I'm Dying to Tell You

What You Want to Know, But Were Afraid to Ask (Part 2/2)


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In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? "   More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions.  So in this episode, I chat with  Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland  as we go through each question submitted by listeners of this podcast.  Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was great to have a wide range of experience to learn from.   I love the incredible support and curiosity for this unique episode.  We had such an amazing "round table" discussion, I decided to have 2 episodes so we could address all the questions.  In this part 2/2, we answer questions about mental strength, the grieving process, bucket list, sex/intimacy, thoughts on getting a trach, fears about what's to come, planning our own funeral and more.  If you missed part 1, we answered questions about fears of dying, mental health, survivor's guilt, what brings joy, boundaries and faith.  I hope you'll listen in and share with a friend to help us create more awareness of ALS.  Hugs, Lorri             
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I'm Dying to Tell YouBy Lorri Carey

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