Survivorship - The Bloodline with Blood Cancer United Podcast

Survivorship - The Bloodline with Blood Cancer United Podcast

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Survivorship - The Bloodline with Blood Cancer United Podcast episodes

  • LIVE! At CancerCon: Ghosts, Growth and Guidance
    Ambreen Maan, MSW, LSW

    Megan Gilman, MD
    Peter Drahms, RN, BSN, C.
    Robert Bennett, PhD, CPNP-AC

    Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®.

    A diagnosis of cancer can present many challenges when it comes to relationships with others and the relationship you have with yourself. In this episode, we speak with experts about rediscovering yourself after cancer, exploring mental health treatment, and cancer “ghosting”.

    Be sure to tune into our prior LIVE! At CancerCon episode, where we interviewed young adult patients and survivors to hear their thoughts on transitioning from their oncologist to a primary care provider.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Stupid Cancer®
    • CancerCon® for adolescents and young adults
    • Seven Stages of Grief
    • Psychiatric Oncology
    • Onco-psychology: Helping people manage cancer-related distress
    • Mental Health Resources
    • Follow up care and survivorship
    • Survivorship Workbook
    • Beyond Treatment fact sheet
    • Additional LLS Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Financial support
      • Free telephone/web patient programs 
      • Free booklets 
      • Clinical Trial Support Center
      • Young Adult Resources
      • Online chats 
      • LLS Community 
      • Support groups 
      • Caregiver support 
      • Caregiver Workbook
      • Advocacy and Public Policy
      • Support for this episode is provided by Genentech, a member of the Roche Group.

        The post LIVE! At CancerCon: Ghosts, Growth and Guidance first appeared on The Bloodline with Blood Cancer United Podcast.

        42 min
      • Medicare Updates: What You Need to Know for 2025
        Brian Connell

        There are new Medicare changes starting in January 2025 that will benefit cancer patients.   LLS Vice President of Federal Affairs, Brian Connell, joins us again on The Bloodline to inform us about these new changes and how they will impact Medicare patients.      

        In this episode, you will learn about the key changes for Part D, the prescription drug plan for Medicare, as well as the drug plan for Medicare Advantage. One of these new changes requires action on the part of the Medicare enrollee, so be sure to tune in to learn more about how you can benefit.  

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Medicare Change Information
        • Medicare.gov
        • SHIP counselors
        • Be Informed: Beneficial Medicare Changes podcast episode
        • Inflation Reduction Act and Medicare
        • Information Specialists 
        • Advocacy and Public Policy
        • Financial support
        • Additional LLS Support Resources: 

          • Free Nutrition Consultations
          • Free telephone/web patient programs 
          • Free booklets 
          • Clinical Trial Support Center
          • Young Adult Resources
          • Online chats 
          • LLS Community 
          • Support groups 
          • Caregiver support 
          • Caregiver Workbook
          • The post Medicare Updates: What You Need to Know for 2025 first appeared on The Bloodline with Blood Cancer United Podcast.

            22 min
          • LIVE! At CancerCon: Transitioning to Primary Care

            Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®.

            Following a cancer diagnosis and treatment, oncologists often become the default primary care for patients. Transitioning away from the oncologist to a primary care provider for general healthcare may be challenging at times for patients but may have tremendous benefits. In this episode, we ask young adults with cancer about their experiences transitioning to primary care during or after treatment.

            Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on cancer “ghosting”, rediscovering yourself after cancer and mental health.

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Stupid Cancer®
            • CancerCon® for adolescents and young adults
            • Follow up care and survivorship
            • Survivorship Workbook
            • Beyond Treatment fact sheet
            • Stem cell transplantation
            • Additional LLS Support Resources: 

              • Information Specialists 
              • Free Nutrition Consultations
              • Financial support
              • Free telephone/web patient programs 
              • Free booklets 
              • Clinical Trial Support Center
              • Young Adult Resources
              • Online chats 
              • LLS Community 
              • Support groups 
              • Caregiver support 
              • Caregiver Workbook
              • Advocacy and Public Policy
              • Support for this episode is provided by Genentech, a member of the Roche Group.

                The post LIVE! At CancerCon: Transitioning to Primary Care first appeared on The Bloodline with Blood Cancer United Podcast.

                42 min
              • Exercise and Cancer: Celebration That You CAN
                Shernan Holtan, MD
                Paul Rothweiler
                Joe Grey

                Exercise, or simply moving the body, can be an important part of cancer recovery, both physically and emotionally. In this episode, Dr. Shernan Holtan of Roswell Park Comprehensive Cancer Center and blood cancer survivors, Paul Rothweiler and Joe Grey, share about a clinical trial they developed to introduce a personalized strength training program to patients and caregivers.

                Dr. Holtan highlights the benefits of strength training for all patients, while Paul and Joe share how exercise has aided their physical and emotional recovery during and after their treatments. For patients and survivors who may be fearful or nervous about starting an exercise program, this episode is for you!

