The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer

In this episode, Neuroendocrine Cancer UK's CEO, Catherine Bouvier, talks to Dr Tahir Shah about his work in developing a new service for Neuroendocrine Cancer patients to improve outcomes and their quality of life through using surgery and liver transplantation.

Dr Shah is a Consultant Liver Transplant Physician at Queen Elizabeth Hospital Birmingham. He is also Lead Clinician for the Neuroendocrine Tumour [NET] and Hepatocellular Cancer [HCC] Services at Birmingham. 

He developed specialist services for Midlands’ Neuroendocrine Tumour patients resulting in the Birmingham NET Service becoming a European Neuroendocrine Tumour Society [ENETS] certified Centre of Excellence. Dr Shah is leading a number of additional service improvement initiatives including: delivery of a national programme of Liver Transplantation for unresectable NET Liver Metastases, creation of a comprehensive service for patients with carcinoid heart disease and standardising initial management of Neuroendocrine Tumours, including lung NETs.

Further support: 

• Neuroendocrine Cancer UK
• Neuroendocrine Cancer Centre's of Excellence (UK)
• Neuroendocrine Tumours of the Liver 
• Neuroendocrine Cancer Treatments 
• Patient stories

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In this episode Neuroendocrine Cancer UK CEO, Catherine talks with Rareminds Mindfulness Programmes Lead, Steve about mindfulness and how it can help those with cancer to help manage pain and daily life. 
 
Steve is a core teacher trainer for Breathworks, and an ‘Living Well’ Trainer and Supervisor. He runs both ‘Mindfulness for Health’ and ‘Mindfulness for Stress’ programmes and is a qualified Mindfulness in Schools teacher for young people.  

Steve's has lived experience of managing an ongoing chronic pain condition and uses the techniques he teaches on a daily basis. 

Further Support:

• Rareminds
• Neuroendocrine Cancer UK Counselling Service
• Mindfulness
• Neuroendocrine Cancer UK Support
• Open Conversations Report

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In this episode, Catherine talks to Neuroendocrine Cancer Clinical Nurse Specialist, Debbie. In December 2021, Debbie's life took an unexpected turn when she was diagnosed with breast cancer. 

Debbie shares her experience of a cancer diagnosis from both sides.

Further support:

• Just Diagnosed

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In this episode Pete, Neuroendocrine Cancer patient and fundraiser shares his story. Pete talks to us about his diagnosis, the symptoms of Pancreatic Neuroendocrine Cancer and his experience of Radioligand Therapy (also known as PRRT).

Further support:

• Pete's story
• Pancreatic Neuroendocrine Cancer
• Secondary Neuroendocrine Cancer 
• Recognising a hypo
• Radioligand (PRRT) Treatment

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Rambles with Sally - Insights from Neuroendocrine Cancer patient, Sally on living with Neuroendocrine Cancer and pain control. 

Further Support:

• Understanding Neuroendocrine Cancer
• Newly Diagnosed
• Living with Neuroendocrine Cancer
• Neuroendocrine Cancer Patient Stories

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Rambles with Sally

Sally, Neuroendocrine Cancer UK Ambassador, shares her remarkable insights on living with Neuroendocrine Cancer in this episode of "Rambles with Sally." Join us as Sally reveals the art of cherishing the perfect moments amidst life's challenges, painting a vivid portrait of resilience and gratitude. Stay tuned for an enlightening conversation that will touch your heart and leave you inspired.

Further support: 

• www.neuroendocrinecancer.org.uk

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Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer.

In this episode NCUK Ambassador, Sally discusses useful tips for better sleep with fellow patient, Phil.

Further support - https://www.neuroendocrinecancer.org.uk/neuroendocrine-cancer/living-with-neuroendocrine-cancer/sleep/

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In this episode of Not Just NE Cancer, Cathy speaks to Dr Debashis Sarker, Consultant Medical Oncologist at King's College Hospital, London. Topics include:

1- How did you get involved in the neuroendocrine world?

2- What is the role of the oncologist within the MDT?

3- What are the main influences in your decision to suggest a treatment?

4- What do you see as the main challenges we still face in the neuroendocrine cancer world in terms of treatments? 

5- Thoughts around immunotherapy and the future of genomics in planning treatments and predicting outcomes.

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In this episode of Not Just NE Cancer, Cathy speaks to Kym Winters, founder and Director of Rare Minds about some of the emotional challenges those diagnosed and living with Neuroendocrine Cancer face. 

Kym also shares her experience of rare disease and the work of Rare Minds.

• Rare Minds
• NCUK Counselling Service
• Supporting you
• Just Diagnosed
• Living with Neuroendocrine Cancer
• NCUK's MIND the Gap Campaign

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In this episode of Not Just NE Cancer, Cathy speaks to NCUK Ambassadors, Maxine and Simon all about treatments after their Neuroendocrine Cancer diagnosis.

Click here to read all about treatments on the NCUK website

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