Survivorship - The Bloodline with Blood Cancer United Podcast

Survivorship - The Bloodline with Blood Cancer United Podcast

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Survivorship - The Bloodline with Blood Cancer United Podcast episodes

  • Acute Promyelocytic Leukemia (APL): Advances, Hope, and Healing

    Anand Jillella, MD

    In this episode of The Bloodline with Blood Cancer United, Elissa and guest co-host, Kristen Parker, speak with Dr. Anand Jillella, of Georgia Cancer Center. Together, they explore acute promyelocytic leukemia (APL)—a rare but highly curable subtype of acute myeloid leukemia. Dr. Jillella explains the rapid onset of APL, its hallmark signs and symptoms, and how targeted treatments have transformed outcomes for patients. Kristen, an APL survivor and Blood Cancer United Patient & Community Outreach Manager, also shares her personal perspective. Listeners will gain valuable insight into why APL stands apart as one of the most treatable forms of leukemia today.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Acute promyelocytic leukemia (APL)
    • Differentiation syndrome
    • SEER (Surveillance, Epidemiology and End Results Program) database
    • Additional LLS Support Resources: 

      • Free Nutrition Consultations
      • Information Specialists 
      • Free telephone/web patient programs 
      • Clinical Trial Support Center
      • Advocacy and Public Policy
      • Free booklets 
      • Financial support
      • Young Adult Resources
      • Support groups 
      • Survivorship Workbook
      • Community
      • Caregiver support 
      • Caregiver Workbook
      • Mental Health Resources
      • The post Acute Promyelocytic Leukemia (APL): Advances, Hope, and Healing first appeared on The Bloodline with Blood Cancer United Podcast.

        28 min
      • Joy, Hope, and Healing Beyond a Cancer Diagnosis
        Dianne Callahan

        In this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally.

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Non-Hodgkin lymphoma
        • Stem cell transplantation
        • Allogeneic stem cell transplantation animated video
        • NMDP (formerly Be The Match)
        • Light The Night
        • Visionaries of the Year
        • Team In Training
        • Advocacy and Public Policy
        • Caregiver support 
        • Caregiver Workbook
        • Mental Health Resources
        • Additional LLS Support Resources: 

          • Free Nutrition Consultations
          • Information Specialists 
          • Free telephone/web patient programs 
          • Free booklets 
          • LLS Clinical Trial Support Center
          • Financial support
          • Young Adult Resources
          • Support groups 
          • Survivorship Workbook
          • LLS Community 
          • Supported by Genentech, A Member of the Roche Group.

            The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

            52 min
          • Joy, Hope, and Healing Beyond a Cancer Diagnosis
            Dianne Callahan

            In this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally.

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Non-Hodgkin lymphoma
            • Stem cell transplantation
            • Allogeneic stem cell transplantation animated video
            • NMDP (formerly Be The Match)
            • Light The Night
            • Visionaries of the Year
            • Team In Training
            • Advocacy and Public Policy
            • Caregiver support 
            • Caregiver Workbook
            • Mental Health Resources
            • Additional LLS Support Resources: 

              • Free Nutrition Consultations
              • Information Specialists 
              • Free telephone/web patient programs 
              • Free booklets 
              • LLS Clinical Trial Support Center
              • Financial support
              • Young Adult Resources
              • Support groups 
              • Survivorship Workbook
              • LLS Community
              • Supported by Genentech, A Member of the Roche Group.

                The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with LLS.

                52 min
              • LIVE! At SHARE: Emotional Wellness in Survivorship
                Julie Larson, LCSW
                Simantinee Roy, Matt Hunt, Alfredo Martinez, and Casey Kang

                The cancer experience isn’t just physical—it’s deeply emotional.

                Join us for this special episode recorded onsite while filming our SHARE Project video series, exploring emotional well-being in cancer survivorship. Listen in as four blood cancer survivors share how their diagnoses impacted their mental health and what helped them cope. Key Opinion Leader, psychotherapist Julie Larson, LCSW, then joins us to discuss signs of emotional distress, the role of therapy, and how resilience and support can shape the healing journey.

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • SHARE Project Video Series
                • Young Adult Resources
                • YAconnect: Young Adults Living with Blood Cancer Online Chat
                • Mental Health Resources
                • How Do I Use Breathing To Manage Anxiety
                • Additional LLS Support Resources: 

                  • Free Nutrition Consultations
                  • Information Specialists 
                  • Financial support
                  • Free telephone/web patient programs 
                  • LLS Clinical Trial Support Center
                  • Advocacy and Public Policy
                  • Free booklets 
                  • LLS Online Chat
                  • Support groups 
                  • Caregiver support 
                  • Caregiver Workbook
                  • Survivorship Workbook
                  • LLS Community
                  • The post LIVE! At SHARE: Emotional Wellness in Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

                    45 min
                  • Choosing the Path Forward: Shared Decisions in Myelofibrosis Care
                    Mary Wells

                    In this episode, we speak with Mary Wells, who was diagnosed with primary myelofibrosis in 2018, a rare blood cancer that falls under the umbrella of myeloproliferative neoplasms (MPN). Mary walks us through her journey, from the side effects and emotional toll of cancer to finding the right treatment that allowed her to reclaim her life.

