By Trish O'Dwyer
5
11 ratings
The podcast currently has 27 episodes available.
#1 Taking a look at what progress actually looks like for parents of neurodivergent children and adults. How their progress is typically measured. They are growing and developing all the time regardless. A brief look into Apraxia for nonspeaking individuals. Recognising that it's can't not won't; believing it gets better by just being there for them and learning every day. Learning to recognise, acknowledge and celebrate the wins, even what to others may seem tiny or insignificant.
#2 Guest: N/A
#3 Time Stamps:
0:00 Intro
0:13 Neurodivergent children are measured against what neurotypical children their same age can do. Not fair or appropriate.
1:14 No-one in education is harnessing the potential of the ND mind or even being curious.
3:25 The environment you place them and their amazing brains in is key.
5:00 Nonspeaking, minimally or unreliably speaking individuals and Apraxia
6:35 There is no look to listening or to intelligence
10:07 Using my son as reference for and naming examples of - me reaching out to parents and their children/adults who are really struggling right now.
16:12 There is model or previous generation experience or anything even from most of our parents on how to support and raise an ND child.
18:30 It gets better! It does. Example - sleep.
21:38 The water trick and recognise, acknowledge and celebrate the tiny wins. They are actually BIG wins.
#4 Summary
#5 Calls to Action
Pre-roll: My Journey with S2C episode mention.
Mid-roll: Uniquely Human Podcast.
End-roll: none
#6 References/Links
None
#7 Social media
N/A
#8 Next Episode
tbc
#1 These days we are all largely aware of neurodiversity and roughly what it entails but, how would you describe or define it to someone? What exactly is it in average person speak and what's important about it? Who does it include? Going on to talk about abelism and inclusion and what an inclusive classroom should look like starting with presuming competence in all students.
#2 Guest N/A
#3 Time Stamps
0:00 Intro
2:05 Advocacy; Identity First Language and Disability.
5:20 The Neurodiversity model of Disability.
6:42 What neurodiversity is not.
8:18 Abelism, what is it?
10:53 We are ALL as human beings co-dependent.
13:49 Myths about non speaking autistic individuals.
17:35 Inclusion.
#4
#5 Calls to Action
pre-roll: webpage
mid-roll: thank you re podcast listens and please share
end-roll: newsletter sign-up
#6 References.
Quotes:
Neurodiversity - Judi Singer; Steve Silberman (author of Neurotribes book); Thomas Armstrong.
Inclusion - Miller & Katz 2002; Newton 2017; Cheryl Jorgensen.
#7 Social media
N/A
#8 Next Episode
What does Progress Look Like?
#1 Part A of my journey with my non speaking son Henry age 13 and S2C - Spelling to Communicate. Where it began and how I find out about it; understanding presuming competence and that it his body he cannot control well (including the eyes) in purposeful motor movement. Our first sessions and being introduced to a practitioner and the stencil alphabet boards.
#2 N/A
#3 Time Stamps:
0:00 Intro
1:50 Where it all began/how I found out about
2:56 Tit bit - put yourself out there, take the plunge, it's a journey
4:14 Meeting Emma Bond (and her son George)
5:00 Act for Autism - Tessa and Jane, Warwickshire (+ their book)
6:17 S2C - A personal story in a book called "Underestimated". So, what is it?
10:26 Elizabeth Vossellor (EV), Founder of S2C and evidence based methodology
12:13 Meeting EV and Anna Lechleiter of Palz Ireland, in London
13:30 Session 1 - not good
15:45 Hope and skepticism + Session 2
19:30 Disappointment
21:53 Re-start: Take 2
23:08 Parent Cohort
#4
#5 See links below
#6 Calls to Action:
End-roll: website, social media, newsletter, podcasts
#7 N/A
#8 Next episode - tbc
#4
#1 A look into how often others/society makes assumptions about neurodivergent and/or disabled people's intelligence just by what they see. having heard about the children/adults and their parents struggles the assumption is that they are always miserable and struggling and a real challenge for their parents, as if there is no joy. What is presuming competence and the true meaning of inclusion, all in Mum/S2C Practitioner-speak!
#2 Guest N/A
#3 0:00 Intro/Welcome, I'm back
2:51 Today's episode
2:51 The assumption by others/people/friends you know that our autistic and/or neurodivergent children are always struggling and unhappy and that it is an exhausting all day every day challenge for parents.
10:15 There is always a unique personality with interesting thoughts and ideas in every neurodivergent or disabled person you meet.
11:06 What is presuming competence? 12:57 Definition - Cheryl Jorgensen 2005
15:57 Speaking age appropriately to my autistic non speaking son Henry
20:53 Podcast - follow - review - share. Thank you.
23:58 The true meaning of inclusion
25:15 Interested in S2C? Have a look at www.i-asc.org
#4
#5 Calls to Action
Pre-roll: web page
Mid-roll: podcast follow/review/share
End-roll: look up I-ASC
#6 Next Episode - tbc
#1 A good hour long episode chatting to Tracy; how we met; Tracy's background as an OT; her PDA (pathological demand avoidance) and autistic son Jack; their family; discovering NVR (Non Violent Resistance) and a new family venture called 'Aspects Together'!
#2 Tracy Weiner
#3 Time Stamps:
0:00 Intro to this episode and Tracy, how we met and Tracy's journey
6:35 Why is my child not coping? What is wrong with my parenting? Discovering PDA and getting no support.
15:08 "It's can't not won't" and "meet their storm with your calm"
16:40 NVR - non violent resistance, a theraputic parenting program through CAMHS
32:08 PDA Tops Tips
45:35 'Aspects Together' - new venture with husband Mark - see fb page
52:13 A story about my Dad and being a carpenter...link to men's mental health and the woodworking workshop at 'Aspects Together'
57:27 a long and positive and uplifting round-up
#4 Summary
#6 N/A
#7 PDA Society; NVR and Aspects Together + Blinkvist - see research links
#8 Next Episode :
Neurodiverse people can be happy and are wonderful human beings.
#1 This is not an episode on bad parenting or bad children, its an episode why we feel like bad parents and why our autistic and/or adhd and/or neurodiverse children are often made to feel this way. How us parents wish someone could come into our homes and simply observe and offer helpful advice on how to make getting through each 24 hr cycle easier + have someone who actually can witness and believe us and our children. Why its a challenge every single day and what a quick run through of 24 hours in the home is like.
#2 Guest N/A
#3 Time Stamps:
0:45 Intro to this episode
1:00 feeling like a bad parent
2:37 who is there for the parent for those 12-16 hours every day?
2:57 what we wish we had...someone actually come into our home to observe
3:30 someone to believe us and believe our children
6:00 my experience with this actually happening for me and the difference it made
8:30 rant about social service
11:39 Friends or relatives or 1:1's or ta's etc wanting to know what its actually like and how to help
14:57 can't NOT won't
17:00 The 24 hours!
#4 Summary
#6 Calls to Action:
Pre - roll: I am 20 episodes in...thank you for your listens and shares and follows
Mid-roll: newsletter sign up via website and how to find it quickly
End roll: The free online SpellX event
#7 SpellX - see research links
#8 next Episode- tbc
#1 Food wars vs food relationships and the battle with their sensory systems that are constantly changing. There is so much more going on than just the food. It's different to the neuro-typical journey of fussy or picky eaters. My own experiences and advice from having raising a now 20 yr old son who is adhd plus my youngest Henry who is on speaking, autistic and adhd, age 12. They do grow and develop and their eating habits, relationships with food and mealtimes do get better. Look to professionals (nutritionists, dietitians etc)who are autistic themselves and/or actually live the autism journey as parents for the right advice e.g Yaffi Lvova.
