The Good The Bad and The Ugly

Lisa – Single parent of a child with fragile X syndrome, ADHD, sensory processing disorder, autism with PDA. Lisa talks about her struggles trying to get the correct diagnosis for her child Iggy, from the NHS to going to the private sector and trying to navigate the system, feeling isolated for two years. Lisa talks about how parents of children with additional needs can go through a grieving process and how this has, and still does affect her, how she found support in unusual places and about learning through her child.

Lisa is passionate about supporting parents who are dedicated in supporting their children with additional needs and has been facilitating courses for the parents of additional need children for 5 years. She has worked with children and adults with additional needs and they too have been her teachers.

This has lead her to set up Special World Training, where she can teach and share what she has learnt and put into practice, strategies that have helped her create a positive relationship with her child, and which will allow her child to reach his full potential. She has created Special World Training, so as to be able to offer specific courses to help parents with the various needs of their child. They are available as live events and online.

Start or join a conversation on issues raised in this podcast by joining our FB discussion group

30 minutes

Special World Training

Music: https://www.purple-planet.com

Lisa - Single parent of a child with fragile X syndrome, ADHD, sensory processing disorder, autism with PDA. Lisa talks about her struggles trying to get the correct diagnosis for her child Iggy, from the NHS to going to the private sector and trying to navigate the system, feeling isolated for two years. Lisa talks about how parents of children with additional needs can go through a grieving process and how this has, and still does affect her, how she found support in unusual places and about learning through her child.

Lisa is passionate about supporting parents who are dedicated in supporting their children with additional needs and has been facilitating courses for the parents of additional need children for 5 years. She has worked with children and adults with additional needs and they too have been her teachers.

This has lead her to set up Special World Training, where she can teach and share what she has learnt and put into practice, strategies that have helped her create a positive relationship with her child, and which will allow her child to reach his full potential. She has created Special World Training, so as to be able to offer specific courses to help parents with the various needs of their child. They are available as live events and online.

Start or join a conversation on issues raised in this podcast by joining our FB discussion group

30 minutes

Special World Training

Music: https://www.purple-planet.com

Craig is the father to 22 year old twins Stuart and Mathew, who both have Fragile X syndrome. Craig talks about Project Search, a fantastic programme which supports young people into adulthood. It offers a variety of independent living options, work experience being an option which both boys decided to do after attending a college to learn independent living skills, including travel training.

Craig talks about his love of football and how pleased he is that both the boys share this love and now to go to football together. Craig supports the twins with their Twitter account which helps with Fragile X awareness

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Jenny has two children, her eldest has a diagnosis of Tourette’s and OCD and her youngest is autistic. Jenny talks about the school resisting supporting her with EHCP’s and how she resents the constant fight to get her children’s needs met and the impact this has had on her own mental health, as well as her children’s.

Joseph was born with Choanal Atresia, a rare condition in which nasal passages are blocked by bone or tissue. Jenny talks about being better equipped to fight for her youngest child after empowering herself with knowledge about SEND law. Jenny explains she wanted to set up Action 4 SEND mainly out of frustration and isolation, both for herself and her child.

http://action4send.co.uk/

https://www.facebook.com/A4SEND/

https://twitter.com/uk_send

Marta talks about the challenging and very worrying side to having an autistic child who struggles with eating. We talk about ARFID (Avoidant, Restrictive, Food, Intake Disorder}, and how her child has still not been given this diagnosis even though she has seen many dieticians over the years. Marta also talks about how beneficial having a SEN dentist for her child has been.

For more infomation

https://www.arfidawarenessuk.org/

https://www.nationaleatingdisorders.org/learn/by-eating-disorder/arfid

Cristina talks about Max, her autistic child, who is non-verbal and has sensory challenges. She talks about the challenges of having to move house, only ten days after her first major brain surgery and how this how this has affected Max, about facing more surgery and her concerns about the future for Max.  We also talk about school during Covid, being thankful we have the option but the challenges our children face with all the changes, about our social media groups on being open to all disabilities and additional needs, understanding that many children, including our own have dual diagnosis

Cristina's Facebook groups

https://www.facebook.com/SENFunLondon/

https://www.facebook.com/SENFunEssex/

Sophie is the parent of two boys, her eldest son is neuro-typical and Edward is autistic. Sophie writes a blog, Mummy of a Square Peg, about life experiences with Edward. Sophie talks about her love of camping and why she believes camping can be a wonderful experience for families with autistic children if the correct planning and preparation are put in place first. She also talks about Edward’s experience being in a mainstream school before accepting that Edward would be better placed in a special educational setting.

Sophie's blog

https://mummyofasquarepeg.co.uk/

Mummy of a Square Peg Facebook page

https://www.facebook.com/mummyofasquarepeg/

Stella Waterhouse is an educator and autism awareness expert. She talks about her fascination with autism, from in the ‘60’s when she worked with three very different children, who all had the diagnosis of autism.

Stella wanted to know more and began researching autism. She shares her personal and professional experiences and her understanding of the autism spectrum and the many challenges that people with autism and their families face in their daily lives. Her goal is to develop resources that will offer practical advice, insight and solutions to parents and teachers so that the child's life is enriched and supported and family life is enhanced.

Stella has written several books about autism and has set up a travel business especially with the hopes of creating easier and more enjoyable holiday experiences for SEND families..

http://www.autismdecoded.com/

https://kolokotravel.com/

https://kolokodirect.co.uk/

https://oasiscafe.co.uk/

Start or join a conversation on issues raised in this podcast by joining our FB discussion group

Stella Waterhouse is an educator and autism awareness expert. She talks about her fascination with autism, from in the ‘60’s when she worked with three very different children, who all had the diagnosis of autism.

Stella wanted to know more and began researching autism. She shares her personal and professional experiences and her understanding of the autism spectrum and the many challenges that people with autism and their families face in their daily lives. Her goal is to develop resources that will offer practical advice, insight and solutions to parents and teachers so that the child’s life is enriched and supported and family life is enhanced.

Stella has written several books about autism and has set up a travel business especially with the hopes of creating easier and more enjoyable holiday experiences for SEND families..

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http://www.autismdecoded.com/

https://kolokotravel.com/

https://kolokodirect.co.uk/

https://oasiscafe.co.uk/

https://www.amazon.co.uk/gp/product/B079W32WJW/ref=dbs_a_def_rwt_hsch_vapi_tkin_p1_i3

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Start or join a conversation on issues raised in this podcast by joining our FB discussion group

Music: https://www.purple-planet.com

Rebecca is American and has two children. We share our experiences of the challenges we faced getting the correct diagnosis for our children and how important it is to get professionals who understand and support the whole family at this challenging time. Rebecca talks about her son Jacob getting the diagnosis of Sensory Processing Differences only, while many of us in the UK only tend to hear about SPD as a dual diagnosis, alongside autism, Fragile X syndrome or Down Syndrome amongst others.

Rebecca talks about choosing to home school both her children and how this works for her family, about creating a home schooling community where families can meet up and socialise. Rebecca talks about writing a blog on her family’s experience of having a child with SPD, the strategies that have worked and how this has led to her putting it all together in her brilliant book- Sensational Kids, Sensational Families

https://sensationalkidssensationalfamilies.com/

https://www.facebook.com/groups/SensationalKidsSensationalFamilies/