The Rare Life

198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy


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From the moment Ashley learned she was carrying twins, her life took a turn she would never have imagined.

A diagnosis of twin-to-twin transfusion syndrome set off a chain of events: heart-wrenching decisions for her twin daughters, another complicated pregnancy ending in an emergency C-section at 24 weeks, and more than a year in the NICU with her son. Along the way, she wrestled through overwhelming grief, advocated for her son in a complex medical world, and discovered the ways in which love,light, and loss can coexist.

If you’ve ever lived through what felt like a never-ending medical crisis, or wondered if joy could return after devastation, Ashley’s story is for you.

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The Rare LifeBy Madeline Cheney

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