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Mental Health
                • Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects podcast episode
                • Quality-of-Life: Managing Cancer-Related Fatigue podcast episode
                • Powerful Benefits – article on clinical trial
                • Survivorship Resources
                • Exercise, Fitness and Workout Tips and Advice (aarp.org)
                • Strength Training At Home: 15 Exercises for a Full-Body Workout (today.com)
                • A 30-day strength training routine — no equipment required (nbcnews.com)
                • 5 Strength Training Workouts (for Beginners) | Nerd Fitness
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • Free Nutrition Consultations
                  • Financial support
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Young Adult Resources
                  • Online chats 
                  • LLS Community 
                  • Clinical Trial Support Center
                  • Support groups 
                  • Caregiver support 
                  • Caregiver Workbook
                  • Patti Robinson Kaufmann First Connection Program®
                  • Advocacy and Public Policy
                  • Survivorship Workbook
                  • Support for this episode is provided by Genentech, a member of the Roche Group.

                    The post Exercise and Cancer: Celebration That You CAN first appeared on The Bloodline with Blood Cancer United Podcast.

                    46 min
                  • LIVE! At IWMF: Living with Waldenström Macroglobulinemia
                    Alissa Huston, MD
                    Julie Larson, LCSW
                    Shirley D’Sa, MD, FRCP, FRCPath

                    For patients with chronic blood cancers, such as Waldenström Macroglobulinemia (WM), quality of life is a main priority. Physical and emotional side effects of the disease or treatment may present several challenges for patients and caregivers.  

                    In this episode, we were onsite at the International Waldenström‘s Macroglobulinemia Foundation’s 2024 IWMF Educational Forum in Renton, WA.  Elissa met with experts who discussed how integrative oncology, wellness, mental health, and peripheral neuropathy affects WM patients and their caregivers.

                    While this episode focuses on WM, the topics discussed are relevant to all types of cancer. We encourage you to listen and learn! 

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Waldenström Macroglobulinemia Fact Sheet
                    • International Waldenström ‘s Macroglobulinemia Foundation (IWMF)
                    • Integrative Medicine and Complimentary Therapies Fact Sheet
                    • Mental Health
                    • Peripheral Neuropathy
                    • American Society of Clinical Oncology (ASCO)
                    • Society for Integrative Oncology (SIO)
                    • Nation Comprehensive Cancer Network (NCCN)
                    • Side effect management
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Free Nutrition Consultations
                      • Financial support
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Young Adult Resources
                      • Online chats 
                      • LLS Community 
                      • Clinical Trial Support Center
                      • Support groups 
                      • Caregiver support 
                      • Caregiver Workbook
                      • Patti Robinson Kaufmann First Connection Program®
                      • Advocacy and Public Policy
                      • Survivorship Workbook
                      • The post LIVE! At IWMF: Living with Waldenström Macroglobulinemia first appeared on The Bloodline with Blood Cancer United Podcast.

                        47 min
                      • Patient-Doctor Perspectives: Resilience in Relapsed/Refractory Hodgkin Lymphoma

                        In this episode, we speak with Dr. Matthew Matasar of Rutgers Cancer Institute, and Elizabeth Stone, who was diagnosed with Hodgkin lymphoma in 2012. 

                        Dr. Matasar discusses the current and emerging treatments for Hodgkin lymphoma. Elizabeth shares her story of resilience as a refractory patient throughout multiple treatments, and how she has navigated a life of hardships, joy, love and friendship while in a highly immunocompromised state.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Hodgkin Lymphoma
                        • Stem Cell Transplantation
                        • Stem Cell Transplantation Animated Videos
                        • CancerCon by Stupid Cancer®
                        • LLS COVID Vaccine Study
                        • Side effect management
                        • Young Adult Resources
                        • Online chats 
                        • LLS Community 
                        • Clinical Trial Support Center
                        • Support groups 
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Free Nutrition Consultations
                          • Financial support
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Caregiver support 
                          • Caregiver Workbook
                          • Patti Robinson Kaufmann First Connection Program®
                          • Advocacy and Public Policy
                          • Survivorship Workbook
                          • Support for this episode provided by Affimed Inc.

                            The post Patient-Doctor Perspectives: Resilience in Relapsed/Refractory Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

                            40 min
                          • Family Ties: Navigating Multiple Myeloma Together
                            Ashlie D’Andrea
                            Emma D’Andrea
                            Lynn Steele, LSW, OSW-C

                            In this episode, we speak to a myeloma patient and her teenage daughter about the impact that myeloma had on her family. Lynn Steele, a social worker and Information Specialist at LLS, then joins us to share tips and resources on how families can navigate a cancer diagnosis together. 

