The FND Podcast

Happy New year everyone on this episode we recap what happened in 2021 for the podcast and recapping where everyone was before the break. Here’s to starting fresh for 2022. 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

 On this episode of the Deb and Detty show we are talking about Christmas and surviving Christmas with FND. Stay Safe, be kind to yourself and have a great Christmas. Xo

Sensory shopping in westfield

https://www.westfield.com.au/story/5wfhHMZU7Krj7vBpM646rt/sensory-friendly-services

quiet hour in coles

https://www.coles.com.au/about-coles/community/accessibility/quiet-hour

Sensory santa

https://www.hit.com.au/story/westfield-is-offering-sensitive-santa-photo-sessions-for-children-with-sensory-challenges-144809

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we catch up with Maggie and life as well as life with FND and disability. But there is one issue that needs to be cleared up that has been circulating in the media: that TIK TOK has been causing tics especially functional tics. Others with tics also have been spreading misinformation about functional tics. Let’s set the record straight : it’s not behavioural or voluntary. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative

Recommendations:

This is one of the best shows to watch ! Fall I love with these characters. When I flare up apparently I sound like Moria! Maggie you have to watch it you can watch the series on Netflix . Schitts Creek: click below to watch the preview

https://youtu.be/W0uWS6CnC2o

The IT crowd is another great show to watch check it out! 
https://youtu.be/MwwTfkXk7U0

it’s a bit rude a bit funny but was mentioned : little britain

https://youtu.be/9mACoKL2uoM

We talk about the TIK TOK articles around 25 minutes mark.

Tik Tok articles mentioned:

Australian doctors noticed a strange trend during the pandemic teen girls suffer

https://www.facebook.com/127938220603/posts/australian-doctors-noticed-a-strange-trend-during-the-pandemic-teen-girls-suffer/10166307328635604/

‘Why are teen girls in Australia developing Tics

https://www.abc.net.au/triplej/programs/hack/why-are-teen-girls-in-australia-developing-tics/13618744

Is TIkTok causing Tics in Teen Girls ? What parents need to know

https://www.google.com.au/amp/s/health.clevelandclinic.org/tiktok-causing-tics-in-teen-girls/amp/

TikTok tics are a symptom of another bigger problem

 https://www.google.com.au/amp/s/www.theverge.com/platform/amp/2021/11/12/22772157/tiktok-tics-suggestible-distress-teens

Functional Tics on neurosymptoms 

https://www.neurosymptoms.org/en_GB/symptoms/fnd-symptoms/functional-tics/

The diagram is there with functional tics and Tourette’s

Ndis issues at the moment :

https://www.theguardian.com/australia-news/2021/dec/11/legal-challenges-against-ndia-decisions-more-than-triple-in-five-months

ive always loved this article on Tara Moss as she advocates ambulatory wheelchair using.

https://au.news.yahoo.com/tara-moss-wheelchair-bound-halloween-costume-170107392.html

if you want to catch up on Maggies sensory processing Series:

Sensory processing episode 1: 

https://thefndpodcast.simplecast.com/episodes/maggies-corner-lets-talk-sensory-processing-and-fnd

Sensory processing episode 2:

https://thefndpodcast.simplecast.com/episodes/maggies-corner-sensory-processing-part-2

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 
https://www.tomplender.com/

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we catch up with Deb and Maggie in regards to Life and FND in general.  It’s lovely to talk to these lovely ladies together xo 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 
https://www.tomplender.com/

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we talk Games , online games video games and a little about the brain! Not many people would know that Jess absolutely loves with a passion! It turns out though that playing games and video games could be beneficial and not just for entertainment. We also talk about anger management and yes there are break rooms in australia and more.. Follow Jess on Instagram @functionallyjess
 

Information to check out

What games should you play for better brain health?

https://www.beingpatient.com/games-brain-health/

The psychological benefits of video games

https://checkpointorg.com/games-for-health/

Gaming the future of Neuro Rehab?

https://klintneuro.com.au/gaming-the-future-of-neurological-rehab/

Video games help treat neurological problems ; a pioneering example for combating lazy eye

https://neuronup.us/neuroscience/video-games-help-treat-neurological-problems-a-pioneering-example-for-combating-lazy-eye/

Video Gaming could stimulate six of the brains cognitive functions

https://www.krysalisconsultancy.co.uk/resources/item/video-gaming-could-stimulate-six-of-the-brains-cognitive-functions