                    Mary shares the ups and downs of watch-and-wait periods, switching medications, and navigating side effects. Along the way, she advocated for her own care and partnered closely with her doctor, making shared decisions that ultimately led her to a treatment that works best for her.

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Primary Myelofibrosis
                    • Shared Decision Making podcast episode
                    • MPN Online chats 
                    • LLS Clinical Trial Support Center
                    • Advocacy and Public Policy
                    • Additional LLS Support Resources: 

                      • Free Nutrition Consultations
                      • Information Specialists 
                      • Financial support
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Young Adult Resources
                      • Support groups 
                      • Caregiver support 
                      • Caregiver Workbook
                      • Survivorship Workbook
                      • LLS Community
                      • Mental Health Resources
                      • Supported by GSK plc.

                        The post Choosing the Path Forward: Shared Decisions in Myelofibrosis Care first appeared on The Bloodline with Blood Cancer United Podcast.

                        32 min
                      • Unbreakable: A Mother & Son’s Fight Against Cancer

                        Join us as we speak with Ashlee and Michael Cramer, the mother-son duo behind the Michael and Mom Talk Cancer podcast. Diagnosed at 19 with a rare and aggressive type of lymphoma, Michael endured intense treatments while Ashlee became his full-time caregiver. Together, they turned their pain into purpose—creating a platform to support other young adults and caregivers navigating cancer. In this episode, they open up about diagnosis, survivorship, and the unbreakable bond that grew from their shared experience. Tune in for an inspiring conversation about finding strength, hope, and beauty in life’s hardest moments.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Young Adult Resources
                        • Non-Hodgkin lymphoma booklet
                        • Hepatosplenic T-cell lymphoma
                        • Stem cell transplantation
                        • Graft-vs-host disease (GVHD)
                        • Michael and Mom Talk Cancer podcast
                        • CancerCon®
                        • CureFest®
                        • CancerBuddy®
                        • Caregiver support 
                        • Caregiver Workbook
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Free Nutrition Consultations – LLS Nutrition Education Resources Center (NESC)
                          • LLS Clinical Trial Support Center
                          • Financial support
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Online chats 
                          • Support groups 
                          • Advocacy and Public Policy
                          • Survivorship Workbook
                          • LLS Community
                          • Mental Health Resources
                          • The post Unbreakable: A Mother & Son’s Fight Against Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

                            48 min
                          • Cancer Nutrition: Myth Busters Edition

                            When it comes to cancer and nutrition, there’s a lot of misinformation out there. Can sugar fuel cancer? Should you cut out carbs? In this episode, we’re busting some of the biggest myths about cancer nutrition and breaking down what really matters when it comes to fueling your body during treatment and beyond.

                            Join us as we chat with LLS Registered Dietitians, Margaret Martin and Heather Knutson, about evidence-based nutrition strategies that can help support energy levels, manage side effects, and promote overall well-being. Plus, we’ll share how you can access free, personalized nutrition support through The Leukemia & Lymphoma Society’s Nutrition Education Services Center (NESC).

                            Get ready to separate fact from fiction and take the guesswork out of eating well during cancer!

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            Free Nutrition Consultations – LLS Nutrition Education Services Center (NESC)

                            Additional LLS Support Resources: 

                            • Information Specialists 
                            • LLS Clinical Trial Support Center
                            • Financial support
                            • Free telephone/web patient programs 
                            • Free booklets 
                            • Young Adult Resources
                            • Online chats 
                            • Support groups 
                            • Caregiver support 
                            • Caregiver Workbook
                            • Advocacy and Public Policy
                            • Survivorship Workbook
                            • LLS Community 
                            • Mental Health Resources
                            • Supported by Johnson & Johnson.

                              The post Cancer Nutrition: Myth Busters Edition first appeared on The Bloodline with Blood Cancer United Podcast.

                              40 min
                            • Beyond the Transplant: Navigating Graft-vs-Host Disease (GVHD)
                              Alison Loren, MD

                              A stem cell transplant for blood cancer is just the beginning – what may come next for the patient can be a complex journey. In this episode, Dr. Alison Loren of the University of Pennsylvania discusses graft-vs-host disease (GVHD), a possible complication of transplantation – exploring the latest advancements in treatment and how patients and caregivers can navigate the challenges ahead.

