The CF Together Podcast

In this episode in the Living Longer series, Nardia, Jade and Louisa come together to share their lived experiences of living longer with cystic fibrosis(CF), with a focus on nutrition and exercise. They speak honestly about what has changed over time, what’s helped (and what hasn’t), and how their relationship with food, movement, and their bodies has evolved across different stages of life.

Through personal stories and reflection, they explore the practical and emotional realities of sustaining health, adapting routines, and finding balance all while navigating the complexities of CF, Transplant and CF Related Diabetes (CFRD). This episode centres real voices from the community, offering reassurance, insight, and connection for anyone figuring out what living longer with CF looks like for them.

In this honest and informative episode of the CF Together Podcast, Jade and Louisa share their lived experiences of CF-related diabetes (CFRD). They speak openly about diagnosis, daily management, and the challenges of balancing blood sugars alongside the already complex realities of living with cystic fibrosis.

Through personal stories and reflection, Jade and Louisa explore the physical and emotional impacts of CFRD, how it affects identity and independence, and what they wish they’d known earlier. This episode offers reassurance, practical insight, and a strong sense of connection for anyone navigating CFRD or supporting someone who is. A reminder that lived experience matters, and that no one has to navigate CFRD alone.

In this honest and informative episode of the CF Together Podcast, Jade and Louisa share their lived experiences of CF-related diabetes (CFRD). They speak openly about diagnosis, daily management, and the challenges of balancing blood sugars alongside the already complex realities of living with cystic fibrosis.

Through personal stories and reflection, Jade and Louisa explore the physical and emotional impacts of CFRD, how it affects identity and independence, and what they wish they’d known earlier. This episode offers reassurance, practical insight, and a strong sense of connection for anyone navigating CFRD or supporting someone who is. A powerful reminder that lived experience matters, and that no one has to navigate CFRD alone.

The views, experiences or comments shared in these stories are not medical advice and may not reflect opinions or beliefs of CF Together. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health. If you need any support, contact the National CF Support Line on 1300 CF HELP (23 4357).

In this moving episode of the CF Together Podcast, Nardia shares her experience of cancer with honesty, courage, and deep reflection. She speaks openly about diagnosis, treatment, and the emotional toll cancer can take especially when navigating it alongside other health challenges.

Through her story, Nardia explores resilience, vulnerability, and the importance of support, while offering insight into how cancer reshapes identity, priorities, and everyday life. This episode creates space for understanding, compassion, and connection, and will resonate with anyone affected by cancer, whether personally or through someone they love.

Living longer with cystic fibrosis (CF) means navigating life stages that weren’t always part of the conversation including menopause. In this episode of Living Longer with CF, Nardia, Louisa and Jade share their lived experiences of menopause, speaking openly about the symptoms they faced, the impact on their bodies, and how they’ve managed this transition alongside CF.

Through honest reflection and shared wisdom, this conversation sheds light on an often overlooked topic, offering reassurance, validation and practical insights for others walking a similar path. Whether you’re experiencing menopause now, approaching it, or supporting someone who is, this episode creates space for understanding and reassurance.

In this insightful episode, Nardia, Jade and Louisa sit down to unpack the complex, emotional, and deeply personal journey of transplant while living with cystic fibrosis. They discuss what it’s really like to navigate the decision-making process, the hope and uncertainty that come with waiting, and the life-changing reality of receiving a transplant.

With honesty and heart, they explore the physical, emotional, and relational impacts of transplant, the gratitude and grief that often coexist, and the importance of support throughout every stage. Their conversation offers clarity, comfort, and connection for anyone wanting to better understand the transplant pathway within the CF community.

This episode is an empowering reminder that every transplant story is unique and that sharing these experiences helps us all feel less alone.

If you’re interested in learning more about transplant through the lived experiences of our community, you can read additional stories here

Catherines Story

Chris's Story

Emmanuelle's Story

The views, experiences or comments shared in these stories are not medical advice and may not reflect opinions or beliefs of CF Together. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health. If you need any support, contact the National CF Support Line on 1300 CF HELP (23 4357). 

⚠️ Trigger Warning:

This episode discusses themes of death, dying well, and end-of-life planning within the context of cystic fibrosis. These conversations can be deeply emotional and may be difficult for some listeners. Please take care while listening and pause or step away if you need to.

In this powerful episode of the CF Together Podcast, Nardia, Jade and Louisa open up an honest, compassionate conversation about what it means to die well while living with cystic fibrosis. Together, they explore the importance of planning ahead, communicating wishes, finding comfort, and prioritising dignity and choice. With vulnerability and wisdom, they share personal reflections, fears, and practical insights along with the unexpected sense of peace that can come from speaking openly about end-of-life care.

This episode gently encourages listeners to move toward conversations many avoid, helping us understand how talking about dying can shape the way we live, love, and support each other through the realities of CF.

The views, experiences or comments shared in these stories are not medical advice and may not reflect opinions or beliefs of CF Together. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health. If you need any support, contact the National CF Support Line on 1300 CF HELP (23 4357). 

In this episode, we meet Kaitlyn, a forensic professional, devoted mum to 20-month-old Cooper, and someone living with cystic fibrosis. Kaitlyn opens up about the realities of juggling a demanding career, motherhood, and her health sharing honest reflections on “mum guilt,” resilience, and redefining what balance really looks like. Her story is a powerful reminder that living with CF doesn’t mean slowing down it means finding new ways to thrive.