#2 GUEST: N/A
#3 0:00 Intro
0:48 'food wars' should really be 'food relationships'
1:37 It's not war against the child, its against their sensory systems
2:00 Its not just about the food
4:04 what's especially tough for parents
5:31 my own experiences and examples with two of my 3 children
9:37 under/over weight
11:25 Nutritionist and other 'experts' advice
14:00 mix it up, experiment, try not to get riled, forget the traditional rules/norms/manners
17:25 The younger years and thinking things would never get any better, and the now
22:00 Our childrens brains work differently, it is not the same
22:30 Yaffi Lvova, nutritionist and dietitian who lives it and knows the autism journey.
#4
# 5 Calls to Action
pre-roll: new name, website, newsletter
mid-roll: thank you for the listens + follow + review/comment
#6 see under 'research links'
#7 N/A
#8 n+Next Episode...tbc
#1 The message as per an original unisex 'Autism Threads' slogan T-shirt is "NO APOLOGY". Autism is part of who our children at any age, are. It is part of their make-up, it is responsible for the incredible minds they do have and we should make no apology for their actions, noises, lack, of eye contact, different ways of communication. An introduction to Elizabeth Vossellor, Founder of S2C that is 'Spelling to Communicate', a film recommendation called "The reason I Jump" and what 'no apology' translates to for all of us on any given day.
#2 Guest: N/A
#3 Timeline:
0:00 Intro - welcome and intro to my either and/or autistic, adhd, neurodiverse children.
2:52 The NO APOLOGY unisex slogan T-shirt.
4:35 Why NO APOLOGY?
6:23 Meeting Elizabeth Vossellor, Founder of 'Spelling to Communicate/S2C' and her analogy for NO APOLOGY.
14:00 The Reason I Jump film and Bradstow School.
16:53 Never apologise for who you are. What's your NO APOLOGY for today?
19:05 School refusal/avoidance crisis in the UK.
#4
#5 Calls to Action:
New website + newsletter and podcast sing-up
The NO APOLOGY T-shirt
#6 Links/References:
https://youtu.be/W2GJO_rtzrs?si=Mjkv4pf3GsjpXMON
https://i-asc.org/
#7 Social media: N/A
#8 Next Episode: When you meet an autistic person...how to engage
#1 New Year vibes, already knackered, down with colds again and no resolutions made! Not an episode inviting a pity party but one encouraging awareness as I share what it's like for my non speaking son and I and how I describe just how fully competent he and all non speaking autistic people are and how we need to start to presume competence and treat them both with respect and age appropriately. tit bits on what I am learning as a Spell to Communicate Practitioner.
#2 N/A
#3
#4
#5 Calls to Action:
Intro only - new name and webpage + newsletter sign-up
#6 Books:
The Reason I Jump by Naoki Hiagshida
Ido in Autismland by Ido Kedar (available in audible too)
Carly's Voice by Arthur Fleischmann & Carly
*Underestimated by JB Handley & son
*= reference to S2C Spelling to Communicate program and EV, my course leader!
#7 N/A
#8 TBA
SHOW NOTES:
#1 News on the new podcast name and website coming soon. Announcement about a new training course I am on and an informal, lighthearted look at sleep issues for both autistic children and adults plus their parents. The why and what helps in terms of sleep onset problems and paying attention to ourselves as parents and the physical and mental impacts of years of sleep deprivation.
#2 NO GUEST
#3 0:00 - 4:45 Intro - new podcast name and why
1:32 Spell to Communicate (S2C) practitioner in training, ooh err.
7:08 Sleep onset issues and why
9:46 Sleep aids
11:04 Melatonin medication
16:07 Parents and sleep deprivation
21:18 Remaining calm
24:34 Christmas!
#4 Summary
#5 Calls to Action:
pre-roll: new name and website + how to follow
mid-roll: share with friends and family, review an episode
end-roll: thank you for your continued support
#6 References:
https://i-asc.org/
[email protected] for any non or minimally or unreliably speaking autistic children or adults interested in free 45 min - 1hr weekly spell to communicate sessions in Tonbridge, Kent.
#7 Instagram: @_thethreadsoflife_
#8 Merry Christmas! I'll be back 12 Jan 2024.
The podcast currently has 27 episodes available.
190 Listeners