We chat to Sophie Peet from Genetic Alliance to hear more about what their charity does and about the Rare Disease day, celebrated on the last day of February. Listen to this conversation as she explains this year's theme and what they hope to achieve in 2023.

To find out more about Genetic Alliance, visit: https://geneticalliance.org.uk/

If you want to get in contact with SOFT UK please email us at [email protected]

Song: Mellow

Music by: CreatorMix.com

We speak to our newest Professional Advisor, Jenny Hudson. She is a chiropractor with an interest in breastfeeding support about we hear how she came to be involved with SOFT and how she hopes to make a difference to the charity.

To share your story or get involved get in touch: [email protected]

We speak to our newest Professional Advisor, Jenny Hudson. She is a chiropractor with an interest in breastfeeding support about we hear how she came to be involved with SOFT and how she hopes to make a difference to the charity.

Some define a rainbow baby as a baby that is born after a loss. This podcast revisits Charlotte Clark's journey who currently is expecting her rainbow baby at 34 weeks. She shares life after Blaze and anwsers some interesting questions for those families trying or thinking about trying for a rainbow baby and/or expecting themselves.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

In this continuation of our conversation, Becky tells us about Heidi’s funeral, what bereavement felt like for her and why she became a SOFT trustee.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

Charlotte Clark shares her amazing journey about her beautiful baby Blaze, who was diagnosed with Trisomy 18 during the pregnancy. Charlotte bravely shares the challenges and concerns she faced during this time.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

In a conversation that demonstrated many emotional ups and downs over the years, we spoke to Lauren, sister to Christine, who passed away 25 years ago from Trisomy 18. A really interesting account of how a sibling experiences the death of a sibling at a young age and how this can affect someone at every stage of life thereafter.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

Becky shared her story of baby Heidi's life including pregnancy, diagnosis and birth. She explains how she managed to overcome the negative outlook from doctors and find some positivity for her experience.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

In a very emotional and honest conversation, we heard from Paul McClean, Ben's Dad. This powerful story discusses difficulty falling pregnant,TFMR and seeking help following a loss. It's definitely not to be missed and we hope that it's a story that will help many others facing a similar situation. 

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

#softuk #TFMR #podcast #Trisomy13 #PatausSyndrome #babyloss #Dadsperspective

In honour of Father's day this year, we spoke to Sandeep Sankoli, husband to Sonia, from SOFT UK and father to Dhian, and two other young children. Listen to this unusual story including IVF treatment, and a missed diagnosis of Trisomy 13 during pregnancy. Hear how long it took for the family to get a conclusive diagnosis and all about their journey with their precious son. It is a really great account by a Dad and so enlightening to hear his perspective on things.

If you have a story to share, or wish to connect with other families, then please reach out to:  [email protected]

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk