In a first for SOFT podcasts, we spoke to Faith Jackson - Docherty, a sibling affected by Trisomy 18. She tells us of her memories of her baby sister Charlotte, from when she was 4 years old. The importance of parents speaking openly and honestly is apparent when she tells her story. A useful listen for any expectant parents wondering how to handle a diagnosis of trisomy 13/ 18 with their other children.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Listen to this upbeat chat about the first gaming fundraiser done for SOFT, late last year. We discuss the group that took on the challenge; plus all the people involved in making the event a success. A really unique and fun fundraiser that ended up over achieving the set target.

To find out more about The Fock head over to: https://www.twitch.tv/team/theflock

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

We spoke to an amazing couple, Sarita and Kareem Edwards about their incredible 5 year old son, Elijah with full Trisomy 18. It's an inspirational way to end off #TrisomyAwarenessMonth as he is so well for a child with this condition. The podcast includes an endearing guest appearance by Elijah himself. It's also a wonderful opportunity to hear from a Dad when we discussed how this diagnosis affected them as a couple. It's all summed up with their message of hope and love at the end.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

This conversation with Gareth is an important one, as we hear how Dads can be affected by baby loss. His daughter, Phoebe, lived for 3 days and he found it terribly difficult to deal with at the time. His involvement with SOFT began by running sponsored races to raise funds for SOFT and has evolved to him 'meeting and greeting' people at SOFT conferences and now as a Trustee. We value his involvement and it's interesting to hear how SOFT has changed in the time he has been involved.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

We spoke to Juliette about her personal journey with her daughter, Amelia, who had Trisomy 18. It's touching to hear how she has both relied on SOFT for support and now provides it as a support volunteer and trained bereavement counsellor. It's truly a labour of love for the Bradley family, as Juliette's husband, Matt, helps SOFT with their website and IT.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Listen to this informative chat with Jenny Robbins, founding member of SOFT UK. We heard the fascinating story of how SOFT was started back in the 1980s in the context of limited/ outdated information on Trisomy 13 and 18. Listening to how connections were made locally and overseas with other families with Trisomy 13 and 18 babies and children, through surveys and letters, was so interesting. We found out about the very first conferences and how the support that SOFT offers has changed with the advent of technology.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

We had a catch up with Beverly Jacobson in the States to hear how her daughter Verity, with Trisomy 18 is; what's new with Verity's Village since we last spoke and how the launch of her book 'From Diagnosis to Delivery' is doing as well as what her plans for Trisomy Awareness month are. We also shared all the exciting things SOFT UK have planned for the month of March to celebrate #TrisomyAwarenessMonth.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

As part of our Ended Pregnancies series of podcast, 'The Right Choice For You' we spoke to Emma Belle, mum to Willow and founder of support group, TFMR Mamas, . She spoke openly about their IVF journey, and how they heartbreakingly discovered that the baby she was carrying had Trisomy 18. Listen to her powerful message at the end about finding safe spaces to express yourself and find support.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Today we talk about the difficult subject of how other people handle the loss of your baby. Hannah shares some of the strange things that people have said to her, sometimes out of panic as they don't know what else to say, and the impact that this had on her.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

In this podcast we spoke with Hannah. We discussed what impact losing her son Cillian had on Hannah's marriage and other significant relationships in her life. It was interesting to hear how she has changed as a person and how this has had an effect on others around her.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk