End of life option advocate Dan Diaz is sharing the story of his wife Brittany Maynard and her pursuit  of a gentle death. Diagnosed at age 29 with a terminal brain tumor, Brittany chose to move 600 miles to a state that allowed for death with dignity, utilizing Medical Aid in Dying.  In this powerful interview, Dan describes the impact of her life and death on compassionate death choices and legislation.  

Since Brittany’s death in 2014, Medical Aid in Dying laws have expanded to eleven states in the U.S.  Dan continues to tell their story, advocating for expansion of death with dignity laws to every state.  We continue to learn from her experience and fierce determination to ensure the kind of death she wanted. 

Connect with Dan Diaz on Facebook

Read more about Brittany Maynard at thebrittanyfund.org

Find more information about Medical Aid in Dying (MAID) at compassionandchoices.org

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook   IG   LinkedIn   Twitter (X)    YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care.  Book a session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website:  theheartofhospice.com

Social media:  Facebook     Twitter    Instagram   LinkedIn

Email:  [email protected]

More podcast episodes:  The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Hospice nurse Beth Cavenaugh helps to clear up confusion around live discharges from hospice services.  Sometimes people on hospice care improve or stabilize, and no longer meet the criteria to receive care from the hospice agency.  The discharge process can be confusing, and it’s important to know the things that need to happen.  Here are a few highlights from this episode:

• Live discharges are initiated by the hospice agency when the patient no longer qualifies.
• Sometimes hospice patients improve because the care has become consistent, or their condition simply gets better.  Their disease process may stabilize. 
• Hospice staff are required to give the patient and caregiver notice of the discharge according to state and federal requirements.
• Discharge planning should ALWAYS happen - the nurse handles the clinical items (medications, equipment, a new healthcare provider/team), and the social worker handles the psychosocial concerns (caregiving assistance, community resources and support). 
• The patient or decision maker has the right to file an appeal if they don’t agree with the discharge from hospice services. 
• The hospice agency is required to continue providing services until the decision about the appeal is received.  
• Here’s a link with information about hospice appeals:   What to Know About Hospice Appeals

Connect with guest host hospice nurse Beth Cavenaugh at bethcavenaugh.com Buy Beth’s book Some Light at the End: Your Bedside Guide for Peaceful Palliative and Hospice Care Buy The Power and Pain of Nursing: Self-Care Practices to Protect and Replenish Compassion.

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook   IG   LinkedIn   Twitter (X)    YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care.  Book a session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website:  theheartofhospice.com

Social media:  Facebook     Twitter    Instagram   LinkedIn

Email:  [email protected]

More podcast episodes:  The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Author and Alzheimer’s caregiver Marianne Scuicco shares her powerful story of caring for her mother and stepdad through dementia diagnosis and end of life. She describes the roller coaster of her caregiving journey, all the ups and downs that her family experienced. After her stepfather was diagnosed with mixed dementia and her mother declined, Marianne and her siblings had to find a balance to ensure they were well cared for. She’s able to say she has very few regrets about her time as a caregiver, feeling she gave her best to the caregiving job. As cohost of the Alz Authors podcast, Marianne continues to support other caregivers dealing with the same challenges. 

Marianne Sciucco is a founder of AlzAuthors.com, the global community of authors writing about Alzheimer’s and dementia from personal experience. It is the most comprehensive, single source in the world for dementia literature curated by former caregivers and authors. Marianne serves as board president, manager, and producer and co-host of their podcast, Untangling Alzheimer’s and Dementia. A registered nurse who cared for hundreds of individuals and families impacted by dementia, she is a former caregiver to her stepfather who had mixed dementia, and her mother who did not have dementia. She is the author of Blue Hydrangeas, an Alzheimer’s love story. 

Connect with Marianne Scuicco, author of Blue Hydrangeas and cohost of the Alz Authors Podcast:

Website: mariannesciucco.com

Website: alzauthors.com

Podcast: alzauthors.co: /podcast

Social Media for Marianne Scuicco: Facebook Instagram LinkedIn Bluesky Threads 

Purchase your copy of Blue Hydrangeas: A Alzheimer’s Love Story

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook  Twitter  Instagram LinkedIn

We’re getting back to the basics of hospice care, sharing information about complaints, when to make them, and what should happen when you do. Hospice Social Worker Lisa Pahl (creator of The Death Deck and End of Life Deck) helps drive this discussion. Here are a few highlights from our discussion: •Patients and/or caregivers have a right to make a complaint.  •There are numerous reasons a complaint might be needed: visits aren’t being made, symptoms aren’t being managed, response time is slow, or the care is out of alignment with the beliefs or needs of the patient. •Care of a hospice patient should never be rough or insensitive - this is always a reason to make a complaint. •If delivery of medications or medical equipment (DME) is very late or doesn’t happen, a complaint should be made. •A complaint can be given directly to the case manager or director/administrator of the agency.  •The hospice agency should immediately investigate, talk to everyone involved, and work to resolve the issue to the satisfaction of the patient or caregiver. •If the hospice agency doesn’t resolve the complaint in a timely manner or to the point the patient/caregiver is satisfied, the complaint can be elevated to the state organization that provides licensure to hospice agencies. It might be the Health and Human Services Department for the state. •The hospice agency is required to furnish the patient/caregiver with contact information about making complaints, including the information for their accrediting organization. (This could be Joint Commission, CHAP, or ACHC). 

Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck     Find The Death Deck on social media: Facebook  IG  LinkedIn

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care.  Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Socialmedia: Facebook  Twitter  Instagram LinkedIn

Drs. Barry Jacobs and Julia Mayer join the podcast for a great conversation about bringing your best to caregiving, reminding us that caregivers don’t have to be perfect.  As authors and clinical psychologists, Barry and Julia support family caregivers, guiding them through the messiness of caring for a loved one.  As a married couple, they’ve had lived experience with caring for their parents and in-laws with Alzheimer’s and dementia.  Dealing with caregiving issues in their personal lives taught them invaluable lessons, which they now share with clients and readers of their books.  

Barry and Julia’s newest book is the “AARP Caregiver Answer Book” -   Purchase your copy at caregiveranswerbook.com

Find the AARP Caregiver Answer Book on the AARP website. 

Connect with Dr. Barry Jacobs and Dr. Julia Mayer on their website:  loveandmeaning.com

Read Barry’s latest blog post “My Care Receiver’s Doctors Don’t Respect My Boundaries” here. 

Find Dr. Barry Jacobs on social media:   Facebook   Twitter (X)   LinkedIn

Find Dr. Julia Mayer on social media:  Instagram   Facebook   Twitter (X)   LinkedIn   Bluesky 

You can find the Approaching Death Support Kit by End of Life Educator Barbara Karnes at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook   IG   LinkedIn   Twitter (X)    YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care.  Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website:  theheartofhospice.com

Social media:  Facebook     Twitter    Instagram   LinkedIn

We’re getting back to the basics of hospice with Hospice Social Worker Lisa Pahl, sharing information about transfers from one hospice agency to another.  It’s really important for patients and their decision makers to know they can transfer to another hospice agency if the care isn’t a good fit.  Hospice team members should be knowledgeable about how transfers work and what needs to be done.  

Here are some things you need to know about transfers: • The patient or decision maker has the right to request a transfer to another hospice agency. • There are several reasons a transfer might happen, including being dissatisfied with the care, personality clashes with the hospice interdisciplinary team, or wanting to be cared for by a friend working for another company. • When the patient or decision maker requests a transfer, the current agency is required to coordinate the transfer with the new agency. • The current agency should provide a report of the care being provided, including the plan of care, list of medications, and a discharge summary.  • Transfers are allowed only once during a benefit (certification) period.  The current agency should make that information available to the patient and caregiver.  

Connect with Lisa Pahl, owner/creator (thedeathdeck.com)  The Death Deck and End of Life Deck  

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook   IG   LinkedIn   Twitter (X)    YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care.  Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn

We’re getting back to the basics of hospice with Hospice Social Worker Lisa Pahl, sharing information about transfers from one hospice agency to another.  It’s really important for patients and their decision makers to know they can transfer to another hospice agency if the care isn’t a good fit.  Hospice team members should be knowledgeable about how transfers work and what needs to be done.  

