Survivorship - The Bloodline with Blood Cancer United Podcast

Survivorship - The Bloodline with Blood Cancer United Podcast

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Survivorship - The Bloodline with Blood Cancer United Podcast episodes

  • Myeloma, Fatherhood, and Moving Forward
    Brice Davis

    After being diagnosed with multiple myeloma at age 31, Brice Davis faced challenges that extended far beyond treatment alone. Join us as he talks about balancing fatherhood, navigating mental health struggles, rebuilding after setbacks, and adjusting to life with a chronic blood cancer. Brice reflects on the importance of community, resilience, and focusing on what matters most while creating a fulfilling life after diagnosis.

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    Mentioned on this episode: 

    • Multiple myeloma
    • Autologous stem cell transplant
    • CAR T-cell therapy
    • Lessons in Blood Cancer: How Far We Have Come – Myeloma
    • Unite to Nourish: Dietary, Microbiome and Metabolism Evidence in Blood Cancers (Focus on Myeloma) Webcast
    • Young Adult Resources
    • Young Adult Online Chat
    • Additional Blood Cancer United Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Nutrition Handbook for Parents Free telephone/web patient programs 
      • Clinical Trial Support Center
      • SHARE web series
      • Online videos
      • Free booklets 
      • Caregiver support
      • Caregiver Workbook
      • Support groups 
      • Patient Community
      • Medical Debt Case Management Program
      • Financial support
      • Survivorship Workbook
      • Advocacy and Public Policy
      • Mental Health Resources
      • Episode supported by Adaptive Biotechnologies Corporation; GSK plc; and Johnson & Johnson.

        The post Myeloma, Fatherhood, and Moving Forward first appeared on The Bloodline with Blood Cancer United Podcast.

        44 min
      • Chronic Myeloid Leukemia (CML): Four Olympics, One Unexpected Diagnosis
        AJ Kitt

        In this episode, four-time Olympic downhill skier AJ Kitt shares his diagnosis of chronic myeloid leukemia (CML) and how revolutionary medical advances transformed an unsettling diagnosis into a manageable part of his everyday life.

        AJ opens up about the initial shock of the news, the emotional toll it took on his young family, and how finding CML pioneer, Dr. Brian Druker, restored his confidence amid deep uncertainty. The conversation dives into his treatment with tyrosine kinase inhibitors (TKIs), the vital importance of self-advocacy, and how he continues to thrive as both an athlete and a ski coach. Tune in to hear why AJ believes that access to reliable information is the ultimate game-changer for anyone navigating a new CML diagnosis.

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        Mentioned on this episode: 

        • Chronic myeloid leukemia
        • CML podcast with Dr. Druker
        • Hematology Horizons vlog episode: Blood cancer care close to home
        • Shared Decision Making Chronic Leukemias
        • CML programs
        • Additional Blood Cancer United Support Resources: 

          • Information Specialists 
          • Free Nutrition Consultations
          • Nutrition Handbook for Parents Free telephone/web patient programs 
          • Clinical Trial Support Center
          • SHARE web series
          • Online videos
          • Free booklets 
          • Young Adult Resources
          • Young Adult Online Chat
          • Caregiver support
          • Caregiver Workbook
          • Support groups 
          • Patient Community
          • Medical Debt Case Management Program
          • Financial support
          • Survivorship Workbook
          • Advocacy and Public Policy
          • Mental Health Resources
          • The post Chronic Myeloid Leukemia (CML): Four Olympics, One Unexpected Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

            32 min
          • A Parent’s Guide to Childhood Cancer: Support, Advocacy, and Hope
            Laura DeKraker Lang-Ree

            When a child is diagnosed with cancer, parents are suddenly expected to manage medications, appointments, treatment decisions, family life, and overwhelming emotions, often all at once.

            In this episode, we speak with Laura DeKraker Lang-Ree, pediatric cancer parent, advocate, and author of The Cancer Parent’s Handbook, about the practical guidance she wishes every family received from day one. Laura shares powerful insights from her family’s journey after her three-year-old daughter was diagnosed with acute lymphoblastic leukemia (ALL). She offers actionable guidance on child advocacy, trusting parental instincts, engaging siblings, and maintaining normalcy during treatment. Additionally, Laura explores strategies for helping children thrive post-treatment, providing crucial hope and support for families facing some of their hardest days.

