We spoke to Simone Adams, mother to Maebh, who has trisomy 18 and is affected by some of the issues highlighted by Deaf Awareness week. She shares how her daughter's hearing loss was discovered and how it affects Maebh's day-to-day life.

Reach out at [email protected]

For support, contact [email protected]

To find out more, visit www.soft.org.uk

In this episode, we had the privilege of speaking to Marie about her personal journey through TFMR and how she has been coping with the help of her husband. She shared with us some surprising insights she gained from the experience that she hopes will help others going through a similar situation. Tune in to hear Marie's heartfelt story about her baby Heidi and her passion for breaking the silence around TFMR.

Reach out at [email protected]

For support, contact [email protected]

To find out more, visit www.soft.org.uk

We spoke to Richard, Sarah's brother, who passed away from Patau's syndrome (trisomy 13) in 1989. He shared his story and what he could remember as a 3 year old at the time. He also shared a powerful message about mental health and finding acceptance in a situation and looking for the positive in every situation- in this case was bringing the family closer together.

Reach out at [email protected]

For support, contact [email protected]

To find out more, visit www.soft.org.uk

We spoke to Sarah Dowdall, mother to Emilia, with mosaic trisomy 18 about the journey to diagnosis as well as how she copes with the uncertainty of what this will mean for her daughter in the future.

Reach out at [email protected]

For support, contact [email protected]

To find out more, visit www.soft.org.uk

Listen to the roundtable discussion about what it was like working with EastEnders on the Trisomy 18: Edwards syndrome storyline. We’re joined by some of the people who were directly involved in talking to producers, actors and story researchers. We hope you’ll enjoy this ‘behind the scenes’ look at what went on.

Reach out at [email protected]

For support, contact [email protected]

To find out more, visit www.soft.org.uk

We had a great chat with Chris O' Toole about his daughter Maria's story and what he has learnt 30 one years later. His perspective as a Dad, urging people to reach out for support was really touching.

Reach out at [email protected]

For support, contact [email protected]

To find out more, visit www.soft.org.uk

We spoke to our new Trisomy Advocate, Sarah Bowell, about her career background and what attracted her to the role at SOFT. To hear how she hopes to support families and what she is already working on, tune in!

Reach out at [email protected]

For support, contact [email protected]

To find out more, visit www.soft.org.uk

Join SOFT UK and the team as they discuss their upcoming fundraiser. They will be taking part in the Royal Parks Half Marathon and their training begins today!

Check out our fundraising page here: https://www.justgiving.com/campaign/royalparkssoftuk

Following the recent storyline in Eastenders, where a couple have received a diagnosis of Trisomy 18, we wanted to answer a question that may arise from this. Can HIV cause Trisomy 13 or Trisomy 18?  

In the story, the mothers partner has been diagnosed with HIV, and there have been questions regarding whether it could be a cause Trisomy 13 or Trisomy 18. In light of this, we wanted to reach out to our professional adviser for comment and also speak with one of our support volunteers regarding her experience.  Today’s podcast is a roundtable discussion on the subject of the EastEnders HIV storyline. 

We’re joined by Nora Shannon and Laura Petrie to discuss this topic and clear up any confusion that has arisen.  

If you have a story to share please reach out to [email protected]  

If you need support, please get in contact with [email protected]  

For more information, visit www.soft.org.uk  

Song: Mellow  Music by: CreatorMix.com

We chatted with Brandon Huxhold, Fiona’s Dad, from Illinois in the US. He told us the extraordinary story about their daughter who has mosaic trisomy 18 and turns 2 in a few weeks. He describes her as a loving child whose siblings adore her. He explains  that she achieves everything in two thirds of the time it takes typical toddlers to do it. Listen to this lovely story as told by a very proud father.

To share your story, get in touch at: [email protected]

To reach out to our support team, contact: [email protected]

To find out more about SOFT UK, visit: www.soft.org.uk

Song: Mellow

Music by: CreatorMix.com