In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator.  In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980’s.

Here are some highlights of this special episode:

• Barbara thinks she should have been a social worker but her mother talked her into nursing.
• She and her fellow hospice nurses learned how to provide their own self care without really knowing what it was.
• Barbara’s aversion to causing patients any pain or suffering made patient care difficult for her.
• She believes it’s important for hospice leadership to truly understand end of life work, and to have a comprehensive knowledge of hospice care.
• Barbara believes sacred rituals and beautiful memories can be created at the time of death.  

Connect with Barbara Karnes:

Website: bkbooks.com

Blog:  bkbooks.com

Shop her products:  bkbooks.com

Socials:    Facebook     Instagram     LinkedIn     Twitter     Pinterest     YouTube

Email: [email protected]

Thank you to our series sponsor The Death Deck!  

Connect with the End of Life Deck and the Death Deck:

Website:  thedeathdeck.comhttps://thedeathdeck.com/

Shop:  End of Life Deck   Death Deck

Socials for the Death Deck:  Facebook   IG   Twitter (X)

Hospice Navigation Services is here for you.  If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website:  theheartofhospice.com

Email:  [email protected]

More podcast episodes:  The Heart of Hospice Podcast

Death educator Lee Warren believes preparing for death in advance makes a good death possible. 

Over a period of two years, she experienced several deaths in her small community of 125 people, teaching her the best lessons about death as she cared for them.  

Those deaths, and the generous people who experienced them, offered an incredible opportunity for Lee to reweave a more holistic approach to end-of-life than the one generally offered to us in the U.S.  The outcome of stewarding those deaths together as a community,  including after-death care, home funerals, and home burials, was life changing and heart opening for Lee.  She has channeled the wisdom she learned into work as a Death Educator and End-of-Life Preparation Guide.  

Connect with Death Educator and End-of-Life Preparation Guide Lee Warren

Website:  queenofdeath.org/course    reclaimingwisdom.com/about 

Email:  [email protected]

Socials for Lee Warren:   Facebook   IG

Connect with the End of Life Deck and the Death Deck

Website:  thedeathdeck.comhttps://thedeathdeck.com/

Shop:  End of Life Deck   Death Deck

Socials for the Death Deck:  Facebook   IG   Twitter (X)

Hospice Navigation Services is here for you.  If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website:  theheartofhospice.com

Email:  [email protected]

More podcast episodes:  The Heart of Hospice Podcast

Serious illness and caregiving can be isolating. GrandPad’s AI technology keeps seniors safely connected to loved ones. Isaac Lien and his dad Scott co-founded GrandPad to meet the needs they saw in Scott’s mom. Their new AI app Grandie offers audio interaction for the user without requiring a certain format, and even learns the user’s voice and way of speaking. Because GrandPad’s network is private and encrypted, users can share photos or videos and make video calls without worrying about robocalls or spam. No one can be part of a user’s network unless they’re been invited by the family administrator.

GrandPad makes a fantastic holiday gift for older adults, especially those living at a distance from family. Its features include:

• phone calls • video calls • video sharing • internet browning • 911 emergency use • 4G LTE data plan

Watch a webinar to hear more about GrandPad’s features here.  

Interested in purchasing a GrandPad to stay connected with a senior loved one?  

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of high-end scented burial shrouds for the natural funeral industry. Virginia sources a variety of high-quality organic fabrics which are soft to the touch and biodegradable. Fabrics are colored with non-toxic plant dyes and infused with a proprietary plant-based antibacterial formula, which inhibits germ growth and neutralizes malodor. 

The result for families is a comforting, beautiful, aromatic cocoon wrapped around their loved one which will carry them to their final resting place. Shrouds can be part of family-guided death care, green funerals, or human composting. A shroud can even be part of a cremation. According to the Sanctum website, their mission is to enhance the sensory experience of alternative funerals for loved ones while eliminating toxins and pollutants from traditional burial practices.  

You can find the full selection of these Earth-friendly, elegant shrouds at sanctumshrouds.com.

Read more about how Sanctum Shrouds came to be here.

Find Sanctum’s line of shrouds for pets, Moonbeam Pet.

Socials for Sanctum Shrouds:

Facebook Instagram Pinterest. LinkedIn

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry.  #hospice #endoflife #death #dying #caregiver #caregiving

https://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes

Residential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a hospice home, and why she stays in this industry.  

Susan has a passion for serving hospice and palliative care patients and families and has been a pioneer in developing hospice programs throughout Oregon since 1993 when she helped to establish the Asante Hospice in Southern Oregon. Susan went on to pioneer a residential hospice model in Oregon, leading the way with both fundraising and the full building and policy development of Celia's House in Medford, Oregon and Hopewell House in Portland. She is motivated to give patients and their caregivers a greater voice in their end-of-life experience and in facilitating meaningful advanced care planning conversations between patients and families. 

Social media for Susan Hearn

LinkedIn  

Interested in purchasing a GrandPad to stay connected with a senior loved one?  Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!  

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.  

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media:  Facebook   YouTube  IG   TikTok 

Hospice Navigation Services is here for you.  If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

The last conversation you want to have shouldn’t be the last one you do have.  Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we die," to life. She’s the co-founder of the When You Die Project which hosts a resource-rich website, podcast, and documentary trilogy.   

