The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer

In this episode, Cathy speaks to Liver Transplant & Hepatobiliary Surgeon, Mr Andreas Prachalias from King's College Hospital, London. Topics include:

1- What is the role of the surgeon within an expert MDT?

2- If technically possible, what influences your decision to support surgical intervention?

3- What would influence you in reviewing a case for surgery when initially not a possibility?

4- When does impossible become a permanent decision?

5- Managing quality of life is of paramount importance, how do you manage expectations around the consequences of surgery?

6- Where does liver transplantation fit into the treatment spectrum for our community?

7- What is the sequence of surgical treatments when patients need liver surgery and heart surgery for carcinoid heart disease?

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In this episode of Not Just NE Cancer, Cathy travels to the Queen Elizabeth Hospital, Birmingham to speak to Cardiac Consultant, Professor Steeds, about Carcinoid Heart Disease.

Find out more:

• Carcinoid Heart Disease 
• Just diagnosed
• Carcinoid syndrome
• Types of tests
• Emotional support
• Carcinoid crisis

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In this episode of Not Just NE Cancer, Cathy speaks Jo Grey, CEO of AMEND (The Association for Multiple Endocrine Neoplasia Disorders) about her personal story, the work of AMEND and genetic Neuroendocrine tumours.

AMEND - https://www.amend.org.uk/

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In this episode of Not Just NE Cancer, Cathy speaks to Consultant Histopathologist, Dr Claudia Mestre at King's Hospital in London.  Topics include:

 1- What is a histopathologist?

2- How did you get involved in the neuroendocrine world?

3- What is your role within the MDT?

4- Are there any key differences in the tissue from neuroendocrine cancers and other more common cancers?

5- Has the WHO re classification impacted the way you review the tissue you receive?

6- How do you feel about patients having more ownership of their tissues/samples?

7- Advances in genomics are shaping the field of histopathology in a number of ways - what changes do you see in the neuroendocrine field around genomics and better prediction of outcomes?

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In this episode of Not Just NE Cancer, Cathy speaks to Consultant Gastroenterologist, Dr Raj Srirajaskanthan at King's College Hospital in London.

- Working with your healthcare team
- Useful questions for your appointments
- Getting the right care

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Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer.

Sally talks to Neuroendocrine Cancer patient, Sherry about her experience of receiving treatment, Radioligand Therapy (PRRT).

Further support:

• Neuroendocrine Cancer Treatments
• Radioligand Therapy (PRRT)

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Insights from Neuroendocrine Cancer UK Ambassador, Sally on living with neuroendocrine cancer.

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NCUK CEO, Catherine Bouvier speaks to Debra and Michelle about their symptoms prior to diagnosis with Neuroendocrine Cancer.

Further information:
 - Lung Neuroendocrine Cancer Primary
- Rectal Neuroendocrine Cancer Primary
- Barrier to Diagnosis Report
- Symptoms & Awareness Postcard - Order here

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Neuroendocrine Cancer UK CEO, Catherine Bouvier speaks to Ambassadors, Maxine and Simon about their symptoms prior to diagnosis with MEN1 and small bowel neuroendocrine  cancer.

Further information:
- MEN1
- Small Bowel
- Barrier to Diagnosis Report
- Symptoms & Awareness Postcard - Order here

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