In the first episode of The Invisible Cancer podcast, we hear from the voices behind the Invisible Cancer Report, exploring why greater awareness and earlier diagnosis of neuroendocrine cancer are so important.

Through honest and personal accounts, guests share their experiences of living with neuroendocrine cancer, including the challenges of delayed diagnosis and the impact this can have on their lives.

The conversation also reflects on their involvement in shaping the report and why raising awareness of this often-overlooked cancer is essential to improving recognition, enabling earlier diagnosis, and ensuring people receive the support they need.

Behind every statistic is a real story - and this episode brings those stories to life.

Select here to read the report: https://www.neuroendocrinecancer.org.uk/invisible-cancer/

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In this episode of the Not Just NE Cancer podcast, Cathy speaks to Ruth, the incredible fundraiser and founder behind 'Daily Dip 4 Dave'.

Since October 2023, Ruth has taken a cold-water dip every single day, inspired by her husband, Dave, who is living with neuroendocrine cancer.

Through stormy weather, freezing temperatures and exhaustion, she’s stayed committed, raising awareness and vital funds for Neuroendocrine Cancer UK, one freezing plunge at a time.

This October marks 2 years and to celebrate, we’re making a splash.

Join us on Saturday 11th October 2025 for the National Daily Dip 4 Dave Day.
One day. Hundreds of dips. Wherever you are, however you do it, just dip!

For Ruth. For Dave. For everyone affected by neuroendocrine cancer.

If you haven't already heard of Ruth and Dave's story, this episode shines a light on why 'Daily Dip 4 Dave' started, including Ruth's most memorable dips!

To be part of this incredible movement, please visit the Daily Dip 4 Dave page on our website: HERE

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In this heartfelt and deeply personal episode, Neuroendocrine Cancer UK’s CEO, Cathy, interviews Kate Quirk and Craig Speirs. Both are not only professionals working for Neuroendocrine Cancer UK but are also living with neuroendocrine cancer themselves, thus offering rare dual perspectives on navigating cancer both personally and professionally. Kate works as our Neuroendocrine Cancer Support Co-ordinator and Craig as our Fundraising Co-ordinator.

Their conversation includes: 

• Personal Journeys
• Perspective and Purpose
• Professional Roles at NCUK
• Bridging the Gap - working in cancer support while also being patients
• Barriers and Bugbears
• The Power of Support - inc. the significance of language
• Closing Reflections

To learn more about neuroendocrine cancer, please visit out website: www.neuroendocrinecancer.org.uk 

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🎙️ In this episode of the Not Just NE Cancer podcast, Neuroendocrine Cancer UK CEO and Co-Founder, Cathy Bouvier Ellis sits down with Tanya Hills, Global Patient Engagement Lead at Boehringer Ingelheim.

Together, they explore:

• Common misconceptions about the pharmaceutical industry
• How patient organisations and the industry can work collaboratively
• How effective these collaborations can be

Tanya also highlights a current clinical trial led by Boehringer Ingelheim for Extrapulmonary Neuroendocrine Carcinoma (EP-NEC). You can find more information about this trial here:

 🔗 Boehringer Ingelheim – EP-NEC Clinical Trial

To learn more about ongoing neuroendocrine cancer research, visit our website:
 🔗 Neuroendocrine Cancer UK – Research

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In this episode of the Not Just NE Cancer podcast, the first of 2025, Nikie Jervis, Neuroendocrine Cancer UK's Director of Support Services and NMC registered nurse goes back to basics to explain 'What Neuroendocrine Cancer' is. In conversation with CEO and Co-Founder, Cathy Bouvier Ellis, they discuss the function of our neuroendocrine system, how the cells work in that system and how they play an important role in the sending and receiving of messages from either our brain or endocrine system.

If you've been searching for a clear explanation of what neuroendocrine cancer is, look no further. We hope you enjoy this episode and please keep an eye out for future episodes which will be released every 2 months throughout 2025.

Click here for further reading on what neuroendocrine cancer is. 

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In the final episode of the Not Just NE Cancer podcast of 2024, our host, Cathy, chats with Kym Winter, CEO, Founder and Director of Rareminds who some of our community may already know.
 
In anticipation of the festive period, the new year and everything that these months entail, Kym and Cathy discuss the pressures and expectations of this time of year and how those living with neuroendocrine cancer can navigate festivities whilst experiencing disruptive or difficult symptoms and emotions.

We also have a webinar available on this topic, which includes discussion on managing fatigue at this time of year. Please click here to watch.

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In this episode of the Not Just NE Cancer podcast, Cathy chats with International Cancer Alliance (INCA) President, Stephanie Alband about the upcoming World Neuroendocrine Cancer Day 2024, the member organisations that make up INCA and the neuroendocrine global community as a whole.

INCA Website
World Neuroendocrine Cancer Day

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In this episode of the Not Just NE Cancer podcast, our host, Cathy has a candid and heartfelt conversation with Sue about navigating grief after her husband, Ian passed away from neuroendocrine cancer.

This episode may be upsetting for some but we hope it also provides an honest and hopeful portrayal of living life with grief and supporting your loved one to have a 'good' death.

Further support:

• Neuroendocrine Cancer UK
• Dealing with grief

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In this episode of the Not Just NE Cancer podcast, Cathy chats with patients and ambassadors, Chrissie and Caroline about their coping strategies for living with neuroendocrine cancer. This is a open conversation where Caroline and Chrissie are honest about their experience of diagnosis and treatment as well as their approach to life.

Further support:

• Neuroendocrine Cancer UK
• Mental health support

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In this episode of the Not Just NE Cancer podcast, we discuss the importance and realities of self-advocacy while living with neuroendocrine cancer. Join us as we explore the challenges and triumphs of advocating for oneself in the healthcare system. 

Join us for a truly insightful conversation with two of Neuroendocrine Cancer UK's Ambassadors, Lisa and Alan. Lisa and Alan share their personal journey, offering an honest account of navigating medical appointments, seeking the best treatment options, and dealing with the emotional ups and downs that come with being your own advocate. 

Tune in for an engaging and thought-provoking discussion on the importance of self-advocacy and the impact it has on the cancer journey.

Further Support:

• Neuroendocrine Cancer UK
• Article Reference
• Neuroendocrine Cancer UK Virtual Handbook.

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