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            Mentioned on this episode: 

            • Dare to Dream
            • PedAL trial
            • Navigating Blood Cancer for Children and Teens
            • The Cancer Parent’s Handbook: What Your Oncologist Doesn’t Have Time To Tell You
            • Pediatric acute lymphoblastic leukemia (ALL)
            • Pediatric acute myeloid leukemia (AML)
            • Caregiver support
            • Caregiver Workbook
            • Additional Blood Cancer United Support Resources: 

              • Information Specialists 
              • Free Nutrition Consultations
              • Nutrition Handbook for Parents Free telephone/web patient programs 
              • Clinical Trial Support Center
              • SHARE web series
              • Online videos
              • Free booklets 
              • Young Adult Resources
              • Young Adult Online Chat
              • Support groups 
              • Patient Community
              • Medical Debt Case Management Program
              • Financial support
              • Survivorship Workbook
              • Advocacy and Public Policy
              • Mental Health Resources
              • The post A Parent’s Guide to Childhood Cancer: Support, Advocacy, and Hope first appeared on The Bloodline with Blood Cancer United Podcast.

                44 min
              • Finding Each Other Along the Way: A Cancer Love Story
                Kim and Josh Woda

                Two college students. Two lymphoma diagnoses. One unexpected love story.

                In this episode, we speak with Kim and Josh Woda, who were both diagnosed with Hodgkin lymphoma while attending college. They share how they navigated school during treatment, coped with relapse and stem cell transplant, found support in the cancer community, and unexpectedly found each other. Their story is a powerful reminder that connection, understanding, and hope can appear when you least expect it.

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                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Young Adult Resources
                • Young Adult Online Chat
                • Young Adult Cancer Organizations
                • Support groups 
                • Patient Community
                • CancerCare®
                • Hodgkin lymphoma
                • Allogeneic stem cell transplant
                • Additional Blood Cancer United Support Resources: 

                  • Information Specialists 
                  • Clinical Trial Support Center
                  • Free Nutrition Consultations
                  • Free telephone/web patient programs 
                  • SHARE web series
                  • Online videos
                  • Free booklets 
                  • Caregiver support
                  • Caregiver Workbook
                  • Medical Debt Case Management Program
                  • Financial support
                  • Survivorship Workbook
                  • Advocacy and Public Policy
                  • Mental Health Resources
                  • Episode supported by Kyowa Kirin Pharmaceutical Development Inc and Merck & Co.

                    The post Finding Each Other Along the Way: A Cancer Love Story first appeared on The Bloodline with Blood Cancer United Podcast.

                    52 min
                  • Making Your Voice Count: The Power of Patient Advocacy

                    Behind every policy is a patient, caregiver, or family whose story helped make change possible.

                    In this episode, we speak with Andrea Sanchez and Becki Chandler, volunteer advocates with Blood Cancer United, about the power of patient voices in shaping public policy. Drawing from their own family experiences with blood cancer, they discuss issues ranging from medical debt and insurance coverage to clinical trial access and research funding and explain how patients and caregivers can make their voices heard.

                    Learn why sharing your story matters and how personal experiences help lawmakers see that patients are more than numbers on a page. Behind every statistic is a real person, a unique story, and a family impacted by blood cancer.

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                    Mentioned on this episode: 

                    • Blood Cancer United Advocacy and Office of Public Policy – sign up for volunteer advocacy or sharing your voice here
                    • Medical Debt Case Management Program
                    • Financial support
                    • Accelerating Kids Access to Care Act
                    • Dare to Dream
                    • Blood Cancer United Scholarship program
                    • Blood Cancer Care Close to Home vlog episode
                    • National Institutes of Health (NIH)
                    • Advocating for Yourself: Insurance, Finances, and Your Rights podcast episode 
                    • Additional Blood Cancer United Support Resources: 

                      • Information Specialists 
                      • Clinical Trial Support Center
                      • Young Adult Resources
                      • Young Adult Online Chat
                      • Free Nutrition Consultations
                      • Free telephone/web patient programs 
                      • SHARE web series
                      • Online videos
                      • Free booklets 
                      • Patient Community
                      • Caregiver support
                      • Caregiver Workbook
                      • Support groups 
                      • Survivorship Workbook
                      • Mental Health Resources
                      • The post Making Your Voice Count: The Power of Patient Advocacy first appeared on The Bloodline with Blood Cancer United Podcast.

