116 Embracing the Role of a Caregiver: Tips and Techniques with Lili Udell Fiore

In episode 116 of 'Hospice Explained,' host Marie Betcher RN interviews Lili Udell Fiore, author of 'Lili's Caregiver's Guide.' Lili shares her personal journey of caregiving for her aunt and parents, providing valuable insights on managing grief, organizing caregiving tasks, and improving the quality of life for loved ones. Lili, also a death doula, offers practical advice on dealing with dementia, understanding the importance of self-care, and navigating the responsibilities of a caregiver. She emphasizes the importance of recognizing changes in loved ones, understanding their needs, and ensuring their end-of-life wishes are honored. Additionally, Lili discusses the significance of understanding and addressing grief, especially in children, and the role of hospice care and chaplain support in the final stages of life. This episode is filled with actionable tips and resources for caregivers and those supporting loved ones through end-of-life care.

00:00 Introduction to Hospice Explained

00:37 Meet Lili Udell Fiore: Author and Caregiver

00:59 Lili's Personal Caregiving Journey

01:32 Insights on Grief and Living Again

02:11 Welcome Lili: Author and End of Life Doula

02:23 Lili's Caregiving Tips and Experiences

08:50 Understanding the Five Love Languages

10:34 Caregiving for Dementia: Tips and Stories

16:16 Practical Tips for Home Caregivers

18:13 Becoming a Death Doula

19:44 Organizing Caregiving with Tracking Forms

21:42 Sensory Care Method for Joyful Living

23:17 Remembering Lili's Father: A Legacy of Care

24:48 The Value of Perspective in Caregiving

25:27 Understanding and Validating Emotions

26:42 Engaging with Loved Ones Through Sensory Cues

29:04 The Importance of Hospice and Palliative Care

32:55 Navigating Grief and Loss

38:41 Communicating with Children About Death

43:31 Final Thoughts and Practical Advice

https://www.liliudellfiore.com/

 Book On Amazon: https://a.co/d/4hzMjCy

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com