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In this episode, host Jill Mastroianni continues her conversation with Kristen Lewis, a special needs estate planning attorney. They explore how to build the right team of professionals to support your child’s future. From trustees to life care planners, disability care managers, and legal guardians, they discuss who should be on your team and how to choose the right people for these critical roles.
Kristen also shares key mistakes to avoid—such as disinheriting a child with special needs—and explains how tools like special needs trusts and ABLE accounts fit into a well-rounded planning strategy. Whether you're just getting started or refining an existing plan, this episode will give you actionable steps to help you move forward with confidence.
What You’ll Learn in This Episode:
Resources & Links:
Find a Special Needs Estate Planning Attorney: Special Needs Alliance
ABLE Account Information: ABLE National Resource Center
Kristen Lewis’ Resources: Estate Planning for Families with Special Needs; Planning Challenges for Families with Special Needs; What Can a Care Manager Do for Me?
Caregiver Important Information Sheet
Contact Kristen Lewis: [email protected]
Connect with Jill:
Have Questions about Special Needs Estate Planning?
Special needs estate planning is complicated, and it’s normal to need to hear this information more than once! If you have questions, email me at [email protected]. If enough people ask, Kristen and I may do a follow-up episode to clarify key points.
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If this episode was helpful, please share it with someone who could benefit. Follow The Death Readiness Podcast on Apple Podcasts, Spotify, YouTube, or wherever you listen.
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
In this episode, Jill welcomes Kristen Lewis, a nationally recognized special needs estate planning attorney, to unpack the critical legal and financial steps families should take to secure the future of a loved one with special needs. They explore common misconceptions, how traditional estate planning often fails these families, and why comprehensive special needs planning requires much more than just drafting a trust.
This is Part 1 of a two-part conversation, diving deep into government benefits, asset limits, trust types, and common pitfalls. Whether you’re a parent, grandparent, or caregiver, this episode is packed with essential guidance to help you plan with confidence.
Topics Discussed
Government Benefits
Essential Trust Types Explained
Common Mistakes & Misconceptions
Articles & References
Questions about special needs estate planning?
Email Jill at [email protected]
If she notices a lot of the same questions, she and Kristen will record a follow-up episode to answer these popular questions.
Subscribe to receive news and updates.
Programming Note: The Death Readiness Podcast is moving to an every-other-Friday release schedule to bring you thoughtful, high-quality content in a sustainable way.
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
Host Jill Mastroianni sits down with her father, Carmen Mastroianni, to discuss his journey raising her older brother, Dan, who was born with Down syndrome in 1977. Through personal stories and reflections, Carmen shares the challenges, triumphs, and advocacy efforts that shaped their family’s experience, from navigating early medical uncertainties to ensuring Dan’s inclusion in school, sports, and community life.
Jill and her father discuss how societal attitudes toward children with special needs have evolved over the decades and the crucial role of advocacy in securing opportunities for Dan. They highlight the importance of inclusion, the impact of strong support networks, and the ways Dan’s own resilience shaped his life. You’ll also hear insights from Dan himself, as Jill includes clips from a special interview in which he shares his thoughts on his life, independence, and how he views his Down syndrome diagnosis.
Beyond the personal journey, the conversation also explores long-term planning for individuals with special needs, including Dan’s decision to transition into a group home, the financial and legal considerations of special needs trusts, and how families can prepare for the future of their loved ones.
This episode is a moving and informative discussion on love, advocacy, and the responsibilities that come with ensuring a fulfilling and secure future for family members with special needs. Whether you are a parent, sibling, or community member, this conversation offers valuable lessons on inclusion, resilience, and planning for the road ahead.
Together, Jill and Carmen discuss:
Resources & Links:
Center for Disability Services: Residential Services
Center for Disability Services
314 South Manning Blvd.
Albany, NY 12208
518-437-5700
The Center for Disability Services is a nonprofit organization in New York that provides comprehensive support and services for individuals with disabilities. The Center played a crucial role in securing supportive housing and care for Dan. Through its commitment to inclusion and individualized care, the Center continues to provide essential resources that empower individuals with disabilities to lead fulfilling lives.