                        56 min
                      • The Bloodline Live!: Redefining Resilience
                        Samuel Brotkin, PhD, Chelsea Kaye, LCSW and Elissa Baldwin

                        Recorded onsite at CancerCon®, a young adult cancer conference presented by Stupid Cancer®, we talk about what resilience really means after a cancer diagnosis, and why it’s not about always being “strong.”

                         Join us alongside Sam Brotkin, PhD, a clinical psychologist at Bull City Behavioral Health and Chelsea Kaye, LCSW, an Information Specialist at Blood Cancer United. In this episode, we share compassionate, practical strategies for building lifelong resilience. Learn how to manage expectations, find trusted support, and give yourself grace exactly where you are today.

                        Although this discussion comes from a young adult cancer conference, the insights shared are relevant across all ages and experiences.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Information Specialists 
                        • Young Adult Resources
                        • Young Adult Online Chat
                        • Bobby’s Coaches
                        • Stupid Cancer
                        • The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care – featuring Dr. Abby Rosenberg 
                        • Additional Blood Cancer United Support Resources: 

                          • Financial support
                          • Free Nutrition Consultations
                          • Clinical Trial Support Center
                          • Free telephone/web patient programs 
                          • SHARE web series
                          • Online videos
                          • Free booklets 
                          • Patient Community
                          • Support groups 
                          • Caregiver support
                          • Caregiver Workbook
                          • Survivorship Workbook
                          • Advocacy and Public Policy
                          • Mental Health Resources
                          • Episode supported by Merck & Co., Inc.

                            The post The Bloodline Live!: Redefining Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

                            22 min
                          • A Young Adult Story: Cancer, Connection, and Life After Treatment
                            Chris Pagliarulo


                            A cancer diagnosis in your 20s or 30s can raise questions most people never expect to face so early in life.

                            In this episode, we speak with Chris Pagliarulo, who was diagnosed with Hodgkin lymphoma at the age of 29, about the medical, emotional, and practical realities of cancer during early adulthood. We explore issues that are especially relevant for adolescent and young adult (AYA) patients, including delayed diagnosis, fertility preservation, treatment side effects, career disruption, relationships, and finding connection with others who understand. While this conversation highlights experiences unique to AYAs, patients and caregivers of all ages may hear pieces of their own experience reflected in what Chris shares.

                            DOWNLOAD TRANSCRIPT

                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Young Adult Resources
                            • Hodgkin lymphoma
                            • Fertility and family planning resources
                            • Patti Robinson Kauffman First Connection®
                            • Light The Night
                            • Additional Blood Cancer United Support Resources: 

                              • Information Specialists 
                              • Financial support
                              • Online Chat
                              • Free Nutrition Consultations
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Clinical Trial Support Center
                              • Support groups 
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • Advocacy and Public Policy
                              • Patient Community
                              • Mental Health Resources
                              • Episode supported by Merck & Co., Inc.

                                The post A Young Adult Story: Cancer, Connection, and Life After Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

                                38 min
                              • Hope Meets Healing: Simple Practices for Stress Relief
                                Ann Grace MacMullan, C-IAYT

                                In this episode, we sit down with Ann Grace MacMullan, Director of Integrative Wellness at the International Waldenstrӧm’s Macroglobulinemia Foundation (IWMF), to explore how wellness can become a powerful part of life after a cancer diagnosis. Ann Grace shares practical, calming techniques, including breathing exercises, “Bee’s Breath”, and guided meditation, that you can do anywhere to reduce stress and feel more grounded. We’ll also dive into what integrative wellness really means, why it matters for blood cancer patients, and how concepts like the “self-care sandwich” can help you start and end your day with intention.

