In this episode, Jeni and Heidi dive into the often-overlooked but incredibly powerful concept of pausing both before and along the tube weaning journey. After months—or even years—of pushing through medical challenges, therapies, and constant decisions, many families reach a point where forward movement feels exhausting.  

Stepping back doesn’t mean giving up; it can actually create the space where the most meaningful progress happens. Pausing allows for emotional and physical repair—for both your child and yourself—and gives everyone a chance to find stability before pushing forward again. Jeni and Heidi explore how to recognize signs of tension or burnout (like dreading mealtimes), and why co-regulation—tuning into both your nervous system and your child’s—is such a vital part of this process. You’ll hear strategies for creating calm, pressure-free mealtimes, honoring your child’s need for space, and learning to trust the slow, sometimes messy path of tube weaning. We also reflect on the emotional work parents do—advocating, observing, supporting—and how important it is to give yourself credit and care along the way. This episode is a gentle invitation to trust that progress isn’t always about doing more, but about allowing space for healing, growth, and connection. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com 

In this episode, Jeni and Heidi dive into how parents can play a powerful role in protecting and supporting their child’s journey from tube feeding to eating by mouth. When preparing, it’s easy to focus on the practical things like what foods to buy, which cup to use, and what’s the best bottle out there. What really matters is understanding what’s going on under the surface for both you and your child. 

Instead of counting bites or measuring progress by how much your child eats, we need to shift our mindset around what we consider a success. In the tube weaning process, it’s important to focus on things like: Did my child feel safe? Did we enjoy time together? Was the food offered in a way that respected their needs? These are real, meaningful wins. Your number one job is to protect your child’s sense of comfort and safety at the table. With preparation, reflection, and a focus on connection, you’re creating the foundation for your child’s eating skills to grow. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com  

Welcome back! In this episode, Jeni and Heidi are talking about how families can form an effective and collaborative team to support their child through the process of tube weaning. Too often, parents find themselves feeling isolated on their child’s tube weaning journey. They are either waiting for a plan that never comes or are trying to piece it together alone. With the right information and questions, a supportive team can be built. As we discussed in last week’s episode, parents are not just bystanders in this process—they are essential members of the team. You know your child best, and your voice, insights, and presence are vital in shaping both the plan and the outcome. It is vital to a child's success in tube weaning to work with professionals who view parents as experts and partners, and who understand that feeding skill development and long-term outcomes are closely tied to the parent-child relationship. 

Jeni and Heidi also discuss the other key players on a strong tube weaning team: a medical provider who can set safety parameters around hydration, weight, and who knows your child’s medical history well; a therapist (often a speech or occupational therapist) who supports day-to-day progress through a child-led, strengths-based approach; and, of course, you, the parent, guiding and advocating every step of the way. Collaboration across all team members is crucial, even when it’s challenging. Jeni and Heidi offer practical guidance for asking the right questions, building trust, and planning for “what if” scenarios along the way. Tube weaning isn’t all-or-nothing—it’s a gradual, individualized process. With the right team in place, it can be safe, supported, and successful. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com 

When we talk about tube weaning, we’re not just talking about transitioning from tube feeds to oral intake—we’re talking about creating or restoring joy, curiosity, and connection to eating and feeding. And at the heart of that process is YOU, the parent. Too often, parents find themselves in one of two difficult roles: either sidelined and treated as an afterthought or isolated, left alone to search for answers and support. We know and believe that parents are the experts on their children. Your insight, intuition, and involvement are not just helpful—they are essential. 

The feeding environment matters deeply. What makes your child feel comfortable, safe and secure? Maybe it’s sitting on a parent's lap during breakfast or being surrounded by siblings at the table. We must expand our definition of safety beyond a physical aspect, also considering emotional and sensory safety. Within the feeding environment, we need to also consider structure, not rigidity.  

And when we do offer food, let’s consider pleasure, too. The goal at first is positive, low-pressure, intrinsically motivated experiences. That could be a lick of a chip, a finger dipped in ketchup, or stealing a bite from mom’s plate. If they see you enjoying it, they might be more willing to try it. That joy is the bridge to variety and nutrition later on. Every child is different. Every family is different. This journey will evolve, and that’s okay. It’s not about getting it perfect—it’s about staying curious, responsive, and connected to your child. Tube weaning is a process of learning, for everyone involved. It takes time, flexibility, and trust. And when parents are centered and supported, children can THRIVE. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com  

How many times has a loving adult or professional told you that your child’s eating difficulties are a sensory based “problem”? Yes, feeding IS a sensory experience AND it’s bigger than that. We all interact with the world and situations using our own individualized sensory identities. The ways in which we receive, interpret, and respond to sensory information within that is also constantly evolving. Sensory preferences are our brain’s learned protection and reaction to lived experiences, whether positive or negative.  

The same sensory identities and associations are evolving in children who are learning to eat! While we’re working toward helping children become happy and healthy oral eaters, we must first devote time and energy to understanding WHO the child is and HOW they relate to the world through their sensory experiences before we try to change them. This is crucial to figuring out who your child is from a sensory standpoint. We must examine and consider the context such that we’re maximizing ease, comfort, trust, and peace BEFORE we increase the challenge or try to expand their diet/oral intake. 