Gerald B. Healy, MD, FACS was an ear, nose, and throat specialist at Children’s Hospital in Boston who played a critical role in saving Dan’s life. Dan suffered from severe respiratory issues as a toddler—issues that local doctors were unable to diagnose. Dr. Healy identified that Dan’s airway was dangerously small due to enlarged tonsils and adenoids and recommended immediate surgery.
Kids Like These is a 1987 TV movie that tells the story of a couple who has a baby with Down syndrome. The script was co-written by Emily Perl Kingsley, a well-known advocate for individuals with disabilities, along with Allan Sloane. Kingsley, whose own son, Jason Kingsley, has Down syndrome, infused the film with real-life experiences to highlight the struggles and triumphs of parenting a child with special needs.
One notable detail from the movie was inspired by Dan’s mother, who once shared a story with Emily Perl Kingsley about Dan being denied a library card because he couldn’t sign his name. This real-life event was later referenced in the film, illustrating the systemic barriers faced by individuals with disabilities and the importance of advocacy.
Connect with Jill:
Did you enjoy this episode? Share it with someone you care about.
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
What happens after someone passes away? Who handles the logistics, financial matters, and legal steps? In this episode, Jill speaks with Mollie Lacher, a leader in the after-loss services industry, about the often-overlooked challenges of estate administration and how professionals can help families navigate these responsibilities.
Mollie shares her personal journey from project management to estate administration, sparked by her own experiences after the deaths of her father and brother-in-law. She explains how after-loss professionals provide essential support to grieving families and executors.
Together, Jill and Mollie discuss:
Whether you’ve been named an executor or just want to understand what happens after a loss, this episode provides practical advice and insights to help you navigate the process.
Resources & Links:
Connect with Jill:
Did you enjoy this episode? Share it with someone you care about.
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
Taxes can be confusing, but they don’t have to be terrifying. In this solo episode, Jill Mastroianni breaks down estate, inheritance, and gift taxes, helping you separate fact from fiction. Will estate taxes impact your family? Probably not. And what’s the deal with gifting limits? Jill walks you through the history, the myths, and what really matters when it comes to taxes and death readiness.
What You’ll Learn in This Episode:
Show Notes & Resources:
Taxes might not be fun, but knowledge is power. Listen in as Jill simplifies these complex topics and helps you remove one more worry from your list.
Connect with Jill:
Support the Podcast
Podcast editing provided by JAG in Detroit Podcasts
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
In this episode of The Death Readiness Podcast, Jill is joined by Megan Malick, founder of A New Path, grief and after-loss educator, speaker, and author. Megan shares insights on navigating the complexities of loss, discussing why conversations about death readiness are so difficult, and offering practical steps to approach these conversations with loved ones. She also introduces her new book, A New Path: A Practical Workbook and Planner for the First Year of Grief and Settling Your Person’s Affairs, which serves as a compassionate guide through the emotional and logistical challenges of administering a loved one’s estate after a loss.
What You'll Learn in This Episode:
Practical Takeaways
Resources Mentioned
Connect with Megan Malick
Connect with Jill & Death Readiness
Support the Podcast
Podcast editing provided by JAG in Detroit Podcasts
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
In this episode, Jill is joined by podcast expert Jon Gay, who shares a personal probate challenge his family faced. Together, they dive deep into the complexities of probate, what happens when estates aren't settled properly, and why planning ahead is crucial. Jill provides practical advice on how to avoid probate pitfalls, including the importance of professional guidance, understanding asset ownership, and ensuring your wishes are properly documented. Whether you're just starting your estate planning journey or looking to refine it, this episode offers valuable insights to help you take meaningful steps toward securing your legacy.
In this episode, we discuss:
Resources Mentioned:
Contact the host, Jill Mastroianni:
Contact today’s co-host, Jon Gay:
Practical Takeaway:
Start small—gather information about your assets and how they are titled. Even filling in partial details can make a big difference for your loved ones in the future.