                              DOWNLOAD TRANSCRIPT
                              CLICK HERE to participate in our episode survey.

                              Mentioned on this episode: 

                              • Graft-vs-host disease
                              • Stem cell transplantation
                              • Stem cell transplantation booklet
                              • Allogeneic stem cell transplant video
                              • Autologous stem cell transplant video
                              • Clinical Trial Support Center
                              • NMDP (formerly Be The Match)
                              • Autologous GVHD Syndrome
                              • Additional LLS Support Resources: 

                                • Free Nutrition Consultations
                                • Information Specialists 
                                • Financial support
                                • Free telephone/web patient programs 
                                • Free booklets 
                                • Young Adult Resources
                                • Online chats 
                                • Support groups 
                                • Caregiver support 
                                • Caregiver Workbook
                                • Advocacy and Public Policy
                                • Survivorship Workbook
                                • LLS Community 
                                • Mental Health Resources
                                • The post Beyond the Transplant: Navigating Graft-vs-Host Disease (GVHD) first appeared on The Bloodline with Blood Cancer United Podcast.

                                  51 min
                                • Don’t Burn Your CAKE: Embracing Life’s Challenges
                                  Rashad Hayes, LMSW

                                  Join us for a powerful message of hope and perseverance after a cancer diagnosis. In this episode, Rashad Hayes shares his experience of being diagnosed with follicular lymphoma at 22 years old and how it motivated him to reevaluate his mindset and push forward. Now a social worker and motivational speaker, Rashad introduces his C.A.K.E. methodology, a unique approach to embracing life’s challenges.

                                  Don’t miss out on this uplifting episode of resilience and adaptation in the face of cancer.

                                  DOWNLOAD TRANSCRIPT
                                  CLICK HERE to participate in our episode survey.

                                  Mentioned on this episode: 

                                  • Follicular lymphoma
                                  • Rashad Hayes Speaks
                                  • Mental Health Resources
                                  • Additional LLS Support Resources: 

                                    • Information Specialists 
                                    • Free Nutrition Consultations
                                    • Financial support
                                    • Free telephone/web patient programs 
                                    • Free booklets 
                                    • Clinical Trial Support Center
                                    • Young Adult Resources
                                    • Online chats 
                                    • Support groups 
                                    • Caregiver support 
                                    • Caregiver Workbook
                                    • Advocacy and Public Policy
                                    • Survivorship Workbook
                                    • LLS Community
                                    • The post Don’t Burn Your CAKE: Embracing Life’s Challenges first appeared on The Bloodline with Blood Cancer United Podcast.

                                      33 min
                                    • LIVE! At CancerCon: Ghosts, Growth and Guidance
                                      Ambreen Maan, MSW, LSW

                                      Megan Gilman, MD
                                      Peter Drahms, RN, BSN, C.
                                      Robert Bennett, PhD, CPNP-AC

                                      Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®.

                                      A diagnosis of cancer can present many challenges when it comes to relationships with others and the relationship you have with yourself. In this episode, we speak with experts about rediscovering yourself after cancer, exploring mental health treatment, and cancer “ghosting”.

                                      Be sure to tune into our prior LIVE! At CancerCon episode, where we interviewed young adult patients and survivors to hear their thoughts on transitioning from their oncologist to a primary care provider.

                                      DOWNLOAD TRANSCRIPT
                                      CLICK HERE to participate in our episode survey.

                                      Mentioned on this episode: 

                                      • Stupid Cancer®
                                      • CancerCon® for adolescents and young adults
                                      • Seven Stages of Grief
                                      • Psychiatric Oncology
                                      • Onco-psychology: Helping people manage cancer-related distress
                                      • Mental Health Resources
                                      • Follow up care and survivorship
                                      • Survivorship Workbook
                                      • Beyond Treatment fact sheet
                                      • Additional LLS Support Resources: 

                                        • Information Specialists 
                                        • Free Nutrition Consultations
                                        • Financial support
                                        • Free telephone/web patient programs 
                                        • Free booklets 
                                        • Clinical Trial Support Center
                                        • Young Adult Resources
                                        • Online chats 
                                        • LLS Community 
                                        • Support groups 
                                        • Caregiver support 
                                        • Caregiver Workbook
                                        • Advocacy and Public Policy
                                        • Support for this episode is provided by Genentech, a member of the Roche Group.

                                          The post LIVE! At CancerCon: Ghosts, Growth and Guidance first appeared on The Bloodline with Blood Cancer United Podcast.

                                          42 min

                                        About Survivorship - The Bloodline with Blood Cancer United Podcast

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                                        A podcast for patients and caregivers