Rare Disease Day is observed on the last day of February every year. Did you know that there are over 7,000 rare diseases affecting more than 30 million people in the United States? Every nurse practitioner will encounter patients and families affected by rare disease in their practices. On today’s podcast we are joined by NP experts Dr. Stephanie Hosley and Alicia Turner who will discuss the burden and impact of rare disease and provide resources for the NP to provide best care for patients/families affected by rare disease.

To earn 0.9 contact hours of continuing education (CE) credit, you will need the participation code provided at the end of the podcast. To claim your CE credit, log in and register for the activity within the AANP CE Center, then enter the participation code and complete the post-test and evaluation. CE credit is available for this podcast through February 2026.

Resources

NIH Genetic and Rare Disease Information Center

NORD Patient Assistance Programs

Rare Diseases at FDA

Clinical Trials Look-up