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Sean just turned 40. Happy Birthday Sean! Kyle turns 40 in a few months. This milestone brings a question into focus: What if the treatment or cure for FA doesn't come in our lifetime. Listen for thoughts from the dudes.
Aaron Smith is uncomfortable on stage as himself, but as the King of Rock and Roll he owns the stage.
Aaron was bullied when he was young because he was different than other kids. He didn't care about the same things and sometimes he didn't say the right things. His mind was somewhere else.
Somewhere along the way he fell in love with the idea that people made a living from impersonating Elvis Presley. He gave it a shot and he was hooked.
Listen as Aaron talks about becoming an Elvis tribute artist amidst the challenges of living with autism.
Connect with Aaron: https://www.facebook.com/AaronElvistribute
Learn more about Autism: https://www.autismspeaks.org/
The Top 5 Pet Peeves get Sean a little worked up so he continues with a rant about his gym and accessibility. A conversation with the manager leaves Sean unsatisfied because he's not confident anything will change as a result of his feedback. He wants everyone to know that he remained calm during the interaction. We'll count that as a win!
Tim Walbert is CEO at Horizon Therapeutics. He has been at the helm as they've taken several products to market. Listen as he talks about the different aspects of drug development and pricing. Tim also lets the dudes know that perhaps Sean's face needs to replace Kyle's on the wall at Horizon.
As a clinical coordinator at Children's Hospital of Philadelphia (CHOP), Jen Farmer gained years of experience designing and operating clinical trials. Now as the CEO at the Friedreich's Ataxia Research Alliance (FARA) she uses that experience to design effective trials for the Friedreich's ataxia (FA) community - and she nicely puts Sean in his place when she states "the rules are there for your safety".
Jen shares the principles that guide clinical trials and a few tips for those who choose to participate.
FARA - curefa.org
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