Here are some things you need to know about transfers: • The patient or decision maker has the right to request a transfer to another hospice agency. • There are several reasons a transfer might happen, including being dissatisfied with the care, personality clashes with the hospice interdisciplinary team, or wanting to be cared for by a friend working for another company. • When the patient or decision maker requests a transfer, the current agency is required to coordinate the transfer with the new agency. • The current agency should provide a report of the care being provided, including the plan of care, list of medications, and a discharge summary.  • Transfers are allowed only once during a benefit (certification) period.  The current agency should make that information available to the patient and caregiver.  

Connect with Lisa Pahl, owner/creator (thedeathdeck.com)  The Death Deck and End of Life Deck  

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook   IG   LinkedIn   Twitter (X)    YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care.  Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn

Elder law attorney Patrick Cawley is equipping dementia caregivers with the essential tools they need for estate planning, including advance care planning for end of life. Patrick guides family members as they navigate the health care system and complicated ways to pay for long-term care for their loved one. He is a certified dementia care consultant, and host of the Dementia Empowered podcast.  Patrick has lived experience with a family member who has Frontotemporal Dementia (FTD), so he knows firsthand what dementia caregivers face. Here are some highlights from this episode:

• Patrick endorses trying care solutions before going straight to legal solutions which might escalate problems and family dynamics. 
• The biggest challenges for dementia caregivers that Patrick sees are financial issues, forming a care team, and complicated or discordant family dynamics.
• Patrick advocates for caregivers to be paid in certain situations, depending on estate taxes and the financial burden on the caregivers. 
• Recording keeping is vitally important; Patrick recommends keeping a paper trail of transactions and healthcare decisions. 

Listen to the Dementia Empowered Podcast here. Connect with Keystone Elder Law here.   Connect with Patrick Cawley on LI Find an Elder Law Attorney in your area at naela.org

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook   IG   LinkedIn   Twitter (X)    YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care.  Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website:  theheartofhospice.com

Social media:  Facebook     Twitter    Instagram   LinkedIn

On-call, after hours, 24/7 services - no matter what you call it, hospice care is available to patients and caregivers every hour of every day. Regardless of the day of the week, whether it’s a holiday, or the office is closed, a member of the hospice team is accessible all the time. Some hospice agencies have answering services or triage teams, but the final result of a call is connection with a nurse. If another discipline is needed, that’s going to be coordinated by the agency. No question or concern is dumb. Hospice agencies offer this service to make sure patients and caregivers feel comfortable in their homes while experiencing the end of a life.  Here are some of the reasons a caregiver or patient might want to contact the hospice team when the office is closed.

• The patient has had a change in condition, and is showing different symptoms.
• Your person (the patient) has died. 
• There’s a question about medications. 
• A piece of critical equipment isn’t working (oxygen, BiPap, electric hospital bed, air mattress or overlay).
• There are spiritual or faith needs, and the chaplain’s (or social worker’s) support is needed.  
• The patient has had a fall and there’s an injury. 

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook  Twitter  Instagram LinkedIn

Email: [email protected]

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Blending aromatherapy and sound bathing into the care of dying patients comes naturally to end of life doula and hospice nurse Carrie Oram. Carrie has witnessed deep, relaxing responses from clients as they experience the vibrations of Tibetan sound bowls. Regardless of diagnosis or disease progression, people who are at the end of their lives become more relaxed during treatments with aromatherapy. The benefits are many - calm, an elevated sense of happiness and wellbeing, comfort, connection with pleasant memories and sensations, even appetite stimulation.   

Carrie integrates her doula work into her work as a hospice nurse, being sure to separate responsibilities that are under her nursing license from her doula tasks. You can find Carrie at angelheartholistics.com. Carrie is the compassionate owner and operator of Angel Heart Holistics, where she combines her extensive background in healthcare with her deep passion for holistic healing. As a hospice nurse with years of experience, Carrie has witnessed firsthand the profound impact that emotional and physical well-being have on a person’s overall quality of life.  

Connect with Carrie on Instagram (@angelheartholistics)

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook  Twitter  Instagram LinkedIn

Email: [email protected]

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].