Tanvir lives in Corsham, Wiltshire and is an author, researcher and disability activist. She currently works as an associate research fellow for D4D (http://d4d.org.uk/), which is a project exploring disability and how disabled people experience community. Tanvir feels especially passionate about this as she started to lose her sight at 21 years old and has experienced first-hand how differently society treats disabled people She talks about ācoming outā as a blind person when she got her first guide dog Grace in 20 09. Grace sadly died a few months ago. They had the most incredible bond and she was by Tanvirās side when her father died and whilst she was studying for her MA and PHD ā in fact Grace is a doctor too!
Since starting to lose her sight, the discrimination against the disabled community has shocked Tanvir to the core so to try and āreach across the divideā she decided to write a book āCullā (https://bit.ly/3hQAOdg). After all, she says, ā1 in 4 people has a disability that they talk about ā¦ and every single group of peopleā¦ every tribe will have disabled peopleā so how come they are treated differently and often made to feel repugnant. āCullā is about a visually impaired journalist Alex and her guide dog, Chris (based on Grace). Alex starts to investigate a link between missing homeless people and the governmentās new Care and Protect Act. You might think āCullā will be a heavy read think again! It is one of my favourite books, empowering for women, full of superheroes, an amazing guide dog and many twists and turns. I couldnāt put it down!
When the Covid-19 pandemic hit our shores, Tanvir describes how scary it was for the disabled community. Herd immunity was terrifying for them and left them feeling very vulnerable. She also talks about how, if she had contracted Covid-19 at the beginning of the pandemic and been taken to hospital unconscious she may well have had a DNR (do not resuscitate) placed on her because of her disability. In her own words that is āutterly terrifyingā. In fact, whilst I donāt want to give too much away about her book āCullā the similarities between fiction and ārealā life are clear.
Now that the worst of this pandemic is over (fingers crossed) Tanvir talks about having to āgird her loins and go back out into the worldā. This will take time as sheāll have to re-train her guide dog Mitzie to tackle buses, trains and travel again. Another difficulty for Tanvir will be noise as she has hyperacusis (noise sensitivity) and finds loud noises very stressful and disorientating. This episode is a must for everyone. Tanvir talks passionately and to the point about the difficulties and disparities the disabled community struggle through on a daily basis as she says, āwhat is key is a common humanity, respect for everyoneā. This interview was recorded on Wednesday 16th June at 2pm BST.Ā
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