This is where motivation and autonomy play a key role. Giving the child control over how and when something occurs (such as eating) can significantly influence how they perceive the experience and how prepared their body is to engage in it. It’s only once a child has learned that they can be safe, comfortable, and stable that they can expand and have new experiences to help override old ones. This is a CHILD led process, one where we continue to accept where they are, no matter what. It may take time on the front end but also helps with success in the longer term. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com  

In this episode, Jennifer and Heidi are diving into how certain feeding strategies, specifically when transitioning off feeding tubes, can backfire. There is a common phrase that we hear a lot as therapists: “I can’t GET them to do it or I can only GET them to have 2 bites”. As loving caregivers, parents often think that it is their job to get their child to eat a certain food or specific volume. While working to transitioning to oral eating, the focus should be less on what you can get your child to do and more on letting them have the space to do so (McGlothlin, Jenny: Definition of “Let to Get”). The parents should focus on providing the foods and setting up a positive mealtime routine, while the child’s role is to determine if they’re going to eat it and how much (Ellyn Satter – Division of Responsibility).  

Jennifer and Heidi discuss what specific feeding behaviors we often see in the traditional feeding therapy. These behaviors are often viewed as symptoms and then the focus tends to be on more behavioral strategies. Although there is some short-term research on those behavioral methods (praising, distracting, negotiating), we know that it has negative long-term effects on a child’s relationship with food. They will also review what we can do as therapists, and parents, to help create a solid foundation and address the relationship with food starting with the foundations. We will also review the evidence to support the responsive feeding strategies, specifically with tube-fed children.  

If you would like any of the research or studies mentioned in this article, please do not hesitate to email us at [email protected] and we can send it to you. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum and @tubetotable on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com  

In this week’s episode, Jennifer and Heidi talk about what motivates children to eat. While hunger is important, it’s not the only missing piece of the eating and feeding puzzle for tube fed kids.  

When helping tube-fed kids become oral eaters, there are a lot of other pieces of the puzzle we must consider! Comfort, pleasure, curiosity, and relationships are all aspects that you, the loving and caring adult, can help facilitate for your tube-fed child. Eating in a comforting environment, having a meaningful and pleasurable experience during a mealtime, exploring food independently, and being a part of the mealtime routine can all help to drive internal motivation to eat! And Yes! Hunger also plays a role to build on oral eating. This looks different for every child in our program and beyond, and we know that following your child’s lead is of most importance to THRIVE!  

It's important to differentiate between tolerance and internal motivation. Our goal as well-meaning adults is not to help children tolerate a food or bite a certain number of times. In fact, that undermines their curiosity and adds external pressures to eat. We know and believe that all children are competent! They can feel hunger and start to do something about it independently, but only once we remove any obstacles you have control over (pain, discomfort, stress, pressure) and allow for periods of rest/repair for your child to build knowledge and experience on their own terms. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum and @Tubetotable on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com  

In this episode of Tube to Table, Jennifer and Heidi are letting you all in on a little secret: most kids learn to eat while they’re eating and participating in continued meaningful experiences surrounding a mealtime.  

Often times, traditional feeding therapy has a narrow skill-based focus that may include oral motor skills, self-feeding skills, increasing volumes, or expanding varieties. Skill development actually includes much more than just those things! To target a skill, we need to zoom out to address the fundamentals. We know that learning is most successful when the learner is an active participant: When they are motivated or in charge of their learning, when they have felt safety, and when they’re given appropriate support that doesn’t undermine or take over.  

For many of us adults, there’s an innate meaningfulness in food. What we forget is that it develops through experiences, and often, tube-fed kids do not have the same opportunities. Motor skills build over time, through experience and enjoyment, and by actively participating in activities already occurring throughout your home. Having your tube-fed child sit at the table with you during a meal provides tons of meaningful experiences!  

No matter the skill you want to help your tube fed child to learn, whether its variety, volume, oral motor strength, sensory processing, or self-regulation, the goal is to see the big picture and help create an ideal and positive environment. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com 

Welcome to Tube To Table: The podcast about helping tube fed kids become happy and healthy eaters. In this episode, Jeni and Heidi are here to help parents understand why hearing “no” from your tube-fed child can be a good thing. Learning to accept “no” as parents can be a game changer for mealtimes and can help caregivers reframe what refusal means for their tube-fed child.  

Did you know that food refusal is actually developmentally appropriate, regardless of the neurological identity of your child? It is easy to consider refusals as a problem or a deficit, however, it is an important part of the developmental process. It's a way for children to express that they’re unsure or perhaps not ready, and they’re actually doing the right thing by avoiding something that likely caused negative feelings in the past. As loving and well-meaning adults, this can feel like a failure or rejection, like a loss of control, and as if we’re not doing our jobs properly. It’s hard to know how to appropriately respond when it does come up.  

Jeni and Heidi are here to help you understand the WHY: why it’s important to accept refusals, why we look at your child’s experiences around eating and feeding and not just the act of eating, and why we allow kids the space and time to create a happy and healthy relationship with food. 

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information: @TubetoTable and @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com  

Did your child just receive a feeding tube? Are you feeling stuck in feeding therapy? In this episode of Tube To Table, we are diving into the topic of what parents wish they had been told when their child first got their feeding tube. Feeding tubes can be a medical necessity and can help keep kids safe when needed. We’re here to remind you that this is not your fault, and your child can do this!  

The transition from being tube-fed to becoming an oral eater can be tricky and it is often not an automatic process. No matter where you are in the process, today’s podcast will touch on a few of the most important factors to look at when starting the transition to tube weaning. We’ll talk through the tricky thought patterns you may be experiencing, why you could be feeling stuck in feeding therapy and how to support progress, and what our roles are as adults to help children feel safe and supported during this transition.  

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team.  Consult with your doctor before starting the weaning process.** 

Don’t forget to follow us on social media for more helpful information @Tubetotable and @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com