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Integrative oncology
                                • Palliative care
                                • How Do I Use Breathing To Manage Anxiety?
                                • IWMF wellness videos
                                • Integrative Oncology podcast episode
                                • International Waldenstrom’s Macroglobulinemia Foundation (IWMF)
                                • Additional Blood Cancer United Support Resources: 

                                  • Free Nutrition Consultations
                                  • Information Specialists 
                                  • Financial support
                                  • Clinical Trial Support Center
                                  • Online Chat
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Young Adult Resources
                                  • Support groups 
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Survivorship Workbook
                                  • Advocacy and Public Policy
                                  • Patient Community
                                  • Mental Health Resources
                                  • Episode supported by Merck & Co., Inc.

                                    The post Hope Meets Healing: Simple Practices for Stress Relief first appeared on The Bloodline with Blood Cancer United Podcast.

                                    46 min
                                  • Supporting the Supporter: Real Talk for Caregivers

                                    When cancer enters a family, it changes everything – routines, roles, and relationships.

                                    In this episode, we talk with Lindsey and Thomas Kealey about what it means to navigate cancer together as a care partner and patient. From unexpected diagnoses to months spent living in a hospital room, Lindsey shares how she balanced caregiving, work, and self-care while learning to hold space for difficult emotions. Together, they offer practical tips for caregivers, like creating healing spaces, communicating with care teams, and finding small moments of gratitude amid uncertainty. This heartfelt conversation is a reminder that behind every patient is someone quietly carrying so much and they deserve to be seen too.

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Caregiver support 
                                    • Caregiver Workbook
                                    • Additional LLS Support Resources: 

                                      • Free Nutrition Consultations
                                      • Information Specialists 
                                      • Free telephone/web patient programs 
                                      • Clinical Trial Support Center
                                      • Write it Out Journal
                                      • Advocacy and Public Policy
                                      • Free booklets 
                                      • Financial support
                                      • Young Adult Resources
                                      • Support groups 
                                      • Survivorship Workbook
                                      • Community
                                      • Mental Health Resources
                                      • The post Supporting the Supporter: Real Talk for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

                                        52 min
                                      • Health Coverage for 2026 and Protecting Yourself from Medical Debt
                                        Bethany Lilly

                                        Choosing the right health insurance plan can make all the difference in protecting your health and finances.

                                        In this episode, Bethany Lilly, Executive Director of Public Policy at Blood Cancer United, discusses important updates to healthcare insurance enrollment for 2026. Bethany explains what patients and caregivers need to know about changes to the Healthcare Marketplace and Medicare, how to avoid falling into medical debt, and the resources available to help you make informed decisions.

                                        Whether you’re reviewing employer coverage, Marketplace plans, or Medicare options, this episode will help you prepare with confidence.

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Medical Debt Case Management (help choosing the right plan)
                                        • How Do I? Insurance video series
                                        • Healthcare.gov (Marketplace open enrollment)
                                        • Medicare.gov (Medicare open enrollment)
                                        • SHIP (State Health Insurance Plan)
                                        • Get Involved: Renewing Enhanced Premium Tax Credits
                                        • Advocacy and Public Policy
                                        • State Marketplaces
                                        • Open Enrollment Information
                                        • Additional LLS Support Resources: 

                                          • Free Nutrition Consultations
                                          • Information Specialists 
                                          • Free telephone/web patient programs 
                                          • Clinical Trial Support Center
                                          • Free booklets 
                                          • Financial support
                                          • Young Adult Resources
                                          • Support groups 
                                          • Survivorship Workbook
                                          • Community
                                          • Caregiver support 
                                          • Caregiver WorkbookMental Health Resources
                                          • The post Health Coverage for 2026 and Protecting Yourself from Medical Debt first appeared on The Bloodline with Blood Cancer United Podcast.

                                            36 min

                                          About Survivorship - The Bloodline with Blood Cancer United Podcast

                                          From the publisher's feed

                                          A podcast for patients and caregivers