The When You Die Project is here to facilitate a cultural dialogue most often avoided — one that begins at the end. From existential afterlife questions such as “What happens when you die?” to palliative care, and the nuts and bolts of preparing for end of life. If it has to do with death, they’re talking about it.

Award-winning producer, director, and writer Johanna Lunn has contributed to many profoundly thought-provoking programs during her 35 years in filmmaking. In addition to film festival awards, her work has received eight Canadian Screen Award nominations and won three. Her work has been shown around the world.

Join When You Die on Nov. 23, 2024 for a showcase of the 3rd film in the When You Die Trilogy -  Architecture of Death: The Inner World of Dying Screening, followed by a panel discussion and Q&A!

When: Nov. 23 from 4:30 - 7:30 pm PST

Where: Los Angeles Performing Arts Conservatory

Purchase your tickets here. 

Follow When You Die to keep up to date on all future events, receive death-related resources, listen to podcasts, and more!

Website:  www.WhenYouDie.org

Facebook: @whenyoudiecommunity

Twitter:  @whenyoudie_org

Instagram:  whenyoudie_org

YouTube:  @whenyoudie_org

LinkedIn:  https://ca.linkedin.com/company/whenyoudie-org

LinkedIn Profile:  www.linkedin.com/in/johannajlunn

Interested in purchasing a GrandPad to stay connected with a senior loved one?  

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you.  If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to navigate the healthcare system as an advocate, deal with sleep deprivation, and to care for herself along the way.

Rosanne Corcoran is the creator and host of Daughterhood the Podcast.  She is also a Daughterhood Circle leader and their Director of Content.  She cared for her mother through her journey with vascular dementia, starting as a supportive caregiver to an in-home sandwich caregiver for her mother’s final six years.  In each monthly podcast, Rosanne interviews experts in the field, asking questions caregivers want to know the answers to – with topics ranging from dealing with dementia behaviors, to siblings and caregiving, through end of life care, grief and everything in between. Rosanne carries her authenticity and caregiving experience into each interview. Along with strategies and resources, this podcast also provides listeners with the comfort of knowing they are not facing these challenges alone.

Rosanne has been featured in NPR, CNN Health, Barron’s, and Next Avenue and was most recently named one of Next Avenue and American Society on Aging’s 2024 Advocates for Aging.

You can connect with Rosanne Corcoran:

https://www.facebook.com/DaughterhoodThePodcast/

https://www.instagram.com/daughterhood_the_podcast/

https://daughterhood.org/

Interested in purchasing a GrandPad to stay connected with a senior loved one?  

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you.  If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figure things out.  We can help you feel just a little less lost.  

Hospice Navigation Services was founded by Hospice and Palliative Certified RN Helen Bauer, a respected voice in the end of life industry.  Helen acts as Lead Navigator for Hospice Navigation Sessions and can guide you through discussions about hospice care, how to choose an agency, and whether your current hospice care is the best fit for you and your person. 

It’s your journey.  We'll be your expert guide.   

Book your Hospice Navigation Session today at theheartofhospice.com.  

Connect with Gabby Jimenez: 

Website: thehospiceheart.net

Contact: thehospiceheart.net/contact

Buy Gabby’s books: thehospiceheart.net/books

Book Gabby to speak at your event: thehospiceheart.net/book-gabby

Social Media for Gabby Jimenez

https://www.facebook.com/thehospiceheart.net

Interested in purchasing a GrandPad to stay connected with a senior loved one?  

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you.  If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it “How to Train Your Doctor”. People with serious illnesses, along with their decision-makers, can get better care if they know how to communicate their needs.

Matthew tackles some of the trickiest topics with his How to Train Your Doctor social media posts. Feeding tubes, CPR/DNR decisions, confusing medical jargon, and palliative care are included in YouTube videos and Instagram posts. Matthew says it’s important to determine what the patient considers a meaningful outcome, and what the goals of the patient care are.  

Credit for the healthcare "f-word" (medically futile) goes to Dr. Nathan Gray, M.D. of inkvessel.com.

Connect with Dr. Matthew Tyler at howtotrainyourdoctor.com

Download your free Goals of Care Jump Starter document here. 

Website: https://howtotrainyourdoctor.com/

Instagram: https://www.instagram.com/howtotrainyourdoctor/

YouTube: https://www.youtube.com/@howtotrainyourdoctor

Interested in purchasing a GrandPad to stay connected with a senior loved one?  

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for patients, including time and communication. He’s also looking from a 30,000 foot view as well, acknowledging that geography, poverty, time, and policies influence the kind of care we receive.

Jacob is a fan of interdisciplinary care. He believes every specialist or discipline should be working together to create more continuity in our healthcare. In addition to clinical providers, Jacob also thinks other modalities add value to our care. Connecting with other people experiencing similar health challenges can be valuable. Jacob brings a multidimensional perspective to his work as a healthcare consumer and an educator. 

Connect with Dr. Jacob Kendall, MSW MPH PhD at jacobevanskendall.com. 

Talk with Jacob about speaking at your event by clicking here. 

Interested in purchasing a GrandPad to stay connected with a senior loved one?  

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)