If you can’t play and you’re interested in seeing some games you can watch along the rad brad on YouTube as he plays along https://youtu.be/BS5vuKx1cA8 check it out

Not suggested if you want to start going into the gaming for the first time ever;

Doom. Especially doom 7

Zombie apocalypse games

Resident evil

Anything that will shock your system too much

Game mentions :

Brain games https://www.goodnewsnetwork.org/neurologists-release-online-brain-training-games-proven-to-work/

Animal crossing https://www.animal-crossing.com/new-horizons/

Soduko https://sudoku.com.au

Spiritfarer https://youtu.be/mw5yXFmJDJU

https://www.nintendo.com/games/detail/spiritfarer-switch/

Minecraft: https://education.minecraft.net/en-us/homepage

Gone home https://gonehome.com

Zelda https://www.zelda.com

Farming simulation https://farming-simulator.com/about.php

Jess’s all time favourite game

Red dead redemption https://youtu.be/Ou63yoJ52ag

https://reddead.fandom.com/wiki/Red_Dead_Redemption

Reminiscing about the childhood games

Mario brothers https://youtu.be/rLl9XBg7wSs

Sonic the hedgehog https://youtu.be/MLfYa47XliM

Duck hunt https://youtu.be/fQRtvktq_Hg

Halo https://youtu.be/iTR1VJoJZVQ

Always talk to your gp or specialists if you have any concerns about playing video games

How to play safely : https://support.xbox.com/en-AU/help/games-apps/game-setup-and-play/windows-10-healthy-gaming-guide

Ergonomics and gaming

Pc https://www.pcgamer.com/au/a-guide-to-pc-gaming-ergonomics/

Oblivion  soundtrack : Jeremy soule check it out

https://open.spotify.com/user/31ora455qfq4v7ax7s223bs2pd34/playlist/1fckwqd3KvTBdQvgOSrhkG?si=TV2HJuk2RsCXrLLY1LdksA

Anger management

10 tips on how to manage anger by SANE

https://www.sane.org/information-stories/the-sane-blog/managing-symptoms/10-tips-to-manage-anger

Reachout is an Online resource used by parents and young adults alike for mental health ; 8 ways to deal with anger 

https://au.reachout.com/articles/8-ways-to-deal-with-anger 

Men’s health anger management stratgies. 

https://mensline.org.au/how-to-deal-with-anger/understanding-anger-and-anger management-strategies/

There are breakout rooms in Australia! Where you can alieviate Anger stress in a relatively safe environ consult advice first if you have any concerns before considering but there is break rooms !

Break rooms in Melbourne

https://thebreakroom.com.au

Sydney

Smash and splash

https://www.smashsplash.com.au

THe rage cage in Brisbane

https://www.ragecagesmashroom.com.a

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 
https://www.tomplender.com/

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

Happy birthday Maggie! On this episode we continue discussing Sensory Processing and sensory mapping how it can help identify triggers and essentially help you identify your own characteristics of your own unique FND. We talk FND we talk life with our lovely Maggie on Maggies Corner. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative

Recommendations:

Jimmy Rees Brighton ladies

 heck out these posh ladies but seriously this guy hilarious!

https://youtu.be/oUN-9BhDPOs

Barefoot investor with Scott pape he’s a legend and has helped so many financially get back on their feet

https://www.barefootinvestor.com/

The save spend give money box at big W

https://www.bigw.com.au/product/home-interiors-spend-save-give-money-box/p/127874

And sensory processing starts at 9 minutes 

Sensory Processing

If you missed the Sensory Processing Part 1 here is the link click below 

https://thefndpodcast.simplecast.com/episodes/maggies-corner-lets-talk-sensory-processing-and-fnd

With permission from Katherine Gill I’m able to share the Sensory processing PDF Thankyou Katherine Gill and FND Australian Support services

https://www.dropbox.com/s/3ykab0fiiaojd32/SPD-in-FND-Handout.pdf?dl=0

checkout FND australia support services sensory processing  workshop 

https://youtu.be/FKXUWDlf-UE
 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we go back in time where I’ve found this beautiful recording with Jake Rach and Steph we talk about Rach’s walk , life with covid with a Steph , and FND, as well as life. It was really lovely though to listen to these brilliant FNDers and hear them talk, laugh, their points of views and just be themselves.follow him on Instagram on @punkchef41 and his podcast it’s me it’s me it’s fnd & Facebook page and Instagram FND NEAD & US. Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner

Recommendations:

Jackie the Ripper

Almost 150 years after Jack the Ripper, there's a new serial killer terrorising East London. From the creators of hit mockumentary podcast, The Offensive, Jackie the Ripper is a laugh-out loud, timely comedy-drama retelling of the infamous Whitechapel killings of the 19th century.

