In this episode, Erika discusses genetic uncertainty, resilience, and the emotional realities of Huntington’s Disease with Lori Jones. Author and advocate Lori Jones joins the show to share insights from her memoir Spared: A Memoir of Risk and Resolve and her lived experience growing up in a family affected by HD. Together, they explore stigma, secrecy, caregiving, and the psychological impact of hereditary illness, as well as how communication, kindness, and storytelling can create connection and reduce shame. This episode offers a compassionate look at courage, identity, and the power of speaking openly about difficult truths.
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Lori's Website: https://lorijoneswrites.com/
Lori's Book: https://lorijoneswrites.com/books
BetterHelp/UnderstandingtheMisunderstood
This episode is sponsored by BetterHelp. Use code 'THEMISUNDERSTOOD' for 10% off your first month.
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