Stay Connected:
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
In this heartfelt episode, Jill welcomes Julie Ulrich, founder of Organized Legacy, to explore the importance of preserving family stories and legacies before they're lost. Together, they discuss the challenges and emotional rewards of navigating loss, clearing out a loved one's belongings, and uncovering meaningful treasures—both physical and intangible.
Julie shares her personal journey, including how she found her grandmother’s Pearl Harbor diary while clearing out her father’s home. This discovery sparked an investigation into her family history, revealing unexpected connections. Jill and Julie also emphasize the value of storytelling while loved ones are still here, offering tips on engaging in these conversations now to avoid regret later.
Key takeaways include:
Julie also discusses her nonprofit, SilverTree Seniors, which provides gifts and support to isolated and low-income seniors, and how small actions can make a big impact on a forgotten population.
Mentioned in this Episode:
Connect with Julie Ulrich: organizedlegacy.com
Support the Podcast:
If you found this episode valuable, share it with a loved one and follow The Death Readiness Podcast on Apple Podcasts, Spotify, YouTube or wherever you listened to this episode. Together, let’s make conversations about death readiness empowering and impactful.
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
Welcome to the very first episode of The Death Readiness Podcast! In this debut, host Jill Mastroianni—an experienced attorney and death readiness advocate—dives into what it truly means to be prepared for the inevitable.
This episode covers:
This isn’t about fear—it’s about empowerment, clarity, and leaving a legacy of love and support. Jill explains how small, manageable steps can make a world of difference and offers insights into what you can expect in future episodes.
Actionable Takeaway: Don’t wait! Take your first step toward readiness by setting up your Medical ID or downloading Jill’s free emergency medical information form.
Let’s normalize the conversation around death, reduce fear, and make life better for ourselves and those we love.
Don’t forget to follow for free on Apple podcasts, Spotify, YouTube or wherever you're listening right now.
iPhone Medical ID Tutorial
Emergency Medical Information Form
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
Welcome to The Death Readiness Podcast, hosted by Jill Mastroianni, an attorney with more than a decade of experience specializing in trusts and estates. In this podcast, Jill makes death readiness approachable, understandable, and empowering for individuals and families.
Navigating the legal and emotional complexities of life and death can feel overwhelming. How do you find a trustworthy attorney? How do you ensure your plans stay up to date as life changes? Together, we’ll break down these challenges step by step—no law degree or financial background required.
Each episode will provide practical advice, real stories, and actionable steps to simplify the death readiness process. From avoiding common pitfalls (like outdated beneficiary designations) to revisiting important decisions over time, this podcast will help you gain peace of mind knowing your wishes will be honored and your legacy protected.
Death readiness is about more than just legal documents—it’s about preserving your values, stories, and lessons for future generations. Join us as we take small, manageable steps to prepare for the future, ensuring clarity and confidence for yourself and your loved ones.
Follow us for free on Apple Podcasts, Spotify, YouTube, or wherever you’re listening right now.
Let’s demystify death readiness together!
This podcast provides estate planning guidance for women and discusses real, practical issues, from caregiving, pre-planning a funeral, how to avoid probate using beneficiary designations, planning for individuals with special needs (and special needs trusts), whether you need a professional fiduciary (trustee or executor), how the estate tax works and how to preserve your legacy.
Tuesday Triage episodes answer questions from listeners like you, from powers of attorney, healthcare advance directives (and whether they work when you’re pregnant), what a Last Will and Testament really is, whether you need a trust, how Medicaid works and how to have senior and elder care conversations and how to care for aging parents.
Disclaimer: This podcast and all related content are for educational purposes only and do not constitute legal advice. No attorney-client relationship is established here. Use of this information without careful analysis and review by your attorney, CPA, and/or financial advisor may cause serious adverse consequences. For legal guidance tailored to your unique situation, consult with a licensed attorney in your state.
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