But in this modern twist, men are the victims of dark, sexually aggressive murders. The kind that leave them penis-less with their testicles left in the bins of the Costa Coffee next door.

Behind all the bloodshed is a woman, Jackie. To be precise, a ruthless serial killer of a woman ready to strike again, and again, and again, and one more time after that, without a single ounce of remorse and ready to share it all on social media.

And the task of finding her all rests on Lead Detective of Scotland Yard, esteemed veteran of Whitechapel, extremely paranoid, slightly clueless, and definitively over-caffeinated Frederick Abberline.

Hold onto your bollocks.

https://stak.london/shows/jackie-the-ripper/

Brain Dumping; Jake did a podcast on this 

https://open.spotify.com/episode/58EyhahiBYKPlPQcEx5Aem?si=SPKDVyMjQ0utZ0Q7Nubd2A

Matt Haig: his books are amazing highly recommended

http://www.matthaig.com/

and also FND NEAD and US go check them out to go looking for support and connections and turning a negative mindset to a positive. 

Rach is continuing to do her walk for FND when she can with her friend Skye you can still support her on the go fund me account here :

https://www.gofundme.com/f/5-miles-on-crutches?member=14473415&sharetype=teams&utm_campaign=p_na+share-sheet&utm_medium=social&utm_source=facebook

she will continue her walk https://www.instagram.com/reel/CVe6fBJNbmG/?utm_medium=copy_link

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we catch up with Deb as she talks about her FND, and just talking to her I always come out with something. She is strong, full of wisdom and just all round wonderful and lovely to listen to Thankyou Deb xo 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. 
We are privileged and honoured to be speaking with Tom and we thank him for his time for talking with me on this FND reality. He is amazing and I’m so glad he shared his journey for giving hope to others and letting us know about Professor Edwards and what he’s done for him. Follow this incredibly talented man on his website @ https://www.tomplender.com/ , for his music, his art and writing as well as his Instagram @tplender.

Professor Mark Edwards one of the leading specialists in FND

https://www.stgeorges.nhs.uk/people/mark-edwards/

Here he talks about Functional Dystonia 

https://youtu.be/ir2cQOjOZKU

And here he talks about FND

https://youtu.be/IaPnxYnBiyk

Introducing Professor Lorimer Moseley from university of South Australia he’s a clinical neuro science research physiotherapist

His experience with pain

https://youtu.be/Sjes9CuN6Ko

Pain explained  :

https://youtu.be/jH_Ut2hhAfU

and finally Toms own articles !

putting FND on the Map

http://nihealthcare.com/putting-it-on-the-map/

to find out more articles that Tom has written check out his website! 

Trigger warning as promised I did mention in this my fnd reality I would link the episode where I was flaring with Maggie on this podcast this is the link below to explain what happens in a flare for me. It does feature me in a real flare with Maggies it may be distressing for listeners.

https://thefndpodcast.simplecast.com/episodes/maggies-corner-trigger-warning-real-life-flares

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

As FND has hit me hard and flares have found me a lot nowadays I’ve been catching up on my editing and found this beautiful gem of an interview I did a while back with Kerri. It came at a great time as some of us have been struggling mentally and FND does this too. Whenever I’ve looked to inspirational people Kerri has definitely been one of them. So let’s listen to Kerri and catch up with her. 
Here are some of her songs 

waiting on the other side 

https://open.spotify.com/track/6wtTinp4Q87xLtUduqwUQg?si=GARrlC4GRhSshtjKMluhWQ

Outrun the wind 

https://open.spotify.com/track/1OxCmvy1ORURbRskk0mclO?si=mNRGFmOdTra_elSxkp5ghA

Exactly how I feel 

https://open.spotify.com/track/0cucSoR9wdj7KgY7r9jb9d?si=UBQgTWRhSa6ui-amE-wJ9g

what a voice !

Kerri’s music can be found on this website, you can view her videos and purchase her music too: https://www.kerimcinerney.com/

our Spotify playlist has some of Kerris songs to listen to! Check it out

ps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

Australian Women in music awards that Kerri is nominated in : Go Kerri we are so proud of you!

https://womeninmusicawards.com.au/

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest