Hospice Explained

116 Embracing the Role of a Caregiver: Tips and Techniques with Lili Udell Fiore

In episode 116 of 'Hospice Explained,' host Marie Betcher RN interviews Lili Udell Fiore, author of 'Lili's Caregiver's Guide.' Lili shares her personal journey of caregiving for her aunt and parents, providing valuable insights on managing grief, organizing caregiving tasks, and improving the quality of life for loved ones. Lili, also a death doula, offers practical advice on dealing with dementia, understanding the importance of self-care, and navigating the responsibilities of a caregiver. She emphasizes the importance of recognizing changes in loved ones, understanding their needs, and ensuring their end-of-life wishes are honored. Additionally, Lili discusses the significance of understanding and addressing grief, especially in children, and the role of hospice care and chaplain support in the final stages of life. This episode is filled with actionable tips and resources for caregivers and those supporting loved ones through end-of-life care.

00:00 Introduction to Hospice Explained

00:37 Meet Lili Udell Fiore: Author and Caregiver

00:59 Lili's Personal Caregiving Journey

01:32 Insights on Grief and Living Again

02:11 Welcome Lili: Author and End of Life Doula

02:23 Lili's Caregiving Tips and Experiences

08:50 Understanding the Five Love Languages

10:34 Caregiving for Dementia: Tips and Stories

16:16 Practical Tips for Home Caregivers

18:13 Becoming a Death Doula

19:44 Organizing Caregiving with Tracking Forms

21:42 Sensory Care Method for Joyful Living

23:17 Remembering Lili's Father: A Legacy of Care

24:48 The Value of Perspective in Caregiving

25:27 Understanding and Validating Emotions

26:42 Engaging with Loved Ones Through Sensory Cues

29:04 The Importance of Hospice and Palliative Care

32:55 Navigating Grief and Loss

38:41 Communicating with Children About Death

43:31 Final Thoughts and Practical Advice

https://www.liliudellfiore.com/

 Book On Amazon: https://a.co/d/4hzMjCy

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

 

Navigating Hospice Care: Insights from Derek J. Flores, RN In Episode 115 of Hospice Explained, host Marie Betcher, RN, replays an insightful conversation from Episode 36 with Derek J. Flores, RN. Derek, a seasoned hospice nurse and author, shares his experiences and wisdom on hospice care, discussing his bestseller 'Seven Keys to a Peaceful Passing,' caregiving dynamics, the phases of dying, the importance of honesty, and the impact of communication on patient and family outcomes. They also explore the controversial topic of physician-assisted suicide, emphasizing natural death and the importance of bereavement services. To enrich the experience, Derek introduces his latest book, 'Letters to a Hospice Nurse,' and its companion workbook 'My Letter,' which aim to preserve patient stories and aid in the grieving process.   00:00 Introduction to Hospice Explained 00:55 Meet Derek J. Flores, RN 01:52 Discussing 'Seven Keys to a Peaceful Passing' 05:00 Understanding Hospice Caregiver Dynamics 06:33 Stages of Dying: Transitioning and Active Dying 07:35 The Role of Humor in Hospice Care 09:59 Addressing Family Dynamics and Truth-Telling 12:44 Thoughts on Death with Dignity and Physician-Assisted Suicide 15:59 The Natural Dying Process and Grieving 19:43 Derek's Favorite Patient Story 26:56 The Importance of Hospice Bereavement Services 28:48 Closing Thoughts and Farewell     https://a.co/d/e6rUEob

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

 

114 Building a Legacy: An Interview with Dr. Kimberly Harms In episode 114 of 'Hospice Explained,' host Marie interviews Dr. Kimberly Harms, a multifaceted professional with experiences as a Dentist, Grief counselor, Death doula, and more. Dr. Harms shares the importance of legacy planning and preparing emotionally and practically for the end of life. She discusses her book, 'Are You Ready? How to Build a Legacy to Die For,' which provides guidance on organizing affairs, writing legacy love letters, and reconciling before passing. Dr. Harms also reflects on personal losses, emphasizing the importance of addressing grief and maintaining emotional resilience for the sake of loved ones. The discussion covers death doula services, the value of hospice care, and the peace that comes from being prepared for the inevitable. 00:00 Introduction to Hospice Explained 00:35 Meet Dr. Kimberly Harms 01:22 Personal Losses and Grief 02:27 The Importance of Legacy Planning 03:44 Writing Love and Apology Letters 05:26 Organizing Important Documents 08:59 Encouraging Group Legacy Planning 17:16 Personal Stories of Loss 19:18 Becoming a Grief Counselor 20:15 Discovering Death Doulas 20:23 Legacy Planning and Living Funerals 20:47 A Miraculous Moment 25:51 The Importance of Hospice 32:30 Grieving and Finding Joy 34:57 Conclusion and Final Thoughts https://www.goodreads.com/book/show/198664496-are-you-ready  

Hospice Explained Episode which disucusses Living Funeral

Episode #90 A Journey Through Hospice: Navigating End-of-Life with Love and Legacy

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000651009751

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

 

113 Personal Stories and Insights into Hospice Care with Jenna Lentz

In this episode of Hospice Explained, host Marie welcomes Jenna Lentz, a medical assistant with WellSpan in Pennsylvania, to share her personal experiences with hospice care. Jenna recounts the end-of-life journeys of her aunt, grandfather, and grandmother, highlighting the varying levels of hospice involvement and the emotional impacts of each experience. Their conversation covers the importance of compassionate elderly care, the nuances of hospice support, and the concept of 'graduating' from hospice. Jenna's dedication to advocating for respectful and effective end-of-life care is evident as she discusses her commitment to pursuing a career in nursing, specifically in the hospice field.

00:00 Introduction to Hospice Explained

00:29 Meet Jenna Lentz: A Journey into Nursing

01:45 First Hospice Experience: Aunt's Story

02:57 Grandfather's Hospice Journey During COVID

04:05 The Role of Hospice: Myths and Realities

06:22 Grandmother's Struggle with Elder Abuse and Hospice Care

14:58 Jenna's Future in Hospice Nursing

18:21 Conclusion and Call for Stories

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 

Hospice Explained Affiliates & Contact Information

 

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

 

 

112 Behind Hospice Care: Special Replay with Monica RN In episode 112 of 'Hospice Explained,' host Marie Betcher, RN, revisits a previous episode with Monica, RN, a seasoned hospice nurse who shares invaluable insights from her career. The episode delves into the emotional and practical aspects of hospice care, highlighting the holistic support provided by a multidisciplinary team. Monica shares touching stories about patients, including spiritual experiences, end-of-life support for both adults and children, and the shift from acute care to hospice care settings. Marie and Monica emphasize the importance of early hospice intervention and the need for compassionate communication in end-of-life situations. 00:00 Introduction and Disclaimer 00:29 Episode Overview and Affiliates 01:33 Interview with Monica: Insights on Hospice Nursing 02:12 The Importance of the Hospice Team 03:26 Personal Stories and Experiences 08:04 Spiritual and Supernatural Encounters 17:23 Pediatric Hospice Care 21:19 Emergency Department and End-of-Life Care 25:16 Advocacy and Self-Advocacy in Hospice Care 28:11 Conclusion and Future Episodes

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 

Hospice Explained Affiliates & Contact Information

 

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

Caring with Compassion: Jean Anne Menna BSN, RN on Hospice and End-of-Life Care

In this episode of Hospice Explained, host Marie Betcher RN interviews Jean Anne Menna BSN, RN, a hospice nurse and author of 'Go With Grace,' a guide to providing dignified end-of-life care. Jean Anne shares her motivation for writing the book, influenced by her experience with her father's passing, as well as her holistic approach to hospice care that includes not only patients but also their families and pets. The discussion covers practical aspects of hospice care, the importance of organization and communication, and the emotional significance of writing letters to loved ones. Jean Anne also emphasizes the need for a plan for pets, recounting a poignant story about a patient's cat, Houdini. This episode aims to dispel misconceptions about hospice and highlight the compassionate care it offers.

00:00 Introduction to Hospice Explained

00:36 Meet Jean Anne Menna

01:33 The Inspiration Behind 'Go With Grace'

04:23 Jean Anne's Personal Story

07:49 The Importance of Writing Letters

14:02 Planning for Pets in Hospice Care

21:05 Spreading Awareness About Hospice

26:19 Conclusion and Final Thoughts

https://www.amazon.com/Go-Grace-Simple-Caring-Hospice/dp/B0D7SMXTNW

https://gowithgracebook.com/

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 

Hospice Explained Affiliates & Contact Information

 

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

Episode 110 - The Importance of Listening Skills

In this episode of Hospice Explained, Marie Betcher RN discusses the value of listening skills, particularly in the hospice care context. She highlights the importance of truly listening to patients' stories to understand their needs and make their hospice experience better. The episode also offers a preview of next week's guest, Jean Cruz, who will discuss her book about caring for loved ones on hospice.

Introduction Welcome to Hospice Explained. 

Learning and Growing

Next Week's Preview

Closing 

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 

Hospice Explained Affiliates & Contact Information

 

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

109 Navigating Mental Health: From Trauma to Wellness with David Woods Bartley

In episode 109 of Hospice Explained, host Marie Betcher interviews David Woods Bartley, a speaker, trainer, writer, and mental health advocate. David shares his life journey from enduring severe childhood trauma and crippling depression to finding mental wellness. He highlights the importance of connection and support, the impact of therapies such as electroconvulsive therapy (ECT), and his ongoing mission to educate and inspire others. This episode offers profound insights into mental health challenges, the importance of shared stories, and practical advice for supporting those in distress.

00:00 Introduction to Hospice Explained

00:34 New Communities and Affiliates

01:42 Interview with David Woods Bartley

03:04 David's Early Life and Trauma

06:00 Struggles with Depression

07:10 Animal Sanctuary Journey

08:52 The Depths of Depression

10:16 The Turning Point: Forest Hill Bridge

11:56 Living with Mental Illness

22:16 Electroconvulsive Therapy (ECT) Experience

27:55 Medication and Daily Routine

28:13 Current Challenges and Resilience

30:54 Support from Family

32:55 The Power of Connection

33:46 Suicide Prevention Insights

35:46 Helping Others in Crisis

39:30 Military and Personal Stories

47:11 Final Thoughts and Resources

 

Email: [email protected]

David's Book:  https://www.davidwoodsbartley.com/mytroubledmind

David's Website: https://www.davidwoodsbartley.com/

Call David:  1-916-247-6389

Suicide Hotline: 988---Call or Text!

https://988lifeline.org/?utm_source=google&utm_medium=web&utm_campaign=onebox

National Sexual Assault Hotline: 1-800-656-4673

https://rainn.org/

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 

Hospice Explained Affiliates & Contact Information

 

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

108 Remix-Understanding Palliative and Hospice Care: Insights from Dr. John Mulder

In episode 108 of Hospice Explained, host Marie Betcher RN revisits episodes 30 and 31 with Dr. John Mulder, a pioneering expert in palliative care. Dr. Mulder shares his journey into the specialty, clarifies the differences between palliative and hospice care, and discusses the importance of early palliative referrals. He emphasizes the role of a compassionate care team in improving the quality of life for patients with serious illnesses and highlights the benefits of integrating technology in end-of-life care. Through poignant stories, Dr. Mulder illustrates the profound impact of palliative and hospice care, urging listeners not to fear the process and to seek out the resources available for optimal quality of life.

00:00 Introduction to Hospice Explained

00:29 Episode Overview and Affiliates

01:29 Introducing Dr. John Mulder

02:17 Dr. Mulder's Journey into Palliative Care

04:28 Understanding Palliative and Hospice Care

08:13 Challenges in Palliative and Hospice Referrals

10:34 Pediatric and Geriatric Palliative Care

11:43 Benefits of Early Palliative Care

15:50 Technology in End-of-Life Care

18:55 Personal Stories and Experiences

 

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 

Hospice Explained Affiliates & Contact Information

 

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com

End-of-Life Stories: A Hospice Chaplain's Journey In this episode of Hospice Explained, host Marie Betcher interviews John Wenderlein, a Hospice chaplain based in Daytona Beach, Florida. John, an ordained Southern Baptist minister with a master's in theological studies, shares his experiences and the emotional journey of working with patients at the end of their lives. He discusses his two published books, 'Remember Me' and 'Delayed Honor,' which include unique and heartfelt stories of his patients, ranging from civilian end-of-life narratives to the struggles of Vietnam veterans. John also shares impactful stories from his time working as a hospice chaplain during the COVID-19 pandemic, emphasizing the importance of compassion, sincerity, and the human connection in end-of-life care. 00:00 Introduction to Hospice Explained 00:29 Meet Your Host, Marie Betcher 00:33 Join the Hospice Explained Communities 01:29 Introducing Our Guest: Chaplain John Wenderlein 02:21 John's Journey to Becoming a Hospice Chaplain 03:05 John's Books and Their Inspirations 06:40 Heartfelt Stories from Hospice 17:25 Veteran Stories: Honoring Their Service 26:18 COVID-19: Stories from the Frontline 35:28 Conclusion and Future Plans   https://www.amazon.com/Remember-Me-through-Hospice-Chaplain-ebook/dp/B0CGNZNMJJ

https://www.amazon.com/Delayed-Honor-John-Wenderlein-ebook/dp/B0CTKPX7DT

 

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

 

Hospice Explained Affiliates & Contact Information

 

Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/

Affilitate for the Caregiving Years Training Academy: 

https://www.careyearsacademy.com/ref/1096/

 Affiliate for DNA is Love listeners also get a 5% discount!!

https://dnaislove.com/?coupon=hospiceexplained5 

The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/

 Marie's Contact [email protected] www.HospiceExplained.com