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Multiple myeloma
                            • Talking to children and families about cancer
                            • Parenting with cancer
                            • Caregiver support 
                            • Caregiver Workbook
                            • Online chats 
                            • LLS Community 
                            • Patti Robinson Kaufmann First Connection Program®
                            • Pickles Group
                            • Additional LLS Support Resources: 

                              • Information Specialists 
                              • Free Nutrition Consultations
                              • Financial support
                              • Clinical Trial Support Center
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Young Adult Resources
                              • Advocacy and Public Policy
                              • Survivorship Workbook
                              • Support groups 
                              • Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

                                The post Family Ties: Navigating Multiple Myeloma Together first appeared on The Bloodline with Blood Cancer United Podcast.

                                35 min
                              • Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL)
                                Teresa Altemeyer

                                Join us on a heartfelt journey woven by support and education, as we speak to Teresa Altemeyer, who was diagnosed with chronic lymphocytic leukemia in 2009. In this episode, Teresa shares her experience with CLL from diagnosis through long-term survivorship. On the advice of her doctor, she went out to live her life, and found herself supporting other blood cancer patients and survivors in doing the same. Despite her own physical and mental health struggles with this disease, she shares beautiful advice learned along the way.

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Chronic lymphocytic leukemia
                                • Mental health resources
                                • Minimal/Measurable Residual Disease
                                • Clinical Trial Support Center
                                • Financial support
                                • Finances podcast
                                • Shared decision making interactive program
                                • Shared decision making for CLL podcast
                                • Light The Night
                                • Advocacy
                                • Additional LLS Support Resources: 

                                  • Information Specialists 
                                  • Free Nutrition Consultations
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Young Adult Resources
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Survivorship Workbook
                                  • Online chats 
                                  • LLS Community 
                                  • Support groups 
                                  • Patti Robinson Kaufmann First Connection Program
                                  • Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

                                    The post Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

                                    44 min
                                  • You Aren’t Alone: Navigating The Financial Impact of Cancer
                                    Monica Fawzy Bryant, Esq.

                                    Dealing with cancer extends beyond physical health, often bringing financial challenges that can overwhelm patients and their loved ones.  

                                    In this episode, we offer a beacon of support as we speak to Monica Bryant, Esq., a cancer rights attorney and Co-founder/Chief Operating Officer of Triage Cancer. She reviews the financial hurdles that may arise during treatment and provides practical strategies to help with economic hardships. She also highlights a wealth of resources designed to aid patients, covering everything from financial grants to transportation, Social Security benefits and navigating the complex world of health insurance.  

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Financial support
                                    • Triage Cancer
                                    • Continuation of Health Coverage (COBRA)
                                    • State Health Insurance Marketplace
                                    • Health Insurance Appeals Guide
                                    • Family and Medical Leave Act (FMLA)
                                    • Social Security Disability (SSDI)
                                    • Social Security Return To Work program
                                    • Road to Recovery – transportation
                                    • Be Informed: Beneficial Medicare Changes – podcast episode
                                    • Inflation Reduction Act and Medicare
                                    • Additional LLS Support Resources: 

                                      • Information Specialists 
                                      • Free Nutrition Consultations
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • Clinical Trial Support Center
                                      • Young Adult Resources
                                      • Caregiver support 
                                      • Caregiver Workbook
                                      • Survivorship Workbook
                                      • Online chats 
                                      • LLS Community 
                                      • Support groups 
                                      • Patti Robinson Kaufmann First Connection Program 
                                      • Support for this episode provided by: Genentech, Inc. & Biogen.

                                        The post You Aren’t Alone: Navigating The Financial Impact of Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

                                        49 min
                                      • Bite By Bite: Supporting Cancer Patients Through Nutrition

                                        Nutrition is a crucial part of cancer care. Many patients and caregivers play an active role in managing their nutrition during and after treatment. In this episode, we discuss nutrition after a cancer diagnosis with Luz Chavez and Susanne Massarani, Registered Dietitians from The University of Chicago. Learn the basics of oncology nutrition and how a good diet can help combat treatment-related weight loss and side effects. Caregivers will also benefit from tips on how to care for their loved ones when they experience appetite changes or other gastrointestinal symptoms.

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • LLS Nutrition Resources and Free Consults
                                        • New American Plate
                                        • Graft-vs-host disease (GVHD)
                                        • CAR T-cell Therapy
                                        • Stem Cell Transplant
                                        • Additional LLS Support Resources: 

                                          • Information Specialists 
                                          • Financial support
                                          • Free telephone/web patient programs 
                                          • Free booklets 
                                          • Clinical Trial Support Center
                                          • Young Adult Resources
                                          • Caregiver support 
                                          • Caregiver Workbook
                                          • Survivorship Workbook
                                          • Online chats 
                                          • LLS Community 
                                          • Support groups 
                                          • Patti Robinson Kaufmann First Connection Program 
                                          • Free Nutrition Consultations
                                          • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                                            The post Bite By Bite: Supporting Cancer Patients Through Nutrition first appeared on The Bloodline with Blood Cancer United Podcast.

                                            42 min

                                          About Survivorship - The Bloodline with Blood Cancer United Podcast

                                          From the publisher's feed

                                          A podcast for patients and caregivers