers can benefit from this episode, as we learn that no step is too small to maintain good nutrition.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Novartis Pharmaceuticals Corporation.

The post Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Cancer-related fatigue can be a tremendous burden on patients and caregivers. In this episode, we speak to Dr. Mariam Nawas and oncology nurse, Mary Lappe, of University of Chicago Medicine, about how cancer-related fatigue is identified and managed.

Patients and caregivers will be empowered to work with their treatment teams, addressing cancer-related fatigue to improve quality of life during cancer treatments and survivorship.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

The post Quality-of-Life: Managing Cancer-Related Fatigue first appeared on The Bloodline with Blood Cancer United Podcast.

As a cancer patient or caregiver, telling your story can not only be a way to update loved ones about your condition or be a comfort to current patients, it can be healing for yourself. In this episode, we speak to Steve Buechler about his treatment for acute myeloid leukemia as well as his experience through survivorship.

Steve shares how writing helped him heal from the emotional effects of cancer. As an LLS volunteer, he now facilitates writing workshops for our LLS Community and wrote an article about how language matters when speaking to patients.

Join us to hear about Steve’s “odyssey” through AML, which he describes as not something he chose, but something that taught him more about life and himself.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this program is provided by: Bristol Myers Squibb.

The post Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission, while Tim shares his experience using newer therapies. Both share their stories and how CML has impacted their lives.

Both Tim and Becky have worked to build and maintain a good quality of life and have used their experiences to help others in the cancer community and find connection.

Mentioned on this episode: 

• Chronic Myeloid Leukemia (CML)
• Tyrosine Kinase Inhibitors (TKIs)
• Leukapheresis
• Stem Cell Transplant
• Donor Lymphocyte Infusion (DLI)
• Graft-Vs-Host-Disease (GVHD)
• Showing Up: Perspectives On Cancer Show
• Perspectives On Cancer Book
• PodcastNotPodcast: Tim Sohn. Leukemia and Livestreaming.
• Information Specialists 
• Caregiver support 

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Young Adult Resources
• Survivorship Workbook
• Clinical Trial Support Center
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by: Novartis Pharmaceuticals Corporation.

The post Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments.

While their lives have been impacted by these treatments, they have been able to find joy and peace as they work to overcome these side effects. Don’t miss out on this important episode, as blood cancer patients learn to give themselves grace during challenging days in treatment and beyond.

Mentioned on this episode: 

• Diffuse large b cell lymphoma (DLBCL)
• Acute myeloid leukemia (AML)
• LIVE! At CancerCon: A Journey Through Survivorship podcast episode
• Armenian Bone Marrow Donor Registry
• Cancer-related cognitive impairment
• The Gathering Place
• Gilda’s Club Kentuckiana (other cities available)
• Caring for Kids and Adolescents Workbook
• Survivorship Workbook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Financial Assistance Program
• LLS Community 
• Online chats 
• Caregiver support 
• Support groups 
• Caregiver Workbook
• Free Nutrition Consultations 
• LLS Advocacy

Support for this episode provided by: Pharmacyclics, An AbbVie Company and Janssen Biotech.

The post Give Yourself Grace: Overcoming Long-term Side Effects first appeared on The Bloodline with Blood